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Winta Seiko

Community Member

Winta Seiko

Community Member

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1 posts

4 comments

43 upvotes

31 points

I have Ehlers Danlos Syndrome, i enjoy photography and long drives with the roof down :)
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Winta Seiko • upvoted 37 items 7 years ago

Woman Posts Photo Of Absolute Worst Passenger To Be Seated Next To, And It Goes Viral

Why begin your comment with "woman"? That is extremely condescending. And we don't know what happened afterward. She might have actually done something about it. And no, she was not "bitching" about it, she was laughing about it.

I Bet You Haven't Heard Of Ehlers Danlos Syndrome (Eds)

Woman Posts Photo Of Absolute Worst Passenger To Be Seated Next To, And It Goes Viral

Show All 37 Upvotes

Winta Seiko • submitted a new post 7 years ago

I Bet You Haven't Heard Of Ehlers Danlos Syndrome (Eds)

Winta Seiko • commented on 2 posts 7 years ago

I Bet You Haven't Heard Of Ehlers Danlos Syndrome (Eds)

I read those numbers with the new criteria? Ill look into it again though, thanks. Always gotta keep reading, always new info :)

I Bet You Haven't Heard Of Ehlers Danlos Syndrome (Eds)

I have classical, maybe the info ive seen has had more of a hEDS standpoint, im not sure. I do think youre right about memory loss, while common with EDS its not directly (as far as i know) related to the connective tissue, perhaps more of a symptom of a symptom, pain/attention issues. Anyways thanks for the input, i cant really edit the post. Maybe i can but im new to bored panda and dont know how.

Winta Seiko • submitted a new post 7 years ago

I Bet You Haven't Heard Of Ehlers Danlos Syndrome (Eds)

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Winta Seiko • commented on 4 posts 7 years ago

I Bet You Haven't Heard Of Ehlers Danlos Syndrome (Eds)

I read those numbers with the new criteria? Ill look into it again though, thanks. Always gotta keep reading, always new info :)

I Bet You Haven't Heard Of Ehlers Danlos Syndrome (Eds)

Some places can and im glad it's simple for you but the world isnt like that everywhere. Many of us in lots of different countries have to pay thousands for that test out of our own pockets and even travel to other countries.

I Bet You Haven't Heard Of Ehlers Danlos Syndrome (Eds)

Update: 1 in around 2,500 is DIAGNOSED with EDS. 90+ percent of EDSers dont know they have it, around 1 in 100 people worldwide has EDS.

Winta Seiko • upvoted 20 items 7 years ago

Woman Posts Photo Of Absolute Worst Passenger To Be Seated Next To, And It Goes Viral

I Bet You Haven't Heard Of Ehlers Danlos Syndrome (Eds)

No Toronto'nian, we don't do skin biopsies in Canada for hEDS.

I Bet You Haven't Heard Of Ehlers Danlos Syndrome (Eds)

Translation: I dug a hole too deep to dig myself out of, but I don't want to walk away and be left looking like a fool. Sorry "doctor" you can't unring that bell.

I Bet You Haven't Heard Of Ehlers Danlos Syndrome (Eds)

Go f**k yourself.

I Bet You Haven't Heard Of Ehlers Danlos Syndrome (Eds)

Ugh. And you're Canadian. Please don't ever set foot in the EDS clinic opening in Ontario. Ever.

I Bet You Haven't Heard Of Ehlers Danlos Syndrome (Eds)

As a responsible physician you might want to read that edition since it is the Ehlers danlos society official classification criteria for the next year or two and no test kits are advised. -_-

I Bet You Haven't Heard Of Ehlers Danlos Syndrome (Eds)

Raising awareness isn't selflish

I Bet You Haven't Heard Of Ehlers Danlos Syndrome (Eds)

"We first start out with a skin biopsy. ALL Ehlers danlos mutaions show deficiency in collagen production. that is a screening test." 1?

I Bet You Haven't Heard Of Ehlers Danlos Syndrome (Eds)

I figured you seemed to need a beginners guide <3

I Bet You Haven't Heard Of Ehlers Danlos Syndrome (Eds)

Irrelevant. Impact factor is not relevant if the study quality is good. I mean lancet published Wakefield......soooo

I Bet You Haven't Heard Of Ehlers Danlos Syndrome (Eds)

Since when is it wrong to also support our fellow EDSers and their projects? Ur full of ignorance, assumptions and judgement. Go to sleep.

I Bet You Haven't Heard Of Ehlers Danlos Syndrome (Eds)

The comment about an eds place in australia.... do tell where that is as I live in australia and have been told to move YES MOVE to London no less as NO ONE treats eds in australia.

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