“What Is Something A Doctor Completely Ignored You Telling Them About When Clearly There Was Something Wrong?” (19 Answers)
When TikTok user omqgabbi went to the doctor with a bunch of hearing problems, they just brushed her off, ignoring alarming signs. Eventually, she decided to share her experience in an attempt to inspire others to speak out against medical negligence as well.
"I couldn't hear low tones, like men's voices, very well," omqgabbi explained in a TikTok. "And ... if there was background noise, hearing was not a thing. I just — I had to intently focus on you to understand what you were saying."
"I tell the doctor I hear well in a perfectly silent room. What does he do? He puts me in a silent room and tests my hearing. He proceeds to be like, 'Wow, your hearing is perfectly fine.' He turns to my mother, thinking he's funny, and he goes, 'Maybe your daughter doesn't have a hearing problem, but a listening problem.'"
Turns out, omqgabbi has an Auditory Processing Disorder.
She also asked people to share a time when their doctor completely ignored them when it was evident something was very wrong. Sadly, they delivered.
More info: TikTok
As of this article, the TikTok has nearly 750K views
@omqgabbi Stitch this and tell me your stories cause some doctors just don’t care #storytime #doctorstories #baddoctor #ItWasntMe #TurboTaxLivePick6 #fyp
♬ original sound - omqgabbi
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Alright This Is Gonna Be Hard To Believe. When I Was About 21, I Went Into Pre-Term Labor (At Five And A Half Months) And Had A Stillborn
About eight hours later, the nurse brought my baby back in the room and told me that she was actually alive — that she was struggling to breathe and would I like to hold her while she passed away. And, of course, I held her for another eight hours. The doctor kept telling me she was dying. Her Apgar scores are low, she can't breath — I finally fired him. I had another doctor come in and after she checked her, they took her to neonatal intensive care, where she spent the next four months. Today, she's 26 with two sons.
To get a better understanding of why these things happen, it's important to hear out the other side as well. General practitioner, medical researcher, and founder of PrimeHealth Clinical Research, Iris Gorfinkel, M.D., told Bored Panda that there is a number of problems doctors face at work that interfere with helping people. For example, some assume that doctors are more connected than they are, especially in Canada.
"I can't speak for every health system, but the bureaucracy and trying to connect points on a graph that don't necessarily easily connect, that's one big challenge," Gorfinkel said. "Patients often assume that we know more than what we do actually know about all the services that are available. And the truth is, there are a lot of services, and I'm happy as a family doctor to refer to those services and don't pretend to know where they all are."
At 2 Years Old, My Daughter Started Growing Pubic Hair And I Asked Her Pediatrician. He Said It Was Just A Burst Of Hormones And I Told Him He Was Wrong
Wouldn't listen, wouldn't do any other test. Fast forward - she's 4 years old. Now she's getting acne and really bad body hair, on top of a full bush. Pediatrician says, 'Yeah, that's kinda weird.' Four months later, sends us to an endocrinologist. He does one blood test and says, 'Yeah, her male hormones are slightly elevated.' OK?? Ten months later, we get an MRI. She has a very large tumor growing on her adrenal gland, causing them to turn on. She had the male hormones of a 17-year-old boy at age 5. Fast forward another month - we've been at St. Jude's ever since. My daughter has stage 4 adrenal cancer. A very rare form of it as well. She almost died.
Bloody hell . Poor baby , stage 4 cancer , this is bad. That doctor has this on his hands. He shouldn’t be a doctor at all . A butcher maybe
A second issue—and a huge one—is the time. "Typical family practice appointment might be 15 minutes, and a lot of the time ... that's not nearly enough. Time is a big constraint, and when it runs out, patients get frustrated. And in truth, I'm frustrated as well, not having the time that I always need."
Plus, some things are simply not within a doctor's control. Those are called the social determinants of health. "A person's occupation, a person's income, a person's educational level, we know that these are major determinants of how well we'll do physically and emotionally," Gorfinkel said. "Trying to meet them some way midway, especially when there are educational or cultural barriers, sometimes language barriers, they can be big challenges."
When I Had My Youngest Daughter, I Gave Birth Vaginally And Then My Doctor Came In Because He Was Very Late To My Delivery
So, he starts to pull out my placenta and immediately I knew there was something wrong. I asked him, I'm like, 'Please, something doesn't feel right. Something is wrong.' He looks at me and says, 'No, it's OK. It's almost out.' So, he's like forcefully pulling it out and he proceeds to pull out my placenta attached to my uterus attached to my fallopian tubes. Everything comes out of my cervix. At this point, I pass out and they take me back to the OR and call a code white because there's blood literally everywhere. The last thing I remember is the anesthesiologist and the nurse screaming at each other back and forth and I hear my doctor say, 'We're doing a full hysterectomy.' I woke up an hour later and I had a double blood transfusion.
The fourth thing is the disease itself; sometimes it just doesn't have any cures. "I think one of the greatest things a doctor can do for a patient when faced with a challenge of an incurable condition is having that patient take on the perspective of running toward the light," Gorfinkel said. It's a perspective she also tries to share with her own patients.
"You have two attitudes in medicine. The first is, 'I'm afraid of disease, I'm terrified of getting sick.' This is ultimately what we all suffer from, right? We don't want to be sick alone. We don't want to die alone, and in pain, those are huge fears. But is there a better way to live our lives to make the most of the time we have? I call that running toward the light. In other words, why do you do healthy things, it's not just so that you won't get sick, it is so that you will live better today."
I Was 15 When My Daughter Was Born And When She Was 4, She Grew A Large Lump The Size Of A Golf Ball On The Left Side Of Her Neck
I freaked out and took her to the hospital, where they were ke, 'Oh my god, it's totally normal. We'll just do a little incision and drain it.' So they did and it never healed. And every time I took her to the doctor, they rolled their eyes at the stupid teen mom who didn't know anything about healthcare and dismissed me. I started asking for referrals to the sick kids [unit of the hospital] and they refused, like I was questioning their medical judgement. ... One day, I hooked my feet around the legs of a chair [at the doctor's office] and said, 'I'm not leaving without a referral to sick kids.' Doctor comes out and says, 'Don't make me call security.' I said, 'Don't make me call the newspaper.' He gave me the referral, I got her down to sick kids. She was diagnosed with atypical mycobacteria and cured within weeks.
That's a scary idea... Myco=fungus/mould, so you get Leprosy/Hansen's disease as well as TB/Tuberculosis as examples of mycobacteria: Slow-growing irreversibly damaging things that are hard to treat once a good foothold (nerves for leprosy, lungs for TB).
The last thing Gorfinkel highlighted was stress. Burnout. A lack of life balance. According to her, many of the advances we've made in modern medicine—for example, electronic medical records—pulled doctors away from their patients.
"We used to look in the eyes of our patients and take their history, we used to place our hands on their body in order to understand what it was actually saying to us. And this, unfortunately, is rapidly becoming a lost art."
In College, I Hurt My Ankle And After A Few Days Of Leaving It Elevated, My Calf Was Double The Size Of The Other Calf
I went to the emergency room and they told me I have a muscle cramp and to just massage it out. I knew this couldn't be right because I've been playing softball for 17 years — I know what a muscle cramp is. I went to the next emergency room and they told me again it was a muscle cramp and now accused me of just being a drug seeker. I go to the third emergency room, where they finally do a sonogram and find a blood clot in my calf, a blood clot in my groin — a piece dislodges and lands in my lung, giving me a pulmonary embolism. Had I massaged my calf the way the first two emergency rooms told me, I could have dislodged the blood clot, giving me a heart attack or a stroke. Ten years later, it took ten years to find out that I have an autoimmune disorder that causes me to be prone to blood clots. Medicine fails Black women.
Gorfinkel is really sorry about that because, in her mind, these are healing acts. "Doctors are spending—and this is actually a thing—80 to 90% of their time staring at a computer screen. So I ask you, is that necessarily healing?"
"If the problem is simplistic, yes, perhaps it could be done that way. But being the old school person that I am, I think the greatest healing is not done that way. It is still done with contact. I'm talking about contact on every level so that we can better understand one another; the psychological level, the spiritual level, the physical level..."
I Woke Up One Morning With A Really Bad Headache
I said to my GP, it hurts so much when I cough, sneeze, bend over, laugh, anything like that — when I sit up from bed. I said that the pain went all down the back of my neck and that over-the-counter painkillers weren't doing anything. He said, 'Sounds like a tension headache. Take some painkillers!' After a week or so, I went back in agony saying, 'Please, there is something wrong with my head. Please, take me seriously.' He reluctantly referred me for an MRI and said about three times, 'It's probably nothing, but I'll refer you for an MRI, even though it's probably nothing.' I was also having problems with my vision.... I was admitted to the hospital the same day for severe Idiopathic Intracranial Hypertension.
aka high blood pressure in the brain, also able to cause a tumor. i learned about them not to long ago, but they are extremely fatal. those idjits....
