Get Premium
Dark mode theme is available exclusively for premium users. Learn more about the benefits of subscribing.
Dark Mode 
No fees, cancel anytime 
Health issues are basically never pleasant, since many symptoms are shared and it can be pretty hard to understand (or obtain!) solid test results without the help of a doctor. This is, after all, why most people just see medical professionals whenever they feel something is off.
Someone asked “Doctors, what were the wildest self-diagnoses a patient was actually right about?” and people shared their examples. Just remember, it’s still always best to see a doctor first. So get comfortable as you scroll through, upvote your favorites and be sure to share your own experiences below.
This post may include affiliate links.
#1
Not a doctor, but my aunt and uncle had a Border Collie that would bury his nose in my uncle's back when he was sitting on the couch or recliner. He would walk up, sniff and keep sniffing until my uncle would shoo him away. A bit later he would come back sniff again and just stare at my uncle.
A few weeks later my aunt was watching one of the local news channels and they featured a dog that could smell Parkinson's and she jokingly told my uncle about it. He mentioned their dog constantly sniffing one spot and one spot only on his back so he went to a high school friend who was a doctor in dermatology. He said it didn't look right and did a biopsy on it. Sure enough, he had skin cancer but they caught it early and all he ended up with was a scar on his back.
#2
I'm not a doctor, but this is what happened when my son self-diagnosed correctly.
Three years ago he developed a terrible earache and went to urgent care, where they told him he had an ear infection and gave him an antibiotic.
The pain intensified over the next day or so, so he returned and was told he should make an appointment with an ENT, but because it was the weekend, no ENT offices were open, so he had to wait until Monday.
In the meantime, his ear started draining and he saw what looked like spores in the fluid, which would indicate a fungal infection. (He's a naturalist and knows what spores look like.)
The pain grew so intense that he ended up going to the ER. He told the doctor who examined him that he had seen spores in the drainage from his ear and suspected that he had a fungal infection. He later heard the doctor talking to a nurse in the hallway, laughing and saying, "He thinks he saw *spores.*" The doctor prescribed another antibiotic and a steroid.
The next day he flew home to see us for Thanksgiving. I don't know how he managed the flight, because as soon as he got here, he curled up on the floor, howling in pain. I immediately called ENT offices all over town, but most were closed for Thanksgiving week or said they could not see him. Finally one scheduler took pity on him and said she would move things around to get him in.
A PA examined him and confirmed that it was a fungal infection. She told him that the steroid he had been prescribed by the ER doctor was the same agent used in the laboratory to *culture* fungal infections. His infection had started to enter the eardrum and from there could have spread to his brain and killed him. She gave him a prescription that cleared up the infection very quickly.
The wrong diagnoses at urgent care and the ER cost him over $1,500 out of pocket and several days of excruciating pain. The ENT's office did not take his insurance but charged him only $250 for the correct diagnosis.
#3
Not a doctor, but in junior high I had a little cough that just wouldn’t go away. My grandmother was CONVINCED it was whooping cough. I felt totally fine it was just an annoying cough. She made me go or the doctor and told the doctor that she thought I had whooping cough. The doctor informed her that it hadn’t been in our area in over 10 years so she doubted that was the case. My grandma forced her to test me for it anyway. Turned out I was positive and considered patient 0. The whole school basically ended up getting it and we had to shut down for 2 weeks until it went away.
Delta Dawn 1 week ago
It’s a distinctive sounding cough. Once you hear it you’ll recognize it forever after.
#4
I knew my partner had leukemia about a week before I could convince him to go to the doctor. He was bleeding and bruising really easily and had petechiae. I wanted to go to urgent care where I knew the CBC was done quickly onsite, but he instead wanted to wait to go to his primary.
I took him to his primary and had a bag packed for the hospital in the trunk. The doctor told him it was likely a B-12 deficiency but that he'd do bloodwork to put my mind at ease anyway. I asked if the CBC was done onsite or not, and he said it was sent out. I asked if he planned to rush the CBC. He got very angry and said, "there is nothing the CBC could show that would change my treatment plan." Then he told my partner he needed to stop me from googling.
