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Doctors Gave This Girl 3 More Years To Live, And She’s Becoming An Example On How To Enjoy Life
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Doctors Gave This Girl 3 More Years To Live, And She’s Becoming An Example On How To Enjoy Life

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Taqlima Jahan Nitu, a 10.5 years old girl is suffering from Progeria, a rare genetic condition. She was born on the 10 September, 2007 in Habiganj, Bangladesh. Her father Kamrul Hasan is a day laborer and her mother Mrs. Josna is a housewife. Nitu is the 4th child of her parents and they are 3 brothers and 3 sisters.

When she was around 3 months old, her mother suddenly noticed that her body seemed a little harder than the other similar aged children and she was rapidly losing her hairs. She got worried and one day discussed it with one of her neighbors. Her neighbor got worried too and advised her to consult a physician. Thereby they took her to a local doctor. The doctor assured them and prescribed some gastric medicines. Unfortunately, the doctor diagnosed wrong and all her hairs were falling overnight as soon as she consumed those medicines. Her parents got scared and immediately took her to a district level hospital at Sylhet. The doctors at that hospital referred her to Dhaka for better treatment. Finally, the Doctors came to a conclusion and confirmed her parents that she is a patient with a rare disease called Progeria that causes a child’s body to age fast. They also warned her parents that there is no known cure for this disease and most kids with this disease do not live past the age of 13. Her parents could not believe the doctor’s statement and repeatedly requested for medicine. They still believe that one day she will be cured.

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Despite her severe illness and pain Nitu is quite a lively girl. She likes to play, she likes to roam around. A doll is her most favorite toy. She is reading in class 2 at a local school and she likes her study very much. She can draw well.

Nitu has accepted the truth positively. Unfortunately, the society could not accept Nitu due to her different look. She is a case of isolation to the society, not a case of the disease. She is growing older and slowly getting isolated from the surrounding and so do her family. No kid wants to play with her. They used to get scared by looking at her. Sometimes people brand her as a curse, pass bad comments and pose ill manner towards this little kid and her family. Sometimes people ask by indicating her that what this thing is! Usually, she does not go to common places, because curious people surround her and starts alien attitude towards her.

Nitu can understand the negligence towards her. She has realized the hard fact that the society could not accept her. She often queried her mother that why Allah has sent her, why Allah is not taking her away.

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As per the Doctor’s statement, her expected lifetime is as little as 13 years. But, this short span of life is full of negligence and insults. We cannot help her by expanding her lifespan but we can easily help her live a better life. We can be little compassionate and change our point of view towards her. Our little care and attention can let her live her small life meaningfully and leave this earth with some sweet memories.

RELATED:

    Nitu is bravely fighting Progeria

    She goes to school as any other kid

    She enjoys drawing while keeping getting better at it

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    She loves to use make-up

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    And bangles are her favorite

    She spends a lot of time at home

    Where she needs a pillow to sit

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    Here’s how Nitu’s playtime looks like

    She is used to playing with her sisters

    She likes to play ball

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    She was very happy when she went to a local fair and bought all of these

    Her sisters are her best friends

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    She is very good at drawing henna tattoos

    She has a tremendous bond with her father

    Her mother and her family is her ultimate support

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    The little Angels

    She loves to go out, but she often feels that the society can’t accept her

    Only a little care and compassion from us could give her a better life

    She is not alone, and hopefully the society will get beside her and her family

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    Joya Korem

    Joya Korem

    Author, Community member

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    Freelance Photographer

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    Joya Korem

    Joya Korem

    Author, Community member

    Freelance Photographer

    What do you think ?
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    POST
    Danielle Renee
    Community Member
    6 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

    i wish there was something in this story that told how people could write to her to let her know there is love and compassion in the world for her and her family.

    Pamela
    Community Member
    6 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

    Some people are dealt with such a hard deck of cards from the beginning. She is inspiring, because she continues to move forward in her life when she has everything stacked against her. She is inspirational and we should all take a page from her book. Bless you sweet tiny girl.

    Alia G.
    Community Member
    6 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

    It’s just not fair. Such an innocent child deserves nothing of this. Imagine how brave you’d have to be to just accept you only have so much longer to live. She truly should be an inspiration to us all.

    Load More Comments
    Danielle Renee
    Community Member
    6 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

    i wish there was something in this story that told how people could write to her to let her know there is love and compassion in the world for her and her family.

    Pamela
    Community Member
    6 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

    Some people are dealt with such a hard deck of cards from the beginning. She is inspiring, because she continues to move forward in her life when she has everything stacked against her. She is inspirational and we should all take a page from her book. Bless you sweet tiny girl.

    Alia G.
    Community Member
    6 years ago DotsCreated by potrace 1.15, written by Peter Selinger 2001-2017

    It’s just not fair. Such an innocent child deserves nothing of this. Imagine how brave you’d have to be to just accept you only have so much longer to live. She truly should be an inspiration to us all.

    Load More Comments
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