However, sometimes things go wrong. To err is human. When Dr. Atul Gawande, a surgeon in Boston’s Brigham and Women’s Hospital, wrote of his own medical mistake, he noted that while healthcare can make "dramatic improvements", there is still human fallibility to contend with.
"No matter what measures are taken, doctors will falter, and it isn’t reasonable to ask that we achieve perfection. What is reasonable is to ask that we never cease to aim for it."
From The Age Of 16
This started for me when I was 10. It got worse when I was 12. Nobody would listen to me or take me seriously. I finally got diagnosed with PCOS when I was 25, and with endometriosis a few months after the PCOS diagnosis.
Gorfinkel explained that the vast majority of mistakes that a doctor makes never gets out of their head.
"People are not going to know the majority of mistakes a doctor makes. And that's because most of these mistakes don't need to be known," she said. "They're relatively minor. They don't necessarily have an impact on a patient's health."
They may be mistakes on how something is documented—that's probably by far the most common error—and they may be mistakes that could've been but weren't. For example, a doctor sends a wrong dose to a pharmacy and the pharmacy then calls them to correct that.
These things usually happen under the radar; the patient doesn't necessarily even know they happened.
Went To The Doctor. Told Them I Had A Bunch Of Hearing Problems. That I Couldn't Hear Low Tones, Like Men's Voices, Very Well
And that if there was background noise, hearing was not a thing. I just - I had to intently focus on you to understand what you were saying. I tell the doctor I hear well in a perfectly silent room. What does he do? He puts me in a silent room and tests my hearing. He proceeds to be like, 'Wow, your hearing is perfectly fine.' He turns to my mother, thinking he's funny, and he goes, 'Maybe your daughter doesn't have a hearing problem, but a listening problem.' (@omqgabbi has an Auditory Processing Disorder)
But Gorfinkel said there are other errors that are important. Ones that have to be brought out into the open and discussed with the patient.
"The error of misdiagnosis, the error of landing on a diagnosis too quickly, the error of interrupting a patient to not fully understand their experience—these are all common errors too," the doctor said. "The best way around [these mistakes], as far as I can see, is open communication, talking about [the issue] so that things can get better in the future. [In these cases,] we can't change what was in the past, but we can change what plays out for future visits."
Body Pain
Ultimately, the best reaction to these situations probably comes from the doctor themself who says 'How can I do better?' Their internal motivation to strive for perfection is what makes things better.
"Yes, there are external bodies that oversee ... but generally, they're there for really egregious mistakes," Gorfinkel said.
This brings us to the worst medical errors. The ones that weren't solved by speaking to the doctor. If something really bad happens, patients can talk to the licensing body of the doctor.
"My personal view is there is a way to improve things. And that's to make sure that both parties have a chance to sit down together. This is really the way it should be," Gorfinkel added.
"I have made mistakes. More than I want to think about actually. And I would like to think that these mistakes were chances for me to grow, both in terms of my knowledge, and in terms of how I practice medicine."
When I Was In Grade 2, I Was Requested By The School To Do An Eye Test
You would think they could have a chart with numbers, or symbols with the necessary range of shapes to determine eyesight accuracy
If something tragic happens to a patient, there is a chance to use their horrible experience to help others. To improve the way their (and other) doctors practice medicine. It may not sound like much, but it's something. And something is better than nothing.
"When people are looking to sue a doctor, they're really upset about an error that was made. And rightly so," Gorfinkel said. "One of the things they look for is restitution in terms of is that going to change how things are going to be for someone else in the future. That is actually one of the key things we're looking for."
As the doctor pointed out, outsiders often think these people are looking for money, they just want a suit. Actually, a lot of the time, that's not true.
"What they want more is to know that that same error will not be made in the future. That the doctor has learned from their mistake, and that there will be systems in place to protect others from having to walk that same path."
There Was A Few Times But I Will Talk About The Most Egregious One
I was going to a doctor for four years about my back. Like, literally every few months I would go in and go, 'Look, the pain is still there. Nothing is helping. I don't understand what is going on.' They would give me painkillers and [screw] me off. After four years, I got really exasperated. I was like, 'When are you actually going to do something about this? This has been going on for ages. Nothing has been done.' And, at the time, the doctor that I was seeing told me that every time I had gone in they had put it down as a separate, weight-related back issue. Don't get me wrong, being overweight can cause many problems, and indeed with your back. But this was because I fell down the stairs and tore two muscles in my back. Four years and they were noting it down as weight.
They always say it is the weight, so they can put the blame on you
Having Your Heart Stop Twice Hurts
"They continued to blame it on my anxiety but turned out I had bad heart condition. Admitted into to the hospital, having your heart stop twice hurts"
I didn't know it would be painful, but makes sense, i thought it would be a tingly feeling and then blackness.
APD Is Often Overlooked
APD is Auditory Processing Disorder. A disorder affecting the ability to understand speech. Currently, there's no known or definite cause. (According to Google)
I Went To The Doctor With A Lump In My Breast
I went to the doctor with a lump in my breast and it was leaking pus from my nipples. And with my long family line of breast cancer issues I thought that it will be taken a little bit more seriously. He was telling me he will order a bunch of ultrasounds and tests he actually never did that. When I called ultrasound people they said we don't have anything for you, no requisitions, nothing. So you need to go to the hospital, emergency room right now, because it can be some serious bad juju. I figured out nothing was wrong but I got finding a new doctor and complaint about the doctor because thats some serious stuff
At least this is such an obviously-not-to-be-dismissed symptom that the patient immediately disregards! Not like others where they're Ok right it will go away in a month I'll hang on.
When My Daughter Was Almost 3 Months Old, She Was Having A Hard Time Breathing
damn! i hope all of these people got fired, they deserve to go to hell. their jobs are to save people. not to nod off and say "ahh, your fine!"
Sadly lousy doctors dont get fired. Most of them are bad anyway.
Load More Replies...GLORIA BENADO WITH A "B" YOU'RE AN ASS. STOP BEING A F*****G ASS!!
To Gloria, the person bitching about ppl’s writing... just because someone can’t write well doesn’t mean their illnesses should be dismissed. Should a doctor be allowed to ignore you just bc you are a hateful person?
Also the op wrote 'toled' not 'tolde', meany Gloria misspelled a misspell 😂
Load More Replies...My eldest son got RSV at 4 months old and was in the hospital for three weeks.
my first thought is the fact that the d key is like a little more than two key away from the B key and b wasn't used nearby (like from/form misspellings)
I love how Gloria is calling people out on their spelling etc, yet her grammar is absolutely appalling.
Stop with the white letters on a black background, Bored Panda. Impossible to read.
Doctor Refused To Switch My Birth Control Even I Was Having Some Major Side Effects From It
I had to find myself another doctor who could prescribe me a non hormonal iud. Because that was not an option in my doctors eyes. It was not going to help any of my issues. When i switch my birth control all of my issues gone .So not going back to that doctor
My Doctor Wouldn't Listen Turns Out I Had A Brain Condition
Went to the doctor as I could hear my pulse in my ear constantly, they told me it was an ear infection, so they gave me antibiotics. This did nothing. Went back again and they said there was water behind my ear drum and that it would resolve on its own, that the liquid will come out slowly over time. A year later still no improvement.
wait. not everyone can hear their heartbeat/pulse in their ears? I also seem to have a constant electrical humming throughout the day. it's exhausting.
Went It To Have My Son Early
gloria benado needs to get off this thread. By her own standards, if she can't capitalize her own name, she deserves to be sick and should not procreate.
Kidney Failure
im pretty sure one of my dads best friends died from this. but a lot of these are fatal, and the fact that they got IGNORED!?!
I've only got a degree as a Registered Nurse but even I would have recognized at least half of these symptoms for what they were immediately -- would have thought doctor would ask for tests for the rest that I wouldn't have recognized. In my experience it doesn't actually take as much intelligence to become a doctor as it does having money or connections. They do have to have a degree of work ethic to get through school, but again, being a doctor does not mean you're necessarily smart at all. A huge chunk of nursing work seemed to be keeping an eye on what the doctors were doing -- and, to be fair, what other nurses were doing, because of course dumb and crazy people can manage to become nurses too.
NEVER SAY ONLY AS AN RN! My mom held her RN for 45 years and was the best diagnostician I ever encountered, including my own medical doctors an dmy own medical school profs.