We got a call that night from the lab that his WBCs were dangerously high and platelets were dangerously low and I had to immediately take him to the ER. I did, and he was diagnosed with acute leukemia.
#5
Patient here, half way though my cancer treatment tell them it's back.
No one but mom listened to me.
After two months of non stop telling them they did a scan.
Turns out yes I had cancer again and look it was getting close to being terminal.
The student doctor learned to listen that day.
FoxEcoLimaIndiaCharlieIndiAlfa 6 days ago
Why was only a student doctor assigned to your case? That's some BS and you need to speak up for yourself and demand better treatment, it's your right.
#6
Patient here. I was right about having a pituitary microadenoma causing Cushing’s disease. I asked multiple doctors to help me with various symptoms, including a neurologist, and it was missed for years. Finally a wonderful endocrinologist agreed to test my cortisol and it was sky high. 18 months out of surgery and I’ve lost 110 lbs, no longer diabetic, blood pressure is great, no more kidney stones (I had 8), hair has grown back, glaucoma is gone, etc. Most doctors just wanted to diagnose obesity instead of seeing it as a symptom of something else.
#7
Patient here. Told my family GP (who I’d seen since I was a kid, and who worked with and saw both my parents as patients for years) that I thought I had reactive hypoglycemia.
He scoffed. “You don’t have that. Why would you think you have that?”
I told him my symptoms. He was doubtful, but told the nurse to get me a Coke and made me chug it. Sent me to roam around the hospital for a little bit, then get bloodwork and come back.
I came back, and his first words were “This is so aggravating.”
“Does…that mean I have it?”
“YES THAT MEANS YOU HAVE IT.”.
Chelsea Bates 1 week ago
I had a similar thing happen to me. I told my cardiologist I thought I had POTS (Postural orthostatic tachycardia syndrome). She's said no I don't think you do, what are your symptoms. I told her my symptoms. She said that's not POTS but we can sent you to a specialist to do a tilt test just make you feel better. I did the tilt test. Guess what I have POTS
#8
When I was pregnant, I was hospitalized overnight due to one of my routine labs being abnormal. Along with high blood pressure, my liver enzymes were extremely high but everything else came back normal. I spent the night googling my labs and symptoms and asked my nurse if it could be HELLP Syndrome, which is a very rare form of preeclampsia that can cause your liver to bleed and can kill both you and your baby if let go for too long. The only cure/treatment is to deliver. She literally laughed at me and said there was no way I had it, because I would’ve been in more pain.
2 weeks later I had an emergency induction due to HELLP Syndrome. Thankfully we are both okay, but I will never get over her being so flippant about something that easily could’ve killed us.
Lila Allen 6 days ago
My sister almost died from HELLP. Despite her severe pain her OB kept insisting it was normal pregnancy pain. Until she went into labor and the labs revealed her liver was at failure point. Ladies right side pain during pregnancy INSIST on liver function labs. HELLP has no other symptoms.
#9
I work as a medical lab tech. We had a patient who came in insisting that her neighbor was poisoning her. Everyone dismissed her assuming she has some kind of paranoid psychosis. She remained in the ER on a psych eval. I ran all the standard labs on her and they were normal but this patient would not budge. She was admitted to psych on a hold. At this point, one of the hospitalist decided ‘why not’ and ordered labs to test for several heavy metals and ethylene glycol. Her ethylene glycol level was 32. THIRTY TWO.
Idk if she was legit being poisoned by her neighbor or if it was self induced, but damn, that patient taught me a very important lesson that day.
RedMarbles 6 days ago
Must be psychological if we can't see it with standard tests because a standard tests reveal every possible physical ailment. Maddening
#10
Patient.
Found a lump in my neck. Saw doctor #1. She said allergies. Sent me home with antibiotics.
Found second lump in neck. Saw doctor #2. Allergies. Don’t stress. All bloodwork is fine. Different antibiotics.
Antibiotics didn’t help. Saw doctor #3. He was a little more suspicious but because I was a young 19yo he said I was fine and to try a different antibiotic.
Went onto WebMD that night…. Few days later saw doctor #4. Said I know this is cancer. Please do more tests.