Load More Replies...I had an enormous blood clot block two third of the blood flow to my intestines for at least 1.5 years. I got diagnosed with gastritis again and again, and despite passing out being a regular thing, pain after eating, and a history of abdominal clots i got no help. I went back again even though it had only been 5 days since I had begged the emergency dept to make the pain stop, I just had a feeling I had to go there, now. My operations began that day, seven in total spread over several weeks, half my small intestines gone, lungs damaged badly from embolism, complete sepsis infecting liver and kidneys and other organs: they kept me open for a while until my final operation, so they could wash my organs every day. If it hadn't been left til the last minute I wouldn't have almost died, and if I hadn't trusted my instincts that day going back even though I knew they would not want to admit me, I wouldn't be here. I don't remember much after arriving at the emergency dept that's when it sta
*started. I still trust doctors btw but I make sure I advocate for myself and make sure I'm not brushed aside again.
Load More Replies...Anybody else find it concerning that this neglect is happening mostly to women ?
There is big problem of sexism in medicine. Womens pain is considered less serious and often called anxiety. Our bodies are less known because all traiditional books and research are from male bodies. And women only diaeases like pcos or endometriosis are almost always unknown or ignored by doctors.
Load More Replies...My story isn’t so bad compared to these but here it goes. Just a few weeks ago my son was coming to me crying and complaining his eye was burning and right in front of my eyes I noticed his eye going red, his eyelids closing about half way and a lot of fluid running down his face. I took him to the hospital, first visit was given some eye drops in case it was early stages of conjunctivitis. After a few days there was no improvement. I took him to the optometrist and they said they can see a white speck and to go back to the hospital. This time round, even after telling the Dr about what the optometrist saw, he was trying to convince me it was just allergies. Even when I was adamant it wasn’t. I had to raise my voice before he even considered any other alternatives, he did an annoyed sigh and then checked my sons eye using a dye. Well what do you know, my son had something embedded into his cornea. It was so small they couldn’t tell what it was but an eye specialist did manage to get it out.
My 14 year old son had a small fall, and complained of immediate back pain and leg 'fuzziness'. Went to the doctor several times, was told to rest and gentle stretching etc. Third visit said 'it may be a slipped disc', we'll get you some physio (no physio happened). Eventually after several months we were finally referred to a paediatrician - who took one look at his back (first time anyone had actually 'looked' at his back), and said 'his back shouldn't look like that' and sent us for an urgent MRI. Turns out my son had 'broken' his lower vertebrae in half and the whole spine had slipped forward into the Pelvis (Grade 4+ Spondylolisthesis). This was also crushing the nerves to his legs which were by now almost completely numb. He had to have major spinal decompression and fusion surgery aged 15. Thankfully he's doing great now, but will have life-long back problems and restrictions. MRI-604f62...63db8.jpeg
I'm so sorry about what happened, but i'm happy he's doing better!
Load More Replies...PLEASE READ. I have an MD. I chose nto to practice. I do volunteer patient information and advocacy, for the patients. IF THE DOCTOR'S FIRST RESPONSE SEEMS ODD, GO TO A SECOND DOCTOR, THEN A THIRD, THEN A FOURTH AND DO NOT TELL THEM WHAT OTHER DOCTORS SAID. That forces them to start over, and not rely on an idiot's notes. That is how I was taught. If you need my credentials, I can say I have co-authored in research on patient-centered medicine, and that's the sum of it. TAKE THE POWER. FIRE THE DOCTORS. DEMAND REFERRALS. In the age of Google/Dr. Oz, many docs think they're running into "armchair docs" and it's costing lives. Peace out.
Yea. That's the problem I had. I found a new doctor and she took my diagnosis from the old one. I was like uhhhh, the reason I switched doctors was to get a second opinion.
Load More Replies...I don't understand how a doctor benefits from not doing everything they can do diagnose/treat a patient? Is it laziness? Are they too busy to focus on something they think is trivial?
From what I've seen, it seems to be a funding/understaffing issue coupled with ridiculous caseloads. I don't think they mean to let people slip through cracks, it's just a crappy system in many places :(
Load More Replies...My doctor determined that I had the autoimmune disease vasculitis and claimed that she wanted to help me start getting better. She never referred me to a rheumatologist and refused to focus on my supposed vasculitis during any of my other appointments. She even said that I didn't have eczema because black people can't have it. A dermatologist later confirmed that I have eczema. If this lady had been a good doctor, then she would have caught the spinal stenosis that I got diagnosed with a couple of weeks ago.
Some ignoramus in the comments is complaining about people's spelling and grammar- this sort of attitude contributes to denying these people healthcare! How can you be so cruel!
My shoulder was injured. Doctors said I'll be fine in a month. I wasn't. Then "let's give it a few more weeks". Didn't work. I was in constant pain, unable to properly sleep. I kept going to the doctors every few weeks/months for pain trying to find a cause. They didn't see the problem with my shoulder, and prescribed over-the-counter painkillers. After two years I was in so much pain, I couldn't hold my a cup, and my shoulder was always in a sling. I finally got a consult with a surgeon, who diagnosed me in 5 minutes. Apparently, my shoulder was torn and partially DISLOCATED for 2 YEARS. I had a surgery within a month and got fixed.
A common story. If you are not better from an injury within 6-8 weeks, demand a surgical consult. That lesson is for everyone, btw, b/c we forget we can FIRE THE DOCTORS. :-)
Load More Replies...I went to ER after being up all night with major chills alternating with sweats. Like full body shaking, under 7 blankets chills and in the worst pain of my life. Went to work and they sent me to ER. I had a history of endometriosis, so they told me that is all it was despite me telling them this felt much different. They left me in stirrups for over 4 hrs in excruciating pain and shaking. Gave me a shot of morphine and said to go home. My husband came up and told the doc something was wrong. So now the doc will look further because my husband said something is wrong with MY body despite me crying it out to them. The problem? I had appendicitis requiring emergency surgery and turns out I also had a blood clot in my lung when they went to surgery and could've died during surgery but most definitely would have died had thy sent me home. Women are not heard in the medical field. I am also an RN. Turns out blood clot was from an autoimmune disorder I was later diagnosed with.
Im sorry to be so forward but would you be comfortable sharing the name of the autoimmune disorder? I only ask as I have an as yet undiagnosed blood clotting problem in my arteries and veins, but I totally get it if that's something you don't feel like sharing :) I'm sorry you weren't heard, the fact that you are an RN and yet still dismissed is appalling
Load More Replies...For me it wasn't doctors. It was my parents. I hit the pavement hard after my 2 big dogs chased a squirrel while I was walking them. As soon as I managed to pick myself up, I knew something was wrong. Anyone who has ever broken a bone knows there's a specific kind of pain involved. I limped home, put the dogs back in their pen and told my parents there was something very wrong. They were too busy being pissed I took too long to walk the dogs and now we were late to wherever. I then proceeded to walk on a broken hip for over a month. I was in constant pain, late for every class and just generally miserable. Mom finally took me to a doc. I ended up in the orthopedic surgery unit on my back in traction. I now have 3 screws in my hip.
I had really heavy periods with lots of blood, pain, dizziness etc. I used to faint from how bad they were. My doctor told me that "I needed to relax" and refused to even send me to the gyn. Ten years and nine doctors after I got diagnosed with endometriosis. I had textbook symptoms but nobody took me seriously for a decade. Now I am so ill that I cannot work and doing basic housechores brings me a lot of pain. I have developed other problems since then like nafld or cfs. I dont have a life anymore thanks to lousy doctors.
It's okay. Breathe. I had textbook and iddn't get diagnosed till my forties. I can't eat, stand, move, and I've all but thrown up my own liver at this point ----- but "just wait till menopause".... Gentlest healing hugs.
Load More Replies...If any of these incidents took place in the USA, you wonder about the bills.
All you can do is try to negotiate them and offer to pay them $10 or $20 a month. Then you have the problem of so many tiny payments that you can’t afford anything else.
Load More Replies...This is crazy because of all these posts this is the only one I can relate to. Ok I was around 4yrs old when it started. Passing out randomly, occasional hearing and vision loss, severe headaches to the point I tried to shoot myself in the head at 5yrs old but I didn't know guns had to be loaded to shoot. The pain was truly unbearable. When to at least 10 hospitals regularly from age 4 till i was around 6 or 7. Every doctor either said it was me being a whiny kid or others saying maybe it's his diet(bs) and oh lol the nearly 50 times DHS was called on my parents because everyone assumed I was being abused. Finally Finally around age 8 we went to a university hospital(by referral only back then) and I had SEVERE ENCEPHALITIS! LIKE REALLY SEVERE. Doctor was f*****g floored that nobody caught it and that I was even alive. Nearly 5 years of begging random adults to kill me and constant DHS visits I finally got diagnosed and put on medication to help me. I was 8 and after the first week of meds the pain was gone. Just gone. I cried. I cried for days. I was so happy and little and the only way to express my overwhelming joy was crying. I stopped needing the meds around 12 or 13 but I definitely remember hugging the doctor during the follow-up exam and I refused to let go of him. He was my literal savior.
Additionally I tried jumping off the house a couple times like skyscrapers in the movies. Turns out a 10ft drop don't kill u. Just really hurts. Along with running headfirst into walls. In hindsight I thank God for that flimsy 80s wood patter paneling.
Load More Replies...My youngest son, at 13 looking like maybe 8 years old. Not growing, no signs of puberty, extreemly overweight, hardly eating and always throwing up. Every doctor telling me he is secetly eating junkfood and just a bit behind. After 2 years of this finally a doctor orders a bloodtest! Autoimmuun disease
My daughter had constant diarrhea or constipation from the time she was born until she was 8. By the time she was 7 it had gotten so bad that she was in constant pain and also vomiting up to 10 times a day. She looked skeletal. Doctors told us take laxatives, take gas tablets, change diet, keep food diary, but never anything diagnostic. Finally found someone who listened and did a barium test. She has a condition where her stomach can’t hold food and was shunting it undigested into her intestines. Which causes vomiting, constipation, and freakingly horrific pain. She takes 1.5 teaspoons of a medicine a day now, which forces her stomach to hold her food until it’s digested. She’s gained 21 pounds in 13 months. 8 years of pain for want of a teaspoon and a half of medicine.
Thankfully mine wasn't so serious but I had a recurring pain and lump in my groin, my GP diagnosed inguinal hernia and referred me to a surgeon. Surgeon did a check and "couldn't find a hernia", said it's not really common for a woman to get inguinal hernias and refused to operate, told me it must be fluid build up or something cos I work out a lot and might have injured something. I went to another surgeon who immediately located the hernia and not only did he find one on the side of the lump but on the other side as well where I didn't have pain or lump, needed an operation and 2 meshes in my groin to repair the hernias.
I have a couple...I live in Ontario Canada, so getting tests shouldnt be an inconvenience (you would think) I went to the hospital a couple of times complaining about major back pain, they kept blaming it on a pulled muscle and put me on major back muscle relaxants. I went back a couple days later (because my feces was turning white) and they said it must be an interaction with the medicine or something I ate (TURNING WHITE!) so I said, no, you need to take blood work...to "appease" me they said fine, they took the blood work and said they would call me if it was anything. 30 minutes later they called me (good thing I had time on my phone since it was pay-as-you-go) and they said that I needed to come back to the hospital right away. My liver was shutting down, I had pancreatitis, and I needed emergency gallbladder surgery Fast forward a year later. I am again in major back pain so I go to a different hospital (because I had moved) and they said that my white blood cell count was
elevated. They stated that I had a kidney infection, antibiotics, sent me on my way. The next day I was at work, fell to the ground in pain, drove home (30 minutes away) and my father took me up to the hospital. They stated that I didnt give the antibiotics enough time to work and prescribed me oxycodone to go with it. The next day I was in a lot of pain, took the oxycodone because I had no other choice, and they didnt work...so my dad picked me up off the floor, drove me back to the hospital where they made me sit in emerge waiting room for 6 hours in pain. They FINALLY come get me, turns out that i had a gall stone after having my gallbladder out that the OTHER hospital had missed and yet again my liver was shutting down and I had pancreatitis.
Load More Replies...What bothers me A LOT is that the great majority are women. There was like 1 or 2 men, and that just ticks me off. seriously, take the other side seriously too, would you?
After having my second child. went from a completely healthy young woman to over 20 ER visits in six months. I started having seizures, constant nausea, joint pains, arthritis, head and body aches, dizziness and confusion. I was put through every test imaginable, my heart started to fail in front of my children and family. I even had multiple internal biopsies, liver, kineys, intentions, stomach, etc. . They checked for everything, I was convinced I was going to die. After at least two dozen doctors, it took ONE to make the difference. At this point I felt crazy, there where no answers. The doctor ran all the test she could, mind you I have been through at least 10 CAT scans at least. Within days she asked my husband and I to come in. Turns out I had late stage lime disease, now I am on a slow but steady recovery. The thing is, please do not ever give up on your health. Trust your instinct, know that you are not crazy or irrational. Keep going back, keep trying. Because I did my kids still have a mom.
Glad they were finally able to catch it. I hope you have a long and happy life with your kids and family. Hope you recover completely.
Load More Replies...I had chronic appendicitis. it took three ER trips to get proper treatment. The first ER brushed it off as metabolic acidosis, and pumped me so full of fluids I had to go back the next day to make sure I didn't have a kidney infection. The second ER insisted it was gallstones but they had just passed by the time they got me the ultrasound. I consulted with a surgeon and he said there's no way that happened, but I could come back if I was still have the issue six months later and they'd do more test. Third and final ER was the ticket. The doctor leading my treatment said there was a slight elevation in my urine workup that gave her pause, so she trusted her instincts and ordered me a CT. We find out not only is my appendix nearly triple its normal size, it was also located in the wrong spot, which is why my pain was always centered in my abdomen and not off to one side. An overnight of intense antibiotics to bring down the swelling and surgery the next day and I've been pain free since.
This is why so many people turn to alternative therapies, even knowing they're unlikely to work, at least those practitioners pretend to listen and care. Also, a good herbalist will tell you when regular medical care would be better and often can even recommend a good GP or specialist.
Also, there are many universities offering education in herbalism. even Bachler's and Master's degrees, and may be able to refer you to an herbalist within driving time of your area. Not just someone who read an article on Pinterest or in a magazine and think they are now qualified.
Load More Replies...I complained of hip pain for two solid years and she did nothing. Said it was probably bursitis. I kept saying it was progressing and my hip keeps giving out and still nothing. I finally call and say I want to be sent for an x-ray and they insist I have to come in 1st and she sees me and sends me for the x-ray. Turns out I need surgery as quickly as they can get me scheduled b/c my hip was almost completely broken down from severe arthritis. I was in a wheelchair by the time my surgery day came. 10 weeks out of surgery and doing much better. Trying to find a new doc but there's no female docs in my area accepting new patients.
In my experience, if a doctor cannot diagnose you immediately, then they won't bother. It makes me laugh when I watch hospital dramas, knowing that all those doctors going to great lengths to find a diagnosis just doesn't happen in real life.
Boring one: Got Ibuprofen from the dentist. It didn't work against the pain, I threw up in the railroad, kept the second pill inside, violently oppressed my innerd's intent to throw up again (now already in the town my university is in), still, the pain is killing me ... so I went back to the station, took an expensive train home, taxi, to the dentists's again, got in right when he was to leave, now enduring a pain I could'nt imagine, in my kidneys, and ask for an alternative pain relief. I didn't even ask for, nor want, any opioides or so ... well, I would have taken everything ... but one thing - more Ibuprofen. He made me a new prescription - Ibuprofen again, doubled the dose of what I cannot take and what already failed. Idiot. Now, two dentists later, I have a good one who will never attempt to make my look forward to spring, kidney's season, again, but actually listens.
My sister had severe stomach pains for a while, so eventually my mom took her to the hospital. They said she was just dehydrated, and sent her home. Next week, same thing, even after my sister was more hydrated. TOOK THEM LIKE 8 FÛCKING WEEKS TO FIGURE OUT SHE HAD APPENDICITIS. But we got really lucky because in most situations the appendix would have burst, making it waaaayyyy more dangerous, but in my sisters case, for some reason it never burst and just got like rock-solid for some reason. But yea she eventually got her appendix out. It was annoying as hell though.
I had to stop reading partway through the intro paragraph because I started feeling so anxious over my own experiences. My heart goes out to everyone who has experienced the hurt and devastation that comes from having health concerns, symptoms, fears etc ignored, dismissed or minimized by healthcare workers and/or loved ones. Having your health related reality dismissed or not taken seriously is confusing and heartbreaking in ways I cannot fully express right now. TRUST YOURSELF AND YOUR EXPERIENCES! GOOD DOCTORS ARE OUT THERE. DONT GIVE UP SEARCHING. YOU ARE WORTH IT. YOU DESERVE TO BE HEARD AND TO HAVE YOUR HEALTH CONCERNS TAKEN SERIOUSLY.
One day I started to have a lot of pain in my adbomen (I am male). Went to the clinic called CHAS (patients beware they are one of the clinics giving out Covid 19 shots, the management of them are a total clusterfuck). The doctor asks me a few questions, never examined me, said I had gas. Later I went to the hospital ER. I had an intestinal blockage and had to be admitted. Hopefully you can get your shots and care elsewhere.
It's not that my doctors have done nothing, it's just that they keep getting the same tests done, with the same results, and they've basically given up on trying to help me find a diagnosis. I basically take medicine for RA but have tested negative for Lupus, RA, and Lyme. They don't care as long as the symptoms are treated. This is frustrating for me... Keep going to new specialists and same thing keeps happening. It's been 4 years and I still don't know what's wrong exactly.