Sure as s**t. Stage 3 papillary and follicular thyroid cancer. Had major neck surgery 3 weeks later where they removed my thyroid, 2 parathyroids and 24 cancerous lymph nodes from my neck and chest. Have a 9 inch scar up to my ear.
14 years cancer free since October 6th.
Meaghan Stewart 1 week ago
“Oh young people don’t get sick like that.” So… what are children’s hospitals for?
#11
One of my dearest friends from middle school was suffering from absolutely devastating medical issues. She went from bright and thriving in university to having to drop out before she graduated because her health bottomed out. She lost her job that paid her a fantastic amount... basically her entire life fell apart.
She was telling me about the new weird thing happening with her: some strange anemia that was found to be the result of abnormally low ferritin in her blood, which is what enables your red blood cells to carry iron. That was when something clicked in my brain: horrible digestive issues, peculiar anemia, chronic infections in her spleen that required a splenectomy, would sunburn to a blistering point in less than a half-hour, a diagnosed "allergy" to sulfa d***s, horrible reactions to carbamazepine, retinol gave her a suppurating skin rash.
I'm a premed dropout and one of the first classes I took on my path to premed was an undergrad course in rare conditions and diseases. And one of the ones we discussed in our inherited disorders segment of class was porphyria. There's an easy way to tell if someone has porphyria: have them pee into a clear plastic or glass cup and expose it to direct sunlight. In a period of hours to days, the urine of people with porphyria will turn from clear or yellow to a wine red or wine purple. So I asked her if she trusted me enough to do something weird, told her to get a clear plastic disposable cup from her kitchen, pee in it, and put it in her windowsill where nobody could see it. And if anything about it changed, come tell me.
Approximately four hours later, she called me on the phone screaming that her "p**s turned f*****g purple-red like a goddamn vampire" and I told her she needed to go to the doctor and get tested for porphyria.
2 weeks later she tagged me on Facebook calling me "Lesbian Doctor House" because she was diagnosed with congenital erythropoietic porphyria!
EDIT: For everyone saying I "stole" this from "Scrubs" - I didn't even know "Scrubs" had a porphyria episode so I looked it up and it came out a full year *after* this happened :) Also watching "Scrubs" and giving someone a Dx doesn't cost you $100,000 that you end up having to pay back for 20 years 😭.
Steve Robert 6 days ago
BP. Stop censoring the word D R U G S! If it wasn't for d***s prescribed by a doctor, a lot of us would be dead Pandas!
#12
I’m a patient. I had a super painful skin infection on my face and neck that my dermatologist insisted was just an eczema flare up. She prescribed topical steroids. They help in the short term, but I continued having painful rashes on my face. ETA: I asked if it could be a fungal rash, but the derm said she was sure it was eczema. Unfortunately, steroids weaken your immune system, thin your skin, and facilitate spreading of any infection.
A few months later, my hands and fingernails get really painful. Life was hard because I was in pain when I tried to do normal things like write, type, open things, etc. Eventually, I started getting bleeding blisters on my hands and my actual nails turned yellow. I see the dermatologist because at this point I realize topical antifungals give me some relief, but I’d need oral antifungals to treat the actual nails.
The dermatologist swore this was eczema dishydrosis. I asked for a culture to be taken, and she took a swab (NOT A NAIL CLIPPING which is needed to diagnose fungal infections of the nails). So the diagnostic test of course came back negative. She prescribed steroids again, but I was hesitant to use them because at this point, I did not trust my dermatologist one bit.
I see my PCP and tell him what’s up. He agrees to try oral terbinafine, and it f*****g worked. My nails fell out and grew back in, and the infection cleared up. The rashes on my face cleared up too. I was on the antifungal for 7 months. I had a follow up with the dermatologist and showed her how the antifungals actually worked and to show her SHE WAS WRONG.
Delta Dawn 1 week ago
That doesn’t sound like eczema dishydrosis at all. Your dermatologist was a nitwit.
LaserBrain 6 days ago (edited)
Nails turning yellow is a good indicator of a fungal infection. Best treatment is povidine applied on the nails. Usually you wouldn't need to take anything orally because unlike typical topical antifungals, iodine permeates through the nail into the nailbed. You still have to let the nail grow out though, it can take weeks or months.