I had gall stones for a year and a half before they were removed. In the past couple months before removal I was going into the ER minimum twice a week because I was in intense pain and unable to eat. I was pumped with pain meds and iv fluids and sent home. I was considered a frequent visitor so they didn't look for anything else. Fast forward to 2 1/2 months after gall bladder removal. I woke up in the hospital and I need to use a wheelchair now. I ended up with wernicke's encephalopathy which is typically seen in 3rd world countries were people don't get enough nutrients. The condition is caused by a vitamin B12 deficiency
For TWENTY YEARS I had back pain in the same area. A deep grinding pain. Finally convinced my VA dr to take some xrays. They took 2. 1 head on, like all the others, showed "an anomaly". The one from the side showed I had no disc between those 2 vertebrae, and my spine was twisting and slipping apart! They recommended physical therapy. Fortunately, my Medicare dr sent me to an ortho dr who took 1 look and said we're scheduling surgery NOW so you won't be paralyzed within 6 months. A 4 hour spine fusion, weeks of recovery, and the pain is gone. Except now another area of my spine is gone. But I have the best dr, ready for round 2 of fixing my degenerative disc disease!
I’ve had an issue for like 15 years with my throat - just horrible, scratchy tonsils, and usually just the right one swells (which is a cancer symptom). Every single time I’ve talked to a doctor about it, they just briefly look and will be like “huh, it looks fine now” and dismiss it. It was happening like twice a month for a while, but nobody seems to care. Guess I’ll die. 🤷♂️
Was it an Ear, Nose & Throat (ENT) doctor? Tell them to remove your tonsils!
Load More Replies...When I was in college I tripped over a loose piece on a desk. It was one of those types seats that has a desk you pull up and attach to the arm. The lecture hall was full of seats with desks that were loose and hanging in the aisle at ankle level. I tripped on one, heard the most horrific crunch in my knee, and that was it I couldn't even stand to walk out of the room. My professor had to carry me out. The doctor told me to just avoid bending the knee for a week and I'd be fine. No MRI, no X-ray, no checks for damage. Fast forward a few years, and my knee still hurts all the time and now I have early onset arthritis from the cartilage damage. My new doctor can't do anything except prescribe PT exercises because the injury is too old to respond but I'm also too young for my insurance to cover the extensive treatment I would need now that I've waited so long.
Not about me but my daughter. A week or so after she was born the pediatrician told us two different times she had a diaper rash. It wasn’t improving and it got worse. I just felt like something wasn’t right. I took her to the ER and it turned out she had thrush. We both received antibiotics in the hospital after she was born and they said it was from that. I switched to a new pediatrician after that. And she is wonderful.
I also had a complete hysterectomy. If they don't take the ovaries...both...it won't stop the problem.
Oooos, sorry, that was meant for further down.
Load More Replies...During our 1st (and only pregnancy) my wife finds a lump. Brings it up to the doctor and the nurse practitioner. Swollen milk duct. For the next 4 visits the same response with NP going so far as to deride for continuing to bring it up. After the birth, my wife decided to have it checked out. Stage 3a Grade 3 breast cancer. The lessons are this: 1) You own your own healthcare. In the end, the doctor can go home and be mistaken. You will go home and potentially suffer life ending consequences. 2) If what they are saying doesn't make sense, keep looking. 3) Get a visit report after every doctor visit. Even if you have to go back. We went got these and they did not jive with what she was being told. It's your life. And doctors, no matter how well meaning, are human.
Why am I not surprised all but one of these were women. And the man had it chalked up to his weight. Docs don't believe women and it's literally killing us.
Went to pick raspberries with kids, had a very painful eye the next day.Went to two doctors, both said I have an allergy, drops prescribed.Wasn't getting any better, went to a third GP.She examined my eye under the magnifying glass ,found a little raspberry hair embeded in my eyelid.Removed it, no more issues
Sometimes doctors make me wonder if they ever went to med school! I twisted my ankle and fell really bad, went to my GP and asked to be sent to a specialist and she ASKED ME to which specialist should she send me to?! Geee, I was think to the dentist maybe or an gynecologist....
I've had multiple stories that fit this thread, the most recent is; My GI referred me to a infusion Dr for my chronic Crohn's disease. The infusion doctor asked me if I wanted to try a biometric of the original medication that my GI prescribed. I told him if the GI said it was ok then I would. At next appointment he said everything was approved and started me on something. I got a little sick that day. Next infusion, I got sick during that one and the dr and 3 nurses were watching me like a hawk and being really weird (even telling me where to sit,which was in their line of site). When I got home I got deathly ill like I had been through multiple strong rounds of chemo. I was throwing up uncontrollably, sweating but chills, fever of 105.2, couldn't feel the left side of my face and left ear,eye,and nostril leaking and swollen, etc. I was so sick I couldn't even get up to go to the ER. Found out my GI never approved whatever they have me and I still don't know what it was. Chart says the med the Dr prescribed originally, insurance paperwork said a form of chemo. When I called the Dr that administered it all they cared about was me coming in for blood work "for results in their chart" and said I legally had to come do it lol. Afterwards I've been told they were probably either testing (I call experimenting lol) the medication on me or were getting kickbacks from insurances or pharma company.
Correction, biologic not biometric. (Dumb spell check)
Load More Replies...Yep, I've been down this road. I had respiratory issues for five years no one could figure out. They gradually got worse. Then I'd also get headaches and dizziness. They got so bad that I collapsed while out in public and went to emergency where they ran all kinds of tests including a CT scan. The Dr came in and said "The tests don't show anything wrong at all! Well, it does show your brain is sticking out the back of your head a little, but that wouldn't cause any problems." I went home and Googled it. I have Chiara malformation syndrome which can cause - guess what - headaches, dizziness, and respiratory issues. There's something like 40 recognized symptoms and I had all of them. Two brain surgeries later and I'm so glad I didn't just take that doc at his word.
I might get downvoted but can I just say that all these are horrible of course! There are bad professionals in every job though and during this time it's better to trust the scientists and listen to them! Conspiracy theories are everywhere and these threads might harm the trust to the doctors and "feed" the conspiracies even further! Just my opinion during this time! Hope everyone is safe and gets proper health care!!
Doctors are NOT all the same. They are all humans. They all have "social inadequacies." All my doctors, up until now, have been Osteopaths. They knew me as a person. If I went in with a problem they considered me as a person NOT as a "disease or a problem" on two legs. I never had an issue with any of them "misdiagnosing." Now I have an "MD." She is lovely person BUT SHE DOESN'T LISTEN TO ME. She knows NOTHING about me personally, what kind of work I do or don't do and can do. She knows nothing about my sleep habits or my exercise or anything. She runs tests. My cholesterol is high. It has ALWAYS been high. She sent me to a cardiologist, also an MD. He said "probably genetic, nothing we can really do, but let's do a calcium test" which, he said, would give us an idea of my threat level. They did. It is an MRI of your heart and arteries. Good is 1-5% "blockage." Mine was .095%. My GP gets the results and says, "we gotta get your cholesterol down." Sigh.
you know DO and MD have the same training? at one time they were different, but for about 30 years it is the same training. There is no difference between the two other than the accreditation agency for their school, not for years. That is just the doctors you dealt with. Many MD's get to know their patients and listen and some Osteopaths are not caring like people mechanics. It is those you are dealing with, not the degree they have
Load More Replies...Doctors are not omniscient. They make the calls based on their training and experience. This is why there are general physicians and specialists. Doctors make mistakes, that is part of being human. In a few of these the Doctors were unprofessional, but that is a different aspect.
The problem isnt not knowing the disease. The problem is not caring and not treating your patients.
Load More Replies...Did you know that a pharmacist can refuse to fill a woman’s birth control because it’s against their religion? Did you know that some health insurance doesn’t cover birth control but they cover viagra?
Load More Replies...I was brushed off as a hypochondriac. It took me 11 years, but I got a diagnosis. It's a rare genetic disorder.
Load More Replies...This is the stupidest thing I've read on here. As a patient it is not on us to convince you, the 'professional,' that we are not a scammer just because of a previous experience you had that has absolutely no connection with why I'm there. If you are pissed and suspicious of every single patient going into your practice before you even talk with them you are in the wrong profession!
Load More Replies...I find that people most often decide to nitpick grammar and spelling when they have nothing of benefit to add to the discussion. How about you go think of some actual, useful opinions rather than picking on the eloquence and spelling of random stories on a bloody internet blog? This is not an English test, this isn't an official work-related email, spelling doesn't count as long as you're still getting your meaning across.
Load More Replies...I've only got a degree as a Registered Nurse but even I would have recognized at least half of these symptoms for what they were immediately -- would have thought doctor would ask for tests for the rest that I wouldn't have recognized. In my experience it doesn't actually take as much intelligence to become a doctor as it does having money or connections. They do have to have a degree of work ethic to get through school, but again, being a doctor does not mean you're necessarily smart at all. A huge chunk of nursing work seemed to be keeping an eye on what the doctors were doing -- and, to be fair, what other nurses were doing, because of course dumb and crazy people can manage to become nurses too.