Mark Kelly 6 days ago (edited)
I would actually report that. I can't imagine how much things will get worse now with implementing DEI medical schools. Here in Canada there's a new medical school and they say that a GPA doesn't even matter to be admitted.
#13
Not a doctor, and I don’t play one on TV but nearly became a doctor half a lifetime ago.
I diagnosed my husband’s brain tumor, leading to emergency surgery.
A month in and out of the ER - personality change, couldn’t stay awake, diagnosed with a “B12 deficiency”, “dehydration”, frequent vomiting, vision looked “weird” but he could never explain it (turns out his peripheral vision was gone), and a “swollen optic nerve - probably just high BP” from ophthalmology. After a weekend where I could barely wake him up, he went back to the ER where he waited four hours in the waiting room. I asked him if anyone had done a CT or MRI of his brain, just throwing c**p at the wall to see if anything stuck, and I assumed they had - they had not. Told him to insist on a CT, because I had a wild sneaking suspicion.
Two hours after being called back he was in an ambulance on his way to a different hospital with a neuro ICU to get scheduled for emergency brain surgery. Massive tumor with dangerous obstructive hydrocephalus.
#14
Woman in her 40s came in and told me she was having seizures.
I asked how she knew and she said her right hand would periodically stiffen. There was no loss of consciousness or other symptoms more associated with classic seizures, but I ordered tests anyway.
Turns out she had been having multiple focal seizures.
#15
Had a patient who came into the ED with vague mild abdominal pain whose friend recently died of colon cancer. She was convinced she must have it too. Told her cancer wasn't contagious like that, but ordered a CT scan because she was so insistent in order to reassure her. Low and behold, she had a huge colon mass. Very bizarre case.
#16
EM/ICU doc here with over 10yrs of experience.
While it's not quite a diagnosis, experience has taught me to take very seriously when a patient states he's about to die, even if he appears in a stable/controlled condition.
Patients who have a life-threatening condition usually have a premonition about their imminent decompensation, which is usually preceded by very subtle signs of worsening that may be confounded with pretty much anything that happens on a resuscitation room or on the back of an ambulance.
I've had patients who appeared to be in a completely stable condition, with acute conditions where cardiac arrest was not foreseeable (example: motorcycle accident with single limb injury), who briefly mentioned they think they are about to die before suddenly entering in cardiac arrest due to a malignant arrhythmia.
It's believed that patients may perceive a sudden drop of blood pressure and/or the usual release and spike of adrenaline and other catecholamines as "imminent death", but the reason why this happens is not clear. Some we are able to return, others we lose, or "recover" them to a state where death would be better.
RedMarbles 1 week ago
Patients can probably perceive a lot of things in their own bodies that an observing doctor cannot. I hope the medical profession gets better at accepting that. It's not meant to be a challenge to the doctor's education or intelligence when someone insists they have a problem the doctor can't see and it would be great if egos stopped affecting the quality of so many lives. Part of the problem now in the US is that clearly the bean counters have the doctors on a schedule so tight that it's hurting health outcomes. But I guess something something the economy and protecting businesses from harm or whatever.
#17
Not a doctor, but a patient.
I got mono at 16. It didn’t leave. I was getting recurrences twice a year where my lymph nodes would swell and I would get sick just like the first time, my blood tests showing glaring red positives for mono markers.
I got my tonsils out in my 20’s and the mono seemed to subside.
Two years later I got all the same symptoms. Swollen lymph nodes, fatigue, all the rest. I went to the urgent care. The PA took one look at the bumps under my arms and prescribed me antibiotic cream for ingrown hair. I told him about the mono - he rolled his eyes and told me they were infected ingrown hairs. I insisted on a blood test, even if I had to pay out of pocket.
Blood tests came back and not only was I positive for mono, the markers were 19 TIMES the normal numbers for a positive case.
This thread made me remember that story. Haven’t thought about it in a while.
Delta Dawn 1 week ago (edited)
Mono is in the same family of viruses as herpes, HPV and chicken pox/shingles. It can stay dormant in your body and recur years later. If it keeps coming back, have a thorough check-up because something is suppressing your immune system.