NEVER SAY ONLY AS AN RN! My mom held her RN for 45 years and was the best diagnostician I ever encountered, including my own medical doctors an dmy own medical school profs.
Load More Replies...I had an enormous blood clot block two third of the blood flow to my intestines for at least 1.5 years. I got diagnosed with gastritis again and again, and despite passing out being a regular thing, pain after eating, and a history of abdominal clots i got no help. I went back again even though it had only been 5 days since I had begged the emergency dept to make the pain stop, I just had a feeling I had to go there, now. My operations began that day, seven in total spread over several weeks, half my small intestines gone, lungs damaged badly from embolism, complete sepsis infecting liver and kidneys and other organs: they kept me open for a while until my final operation, so they could wash my organs every day. If it hadn't been left til the last minute I wouldn't have almost died, and if I hadn't trusted my instincts that day going back even though I knew they would not want to admit me, I wouldn't be here. I don't remember much after arriving at the emergency dept that's when it sta
*started. I still trust doctors btw but I make sure I advocate for myself and make sure I'm not brushed aside again.
Load More Replies...Anybody else find it concerning that this neglect is happening mostly to women ?
There is big problem of sexism in medicine. Womens pain is considered less serious and often called anxiety. Our bodies are less known because all traiditional books and research are from male bodies. And women only diaeases like pcos or endometriosis are almost always unknown or ignored by doctors.
Load More Replies...My story isn’t so bad compared to these but here it goes. Just a few weeks ago my son was coming to me crying and complaining his eye was burning and right in front of my eyes I noticed his eye going red, his eyelids closing about half way and a lot of fluid running down his face. I took him to the hospital, first visit was given some eye drops in case it was early stages of conjunctivitis. After a few days there was no improvement. I took him to the optometrist and they said they can see a white speck and to go back to the hospital. This time round, even after telling the Dr about what the optometrist saw, he was trying to convince me it was just allergies. Even when I was adamant it wasn’t. I had to raise my voice before he even considered any other alternatives, he did an annoyed sigh and then checked my sons eye using a dye. Well what do you know, my son had something embedded into his cornea. It was so small they couldn’t tell what it was but an eye specialist did manage to get it out.
My 14 year old son had a small fall, and complained of immediate back pain and leg 'fuzziness'. Went to the doctor several times, was told to rest and gentle stretching etc. Third visit said 'it may be a slipped disc', we'll get you some physio (no physio happened). Eventually after several months we were finally referred to a paediatrician - who took one look at his back (first time anyone had actually 'looked' at his back), and said 'his back shouldn't look like that' and sent us for an urgent MRI. Turns out my son had 'broken' his lower vertebrae in half and the whole spine had slipped forward into the Pelvis (Grade 4+ Spondylolisthesis). This was also crushing the nerves to his legs which were by now almost completely numb. He had to have major spinal decompression and fusion surgery aged 15. Thankfully he's doing great now, but will have life-long back problems and restrictions. MRI-604f62...63db8.jpeg
I'm so sorry about what happened, but i'm happy he's doing better!
Load More Replies...PLEASE READ. I have an MD. I chose nto to practice. I do volunteer patient information and advocacy, for the patients. IF THE DOCTOR'S FIRST RESPONSE SEEMS ODD, GO TO A SECOND DOCTOR, THEN A THIRD, THEN A FOURTH AND DO NOT TELL THEM WHAT OTHER DOCTORS SAID. That forces them to start over, and not rely on an idiot's notes. That is how I was taught. If you need my credentials, I can say I have co-authored in research on patient-centered medicine, and that's the sum of it. TAKE THE POWER. FIRE THE DOCTORS. DEMAND REFERRALS. In the age of Google/Dr. Oz, many docs think they're running into "armchair docs" and it's costing lives. Peace out.
Yea. That's the problem I had. I found a new doctor and she took my diagnosis from the old one. I was like uhhhh, the reason I switched doctors was to get a second opinion.
Load More Replies...I don't understand how a doctor benefits from not doing everything they can do diagnose/treat a patient? Is it laziness? Are they too busy to focus on something they think is trivial?
From what I've seen, it seems to be a funding/understaffing issue coupled with ridiculous caseloads. I don't think they mean to let people slip through cracks, it's just a crappy system in many places :(
Load More Replies...My doctor determined that I had the autoimmune disease vasculitis and claimed that she wanted to help me start getting better. She never referred me to a rheumatologist and refused to focus on my supposed vasculitis during any of my other appointments. She even said that I didn't have eczema because black people can't have it. A dermatologist later confirmed that I have eczema. If this lady had been a good doctor, then she would have caught the spinal stenosis that I got diagnosed with a couple of weeks ago.
Some ignoramus in the comments is complaining about people's spelling and grammar- this sort of attitude contributes to denying these people healthcare! How can you be so cruel!
My shoulder was injured. Doctors said I'll be fine in a month. I wasn't. Then "let's give it a few more weeks". Didn't work. I was in constant pain, unable to properly sleep. I kept going to the doctors every few weeks/months for pain trying to find a cause. They didn't see the problem with my shoulder, and prescribed over-the-counter painkillers. After two years I was in so much pain, I couldn't hold my a cup, and my shoulder was always in a sling. I finally got a consult with a surgeon, who diagnosed me in 5 minutes. Apparently, my shoulder was torn and partially DISLOCATED for 2 YEARS. I had a surgery within a month and got fixed.
A common story. If you are not better from an injury within 6-8 weeks, demand a surgical consult. That lesson is for everyone, btw, b/c we forget we can FIRE THE DOCTORS. :-)
Load More Replies...I went to ER after being up all night with major chills alternating with sweats. Like full body shaking, under 7 blankets chills and in the worst pain of my life. Went to work and they sent me to ER. I had a history of endometriosis, so they told me that is all it was despite me telling them this felt much different. They left me in stirrups for over 4 hrs in excruciating pain and shaking. Gave me a shot of morphine and said to go home. My husband came up and told the doc something was wrong. So now the doc will look further because my husband said something is wrong with MY body despite me crying it out to them. The problem? I had appendicitis requiring emergency surgery and turns out I also had a blood clot in my lung when they went to surgery and could've died during surgery but most definitely would have died had thy sent me home. Women are not heard in the medical field. I am also an RN. Turns out blood clot was from an autoimmune disorder I was later diagnosed with.
Im sorry to be so forward but would you be comfortable sharing the name of the autoimmune disorder? I only ask as I have an as yet undiagnosed blood clotting problem in my arteries and veins, but I totally get it if that's something you don't feel like sharing :) I'm sorry you weren't heard, the fact that you are an RN and yet still dismissed is appalling
Load More Replies...For me it wasn't doctors. It was my parents. I hit the pavement hard after my 2 big dogs chased a squirrel while I was walking them. As soon as I managed to pick myself up, I knew something was wrong. Anyone who has ever broken a bone knows there's a specific kind of pain involved. I limped home, put the dogs back in their pen and told my parents there was something very wrong. They were too busy being pissed I took too long to walk the dogs and now we were late to wherever. I then proceeded to walk on a broken hip for over a month. I was in constant pain, late for every class and just generally miserable. Mom finally took me to a doc. I ended up in the orthopedic surgery unit on my back in traction. I now have 3 screws in my hip.
I had really heavy periods with lots of blood, pain, dizziness etc. I used to faint from how bad they were. My doctor told me that "I needed to relax" and refused to even send me to the gyn. Ten years and nine doctors after I got diagnosed with endometriosis. I had textbook symptoms but nobody took me seriously for a decade. Now I am so ill that I cannot work and doing basic housechores brings me a lot of pain. I have developed other problems since then like nafld or cfs. I dont have a life anymore thanks to lousy doctors.
It's okay. Breathe. I had textbook and iddn't get diagnosed till my forties. I can't eat, stand, move, and I've all but thrown up my own liver at this point ----- but "just wait till menopause".... Gentlest healing hugs.
Load More Replies...If any of these incidents took place in the USA, you wonder about the bills.
All you can do is try to negotiate them and offer to pay them $10 or $20 a month. Then you have the problem of so many tiny payments that you can’t afford anything else.
Load More Replies...This is crazy because of all these posts this is the only one I can relate to. Ok I was around 4yrs old when it started. Passing out randomly, occasional hearing and vision loss, severe headaches to the point I tried to shoot myself in the head at 5yrs old but I didn't know guns had to be loaded to shoot. The pain was truly unbearable. When to at least 10 hospitals regularly from age 4 till i was around 6 or 7. Every doctor either said it was me being a whiny kid or others saying maybe it's his diet(bs) and oh lol the nearly 50 times DHS was called on my parents because everyone assumed I was being abused. Finally Finally around age 8 we went to a university hospital(by referral only back then) and I had SEVERE ENCEPHALITIS! LIKE REALLY SEVERE. Doctor was f*****g floored that nobody caught it and that I was even alive. Nearly 5 years of begging random adults to kill me and constant DHS visits I finally got diagnosed and put on medication to help me. I was 8 and after the first week of meds the pain was gone. Just gone. I cried. I cried for days. I was so happy and little and the only way to express my overwhelming joy was crying. I stopped needing the meds around 12 or 13 but I definitely remember hugging the doctor during the follow-up exam and I refused to let go of him. He was my literal savior.
Additionally I tried jumping off the house a couple times like skyscrapers in the movies. Turns out a 10ft drop don't kill u. Just really hurts. Along with running headfirst into walls. In hindsight I thank God for that flimsy 80s wood patter paneling.
Load More Replies...My youngest son, at 13 looking like maybe 8 years old. Not growing, no signs of puberty, extreemly overweight, hardly eating and always throwing up. Every doctor telling me he is secetly eating junkfood and just a bit behind. After 2 years of this finally a doctor orders a bloodtest! Autoimmuun disease
My daughter had constant diarrhea or constipation from the time she was born until she was 8. By the time she was 7 it had gotten so bad that she was in constant pain and also vomiting up to 10 times a day. She looked skeletal. Doctors told us take laxatives, take gas tablets, change diet, keep food diary, but never anything diagnostic. Finally found someone who listened and did a barium test. She has a condition where her stomach can’t hold food and was shunting it undigested into her intestines. Which causes vomiting, constipation, and freakingly horrific pain. She takes 1.5 teaspoons of a medicine a day now, which forces her stomach to hold her food until it’s digested. She’s gained 21 pounds in 13 months. 8 years of pain for want of a teaspoon and a half of medicine.
Thankfully mine wasn't so serious but I had a recurring pain and lump in my groin, my GP diagnosed inguinal hernia and referred me to a surgeon. Surgeon did a check and "couldn't find a hernia", said it's not really common for a woman to get inguinal hernias and refused to operate, told me it must be fluid build up or something cos I work out a lot and might have injured something. I went to another surgeon who immediately located the hernia and not only did he find one on the side of the lump but on the other side as well where I didn't have pain or lump, needed an operation and 2 meshes in my groin to repair the hernias.
I have a couple...I live in Ontario Canada, so getting tests shouldnt be an inconvenience (you would think) I went to the hospital a couple of times complaining about major back pain, they kept blaming it on a pulled muscle and put me on major back muscle relaxants. I went back a couple days later (because my feces was turning white) and they said it must be an interaction with the medicine or something I ate (TURNING WHITE!) so I said, no, you need to take blood work...to "appease" me they said fine, they took the blood work and said they would call me if it was anything. 30 minutes later they called me (good thing I had time on my phone since it was pay-as-you-go) and they said that I needed to come back to the hospital right away. My liver was shutting down, I had pancreatitis, and I needed emergency gallbladder surgery Fast forward a year later. I am again in major back pain so I go to a different hospital (because I had moved) and they said that my white blood cell count was
elevated. They stated that I had a kidney infection, antibiotics, sent me on my way. The next day I was at work, fell to the ground in pain, drove home (30 minutes away) and my father took me up to the hospital. They stated that I didnt give the antibiotics enough time to work and prescribed me oxycodone to go with it. The next day I was in a lot of pain, took the oxycodone because I had no other choice, and they didnt work...so my dad picked me up off the floor, drove me back to the hospital where they made me sit in emerge waiting room for 6 hours in pain. They FINALLY come get me, turns out that i had a gall stone after having my gallbladder out that the OTHER hospital had missed and yet again my liver was shutting down and I had pancreatitis.
Load More Replies...What bothers me A LOT is that the great majority are women. There was like 1 or 2 men, and that just ticks me off. seriously, take the other side seriously too, would you?
After having my second child. went from a completely healthy young woman to over 20 ER visits in six months. I started having seizures, constant nausea, joint pains, arthritis, head and body aches, dizziness and confusion. I was put through every test imaginable, my heart started to fail in front of my children and family. I even had multiple internal biopsies, liver, kineys, intentions, stomach, etc. . They checked for everything, I was convinced I was going to die. After at least two dozen doctors, it took ONE to make the difference. At this point I felt crazy, there where no answers. The doctor ran all the test she could, mind you I have been through at least 10 CAT scans at least. Within days she asked my husband and I to come in. Turns out I had late stage lime disease, now I am on a slow but steady recovery. The thing is, please do not ever give up on your health. Trust your instinct, know that you are not crazy or irrational. Keep going back, keep trying. Because I did my kids still have a mom.
Glad they were finally able to catch it. I hope you have a long and happy life with your kids and family. Hope you recover completely.
Load More Replies...I had chronic appendicitis. it took three ER trips to get proper treatment. The first ER brushed it off as metabolic acidosis, and pumped me so full of fluids I had to go back the next day to make sure I didn't have a kidney infection. The second ER insisted it was gallstones but they had just passed by the time they got me the ultrasound. I consulted with a surgeon and he said there's no way that happened, but I could come back if I was still have the issue six months later and they'd do more test. Third and final ER was the ticket. The doctor leading my treatment said there was a slight elevation in my urine workup that gave her pause, so she trusted her instincts and ordered me a CT. We find out not only is my appendix nearly triple its normal size, it was also located in the wrong spot, which is why my pain was always centered in my abdomen and not off to one side. An overnight of intense antibiotics to bring down the swelling and surgery the next day and I've been pain free since.
This is why so many people turn to alternative therapies, even knowing they're unlikely to work, at least those practitioners pretend to listen and care. Also, a good herbalist will tell you when regular medical care would be better and often can even recommend a good GP or specialist.
Also, there are many universities offering education in herbalism. even Bachler's and Master's degrees, and may be able to refer you to an herbalist within driving time of your area. Not just someone who read an article on Pinterest or in a magazine and think they are now qualified.
Load More Replies...I complained of hip pain for two solid years and she did nothing. Said it was probably bursitis. I kept saying it was progressing and my hip keeps giving out and still nothing. I finally call and say I want to be sent for an x-ray and they insist I have to come in 1st and she sees me and sends me for the x-ray. Turns out I need surgery as quickly as they can get me scheduled b/c my hip was almost completely broken down from severe arthritis. I was in a wheelchair by the time my surgery day came. 10 weeks out of surgery and doing much better. Trying to find a new doc but there's no female docs in my area accepting new patients.
In my experience, if a doctor cannot diagnose you immediately, then they won't bother. It makes me laugh when I watch hospital dramas, knowing that all those doctors going to great lengths to find a diagnosis just doesn't happen in real life.
Boring one: Got Ibuprofen from the dentist. It didn't work against the pain, I threw up in the railroad, kept the second pill inside, violently oppressed my innerd's intent to throw up again (now already in the town my university is in), still, the pain is killing me ... so I went back to the station, took an expensive train home, taxi, to the dentists's again, got in right when he was to leave, now enduring a pain I could'nt imagine, in my kidneys, and ask for an alternative pain relief. I didn't even ask for, nor want, any opioides or so ... well, I would have taken everything ... but one thing - more Ibuprofen. He made me a new prescription - Ibuprofen again, doubled the dose of what I cannot take and what already failed. Idiot. Now, two dentists later, I have a good one who will never attempt to make my look forward to spring, kidney's season, again, but actually listens.
My sister had severe stomach pains for a while, so eventually my mom took her to the hospital. They said she was just dehydrated, and sent her home. Next week, same thing, even after my sister was more hydrated. TOOK THEM LIKE 8 FÛCKING WEEKS TO FIGURE OUT SHE HAD APPENDICITIS. But we got really lucky because in most situations the appendix would have burst, making it waaaayyyy more dangerous, but in my sisters case, for some reason it never burst and just got like rock-solid for some reason. But yea she eventually got her appendix out. It was annoying as hell though.
I had to stop reading partway through the intro paragraph because I started feeling so anxious over my own experiences. My heart goes out to everyone who has experienced the hurt and devastation that comes from having health concerns, symptoms, fears etc ignored, dismissed or minimized by healthcare workers and/or loved ones. Having your health related reality dismissed or not taken seriously is confusing and heartbreaking in ways I cannot fully express right now. TRUST YOURSELF AND YOUR EXPERIENCES! GOOD DOCTORS ARE OUT THERE. DONT GIVE UP SEARCHING. YOU ARE WORTH IT. YOU DESERVE TO BE HEARD AND TO HAVE YOUR HEALTH CONCERNS TAKEN SERIOUSLY.
One day I started to have a lot of pain in my adbomen (I am male). Went to the clinic called CHAS (patients beware they are one of the clinics giving out Covid 19 shots, the management of them are a total clusterfuck). The doctor asks me a few questions, never examined me, said I had gas. Later I went to the hospital ER. I had an intestinal blockage and had to be admitted. Hopefully you can get your shots and care elsewhere.