#18
I’m a nurse, but just had a patient who came in for a colonoscopy due to constipation and pain with bowel movements. He told me prior to the test he felt like there was something “catching” on the left side of his abdomen when he pooped and was like “maybe I have a big polyp there or something.” Sure enough, he ended up having a 2.5 cm polyp that we removed from that exact area. I’ll never get to find out if that catching sensation ever went away for him, but I thought it was interesting that he was right.
#19
Patient here.
My story is just... A long and dumb story.
I kept getting migraines more and more often. I started getting nose bleeds and blacking out at the gym. Then one day after the gym the migraine never stopped, so I went to my doctor, who gave me a Toradol shot. That didn't work, so he sent me to the ER.
ER: Its sinusitis go buy a humidifier (I did)
The migraine didn't go away, and I could hear my heartbeat too, so I made an appointment with an ENT. They ordered an MRI - and when they saw the results told me to see a neuro ASAP. They couldn't help me see one, couldn't write a referral or anything. But I needed one as soon as humanly possible.
So I called my GP. They sent referrals to every neuro in my area. I called 13 offices, made 13 appointments, and got put on 13 wait lists. I saw a neuro 2 days later. (then called the other 12 back to cancel).
Neuro was like, the MRI shows signs you might have too much cerebral spinal fluid in your brain, but MRIs don't actually see csf, so all we can see is the side effects, thinning of the bone from the pressure wearing away at it. Your pituitary gland is flattened, etc. We need to do an MRV and lumbar puncture to see what's actually happening with the cerebral spinal fluid.
So we do that, and the pressure in my head is 40 when it should be 5-15. Cool.
She puts me on meds to lower my csf production. OK.
The pain does not change. She doesn't know why.
So, this neuro, because I was just trying to see ANY NEURO was a sleep specialist. I decided to change to a headache specialist for more specialized care.
He changes the types of meds I'm on, but the pain basically is still agony.
I ask him 'hey, so, I read birth control can trigger this. Should I take my IUD out?'
He's like 'no. You should leave it in. It's stabilizing your hormones so your periods don't make things worse.'
I listen to him for a few months, then say f**k it and have it removed. The pain dropped significantly within three days of removal.
Then I'm like, wtf. My ability to think clearly is not great, but I pull up my MRI and MRV reports and start reading them and doing research on what it all means.
Transverse sinus stenosis. A cerebral spinal fluid vein was collapsed inside my head.
So I went to my neuro and was like 'hey, isn't this important? Shouldn't we have to fix this?'
Neuro: no. Ignore that.
So then I went to see a neuro ophthalmologist.
He was like : your eyes are fine so your brain is fine. What your feeling is migraine. The meds are working. Go back to neuro.
I was like, wtf.
So I went to a DIFFERENT neuro.
Me: 'I want a stent.'
Neuro :??? (looks up things on computer) oh. You do have a stenosis. I'm not really a vein doctor. You need a stroke specialist. Let me refer you.
Stroke specialist: MRVs suck at showing you how bad a stenosis is. You need a neurosurgeon to go in there and take a look at it.
Neurosurgeon : yeah. Let's go take a look.
So, the neurosurgeon did an angiogram (exploratory surgery) and saw that the pressure in my head was STILL 40 after two years on the highest dosage of pressure lowering medication, and I qualified for a stent to fix the vein.
I was right. The pile of my previous doctors were wrong. I had to keep changing doctors and believe that the vein was the issues, and all my doctors were idiots until I finally got help.
There's more dumb stuff that happened over last 5 years, but that's the major stuff.
#20
Me: Dr I have a Kidney stone
DR: no blood in urine, can't see anything on ultrasound
3 days later
Me: My stone is causing me pain and cold sweating
DR: Let's talk about an x-ray of your spine
DR: There is a slight misalignment. Could be trapped nurve, Referred to Spinal surgeon.
2 days later
Me: taking a p**s, wtf was that
Me: Dr, here is the 4mm stone.
#21
Patient here.
I had a work accident. Opened the roll up door on my delivery truck and the load of tires fell hitting my shoulder and neck.
Couple days later I started having fainting spells and my arm became swollen and discolored. Lots of neck and shoulder pain.
Lots of doctors. Lots of tests. Lots of specialists. No diagnosis.