It's not that my doctors have done nothing, it's just that they keep getting the same tests done, with the same results, and they've basically given up on trying to help me find a diagnosis. I basically take medicine for RA but have tested negative for Lupus, RA, and Lyme. They don't care as long as the symptoms are treated. This is frustrating for me... Keep going to new specialists and same thing keeps happening. It's been 4 years and I still don't know what's wrong exactly.
I had gall stones for a year and a half before they were removed. In the past couple months before removal I was going into the ER minimum twice a week because I was in intense pain and unable to eat. I was pumped with pain meds and iv fluids and sent home. I was considered a frequent visitor so they didn't look for anything else. Fast forward to 2 1/2 months after gall bladder removal. I woke up in the hospital and I need to use a wheelchair now. I ended up with wernicke's encephalopathy which is typically seen in 3rd world countries were people don't get enough nutrients. The condition is caused by a vitamin B12 deficiency
For TWENTY YEARS I had back pain in the same area. A deep grinding pain. Finally convinced my VA dr to take some xrays. They took 2. 1 head on, like all the others, showed "an anomaly". The one from the side showed I had no disc between those 2 vertebrae, and my spine was twisting and slipping apart! They recommended physical therapy. Fortunately, my Medicare dr sent me to an ortho dr who took 1 look and said we're scheduling surgery NOW so you won't be paralyzed within 6 months. A 4 hour spine fusion, weeks of recovery, and the pain is gone. Except now another area of my spine is gone. But I have the best dr, ready for round 2 of fixing my degenerative disc disease!
I’ve had an issue for like 15 years with my throat - just horrible, scratchy tonsils, and usually just the right one swells (which is a cancer symptom). Every single time I’ve talked to a doctor about it, they just briefly look and will be like “huh, it looks fine now” and dismiss it. It was happening like twice a month for a while, but nobody seems to care. Guess I’ll die. 🤷♂️
Was it an Ear, Nose & Throat (ENT) doctor? Tell them to remove your tonsils!
Load More Replies...When I was in college I tripped over a loose piece on a desk. It was one of those types seats that has a desk you pull up and attach to the arm. The lecture hall was full of seats with desks that were loose and hanging in the aisle at ankle level. I tripped on one, heard the most horrific crunch in my knee, and that was it I couldn't even stand to walk out of the room. My professor had to carry me out. The doctor told me to just avoid bending the knee for a week and I'd be fine. No MRI, no X-ray, no checks for damage. Fast forward a few years, and my knee still hurts all the time and now I have early onset arthritis from the cartilage damage. My new doctor can't do anything except prescribe PT exercises because the injury is too old to respond but I'm also too young for my insurance to cover the extensive treatment I would need now that I've waited so long.
Not about me but my daughter. A week or so after she was born the pediatrician told us two different times she had a diaper rash. It wasn’t improving and it got worse. I just felt like something wasn’t right. I took her to the ER and it turned out she had thrush. We both received antibiotics in the hospital after she was born and they said it was from that. I switched to a new pediatrician after that. And she is wonderful.
I also had a complete hysterectomy. If they don't take the ovaries...both...it won't stop the problem.
Oooos, sorry, that was meant for further down.
Load More Replies...During our 1st (and only pregnancy) my wife finds a lump. Brings it up to the doctor and the nurse practitioner. Swollen milk duct. For the next 4 visits the same response with NP going so far as to deride for continuing to bring it up. After the birth, my wife decided to have it checked out. Stage 3a Grade 3 breast cancer. The lessons are this: 1) You own your own healthcare. In the end, the doctor can go home and be mistaken. You will go home and potentially suffer life ending consequences. 2) If what they are saying doesn't make sense, keep looking. 3) Get a visit report after every doctor visit. Even if you have to go back. We went got these and they did not jive with what she was being told. It's your life. And doctors, no matter how well meaning, are human.
Why am I not surprised all but one of these were women. And the man had it chalked up to his weight. Docs don't believe women and it's literally killing us.
Went to pick raspberries with kids, had a very painful eye the next day.Went to two doctors, both said I have an allergy, drops prescribed.Wasn't getting any better, went to a third GP.She examined my eye under the magnifying glass ,found a little raspberry hair embeded in my eyelid.Removed it, no more issues
Sometimes doctors make me wonder if they ever went to med school! I twisted my ankle and fell really bad, went to my GP and asked to be sent to a specialist and she ASKED ME to which specialist should she send me to?! Geee, I was think to the dentist maybe or an gynecologist....
I've had multiple stories that fit this thread, the most recent is; My GI referred me to a infusion Dr for my chronic Crohn's disease. The infusion doctor asked me if I wanted to try a biometric of the original medication that my GI prescribed. I told him if the GI said it was ok then I would. At next appointment he said everything was approved and started me on something. I got a little sick that day. Next infusion, I got sick during that one and the dr and 3 nurses were watching me like a hawk and being really weird (even telling me where to sit,which was in their line of site). When I got home I got deathly ill like I had been through multiple strong rounds of chemo. I was throwing up uncontrollably, sweating but chills, fever of 105.2, couldn't feel the left side of my face and left ear,eye,and nostril leaking and swollen, etc. I was so sick I couldn't even get up to go to the ER. Found out my GI never approved whatever they have me and I still don't know what it was. Chart says the med the Dr prescribed originally, insurance paperwork said a form of chemo. When I called the Dr that administered it all they cared about was me coming in for blood work "for results in their chart" and said I legally had to come do it lol. Afterwards I've been told they were probably either testing (I call experimenting lol) the medication on me or were getting kickbacks from insurances or pharma company.
Correction, biologic not biometric. (Dumb spell check)
Load More Replies...Yep, I've been down this road. I had respiratory issues for five years no one could figure out. They gradually got worse. Then I'd also get headaches and dizziness. They got so bad that I collapsed while out in public and went to emergency where they ran all kinds of tests including a CT scan. The Dr came in and said "The tests don't show anything wrong at all! Well, it does show your brain is sticking out the back of your head a little, but that wouldn't cause any problems." I went home and Googled it. I have Chiara malformation syndrome which can cause - guess what - headaches, dizziness, and respiratory issues. There's something like 40 recognized symptoms and I had all of them. Two brain surgeries later and I'm so glad I didn't just take that doc at his word.
I might get downvoted but can I just say that all these are horrible of course! There are bad professionals in every job though and during this time it's better to trust the scientists and listen to them! Conspiracy theories are everywhere and these threads might harm the trust to the doctors and "feed" the conspiracies even further! Just my opinion during this time! Hope everyone is safe and gets proper health care!!
Doctors are NOT all the same. They are all humans. They all have "social inadequacies." All my doctors, up until now, have been Osteopaths. They knew me as a person. If I went in with a problem they considered me as a person NOT as a "disease or a problem" on two legs. I never had an issue with any of them "misdiagnosing." Now I have an "MD." She is lovely person BUT SHE DOESN'T LISTEN TO ME. She knows NOTHING about me personally, what kind of work I do or don't do and can do. She knows nothing about my sleep habits or my exercise or anything. She runs tests. My cholesterol is high. It has ALWAYS been high. She sent me to a cardiologist, also an MD. He said "probably genetic, nothing we can really do, but let's do a calcium test" which, he said, would give us an idea of my threat level. They did. It is an MRI of your heart and arteries. Good is 1-5% "blockage." Mine was .095%. My GP gets the results and says, "we gotta get your cholesterol down." Sigh.
you know DO and MD have the same training? at one time they were different, but for about 30 years it is the same training. There is no difference between the two other than the accreditation agency for their school, not for years. That is just the doctors you dealt with. Many MD's get to know their patients and listen and some Osteopaths are not caring like people mechanics. It is those you are dealing with, not the degree they have
Load More Replies...Doctors are not omniscient. They make the calls based on their training and experience. This is why there are general physicians and specialists. Doctors make mistakes, that is part of being human. In a few of these the Doctors were unprofessional, but that is a different aspect.
The problem isnt not knowing the disease. The problem is not caring and not treating your patients.
Load More Replies...Did you know that a pharmacist can refuse to fill a woman’s birth control because it’s against their religion? Did you know that some health insurance doesn’t cover birth control but they cover viagra?
Load More Replies...I was brushed off as a hypochondriac. It took me 11 years, but I got a diagnosis. It's a rare genetic disorder.
Load More Replies...This is the stupidest thing I've read on here. As a patient it is not on us to convince you, the 'professional,' that we are not a scammer just because of a previous experience you had that has absolutely no connection with why I'm there. If you are pissed and suspicious of every single patient going into your practice before you even talk with them you are in the wrong profession!
Load More Replies...I find that people most often decide to nitpick grammar and spelling when they have nothing of benefit to add to the discussion. How about you go think of some actual, useful opinions rather than picking on the eloquence and spelling of random stories on a bloody internet blog? This is not an English test, this isn't an official work-related email, spelling doesn't count as long as you're still getting your meaning across.
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