I came up with the solution. I tore the anterior scalene muscle. As it healed it compressed the subclavian artery and nerve that go to the arm.
Key to this explaining the swollen arm was a quirk of anatomy. The artery was compressed between where the carotid and veterbral arteries branched off. The carotid fed my brain but normal flow to the vertebral was cut off.
So my body did a weird thing. It reversed the blood flow pulling blood out of the Circle of Willis, a loop of blood vessels in the brain. That was the only blood feeding my arm for several months.
A doppler ultrasound confirmed Thoracic Outlet Syndrome with a Subclavian Steal retrograde blood flow in the vertebral artery.
#22
A cousin from Sweden went on a trip through Africa. His aunt (my MIL) is a doctor in South Africa. She told him to call her if he has any symptoms when he goes back home because she knows that European doctors struggle with tropical diseases.
He goes home, gets sick, calls her, she diagnoses bilharzia and tells him to repeat the treatment after two weeks - the standard single course schedule never worked for her patients. So off he goes to these Swedish doctors who have never seen bilharzia and they don’t really believe him but since he was recently traveling they decided to test after all. It’s bilharzia.
And of course - they wouldn’t repeat the treatment because their books specify a single course of medication. And of course- it returns. Eventually they prescribe two courses, as my MIL said in the beginning. He was fine after that.
Foxglove🇮🇪 6 days ago (edited)
My husband got sick in Somalia and was medevacced home. Him: I think it's dengue fever. Country's top tropical disease doctor: don't be ridiculous, there's no dengue in Baidoa. It was dengue.
#23
My husband was bitten by a spider. We live in Australia so I knew the signs to watch for. He showed none of them but I wasn’t happy about a couple of comments he made (“I don’t like this funny metallic taste in my mouth”, “I don’t feel too good”) so I took him to the ER despite everyone saying he would be fine and that I was over reacting - I shouldn’t burden an already strained system. We got there and I went to the desk and told them that something was wrong, my husband had been bitten by a spider and … right then he collapsed. He wouldn’t have survived if I didn’t listen to my gut and hadn’t taken him, because a 5 minute delay waiting for the ambulance would have meant it was too late. .
#24
Patient, but I ran cross country in college. My senior year my thigh aches. I told everyone something was wrong with my bone while being told it was a muscle issue. After being treated for every muscle issue in the book, I demanded an x-ray. I had a stress fracture more than halfway through my femur.
#25
Had a patient come into the ED, and told me he had epiglottitis (an uncommon infection of the epiglottis, part of your throat) when I went to see him. I asked how he knew - he’d had it before but was also a 90 year old retired ED doctor. He was right.
#26
Patient here. I’ve always known I have “something” wrong with my heart. I was never taken seriously as a child and a teen by anyone and the PCPs I saw never did anything more than listen to it for a few seconds and tell me I was fine. I just learned what I could and couldn’t do in my daily life to keep it from interfering and over time sort of left it at the back of my mind.
After a series of unrelated medical events over the course of a couple of years, I was aware of my heart getting worse. After much pressure and persistence I got a referral to a cardiologist who told me to track my vitals on my Apple Watch for a few months and come back to him with the results, as he was off on leave until then. I was a bit bummed. It had taken a lot to get a referral to him and I was still being brushed off. Then COVID hit and everything pretty much shut down in my country for 2 years.
During that time the only notable event was being hospitalised for kidney issues after severe gastro that left me so dehydrated I was hallucinating. Just before discharge I had a doc come around to do final obs before releasing me. It was a teaching hospital, and he had a gaggle of students with him. He listened to my heart and got excited and then proceeded to use me to teach said students what an S3 heartbeat sounds like, and how to find it. None of his talk was directed to me, but I listened and I learned.
I got myself the best portable ECG Holtier type monitor I could afford and I wore it to take ambulatory EGCs… And then I learned to interpret them. Obviously not to a medical standard, but enough to be able to note the areas of concern, what abnormalities in the waves I’d noted, my bp and what I’d been doing at the time, physical symptoms, etc.
Then I went back to my cardiologist and told him I had WPW Syndrome, and it was getting worse, and he needed to do something before it killed me. He scoffed at me, but I’d been expecting that and handed him pages and pages of relevant ECG recordings and asked him to at least prove me wrong. He looked over the ECGs and my notes, told me he knew medical students who weren’t capable of this (which scares me tbh!), ordered his own tests targeted on the info I’d gathered, and not too much later begrudgingly confirmed my diagnosis of WPW. One catheter ablation later, my life is much improved.
Stupidest thing is, if I’d been taken seriously at any point prior it could have been managed with medication, and not done permanent, irreversible damage to my heart. I shouldn’t have ever had to learn to read ECGs, nor spend hours on medical sites reading medical journals researching heart conditions. I’m still convinced I’m going to die of a heart attack, but at least it won’t be today, or hopefully tomorrow.
Upstaged75 1 week ago
I have WPW (Wolff-Parkinson White) Syndrome as well. They found it randomly when I was a kid. Thankfully it doesn't bother me and I'm no longer on meds for it. We talked about an ablation but it's not that severe.
#27
Patient here. Was thru hiking the Appalachian Trail and was in southern Virginia, near Roanoke. Was having a fine day until I went to pee in my motel room - straight blood. Also had been getting weird spots and sores on my legs that didn’t go above my waist or below my ankles. ER doctors (3 of them) all stated it was a tick borne illness, considering I had been hiking for a month in the woods. Rocky Mountain spotted fever probably. But I had that in college and knew it wasn’t it. I told the fourth ER doctor who came in that based on my googling I had Hennoch Schonlen Purpura, an auto immune disorder that is very rare in adults. She agreed, sent me to Virginia Tech for a biopsy and they confirmed vasculitis. Went on to get arthritic pain in my knees and severe abdominal pains. Went for an ultrasound and discovered I had underlying Autosomal Dominant Polycystic Kidney disease - that after testing, I did not inherit from my parents. Doctors began talking to me like I should be in a textbook. 7 years later I am symptom free and just taking a small dose of blood pressure meds but felt like I was on House for a few months there .
#28
Patient here (I know, I know, I'm sorry). I had been having various digestive troubles for a few weeks, but thought I was just recovering from food poisoning or at worst maybe developing something like IBS/IBD. One night while I was lying in bed with my hands on my stomach, I felt a lump. Instantly nervous, I started pacing around my house, googling symptoms. Of course webMD and various articles kept suggesting cancer, but of course it's never cancer.
Well... It was cancer. Stage IVB ovarian to be exact. Whoops.
#29
Not a doctor (apologies), but I diagnosed my husband with gall stones when his doctor, urgent care doctors, and his mother wouldn’t listen to me. The doctors thought he just had a stomach bug and his mother was convinced he had heart issues because he was experiencing chest pain. I was the only one who noticed his eyes had started turning yellow and that the chest pain wasn’t in the right area for a heart attack. The last time he went to the ER I told him to ask about gall stones, sure enough that’s what it was and they had caused so much damage he had to have his gall bladder removed. His gall bladder ended up being 0.6” inches thick when it got removed. The surgeon said it was the worst gall bladder he had ever seen and I’m pretty sure he kept it to show to his students/interns.
Foxglove🇮🇪 6 days ago
When they took out my gallbladder it wasn't a moment too soon: it was so necrotic it could have burst any time, risking sepsis.
#30
Not a doctor, but i (correctly) told my doctor that I had dengue fever. I had just returned from Puerto Rico, and had all of the symptoms, except for bleeding. The Dr dismissed my suggestion and told me that i had the flu. After a few days, he relented and had me get a blood test. And it was dengue fever!
What do you think ?
Bex 6 days ago
Mine is this: for years I was numb in my legs. It would come and go. 1st Dr says it's a pinched nerve, try a muscle relaxant. Nope. Then, try a chiropractor. Nope, didn't work either. Dr sent me to a nerve specialist who spent 30 second with me and said the problem was bc I was fat - go get weight loss surgery and you'll be fine. Had WLS. Lost 110lbs. Nope, didn't help. I started working at the National MS Society (Multiple Sclerosis). Even though I had no other problems associated w MS, I knew I had it. Took another year, plus temporarily losing the ability to hold a pen and write my name, AND temporarily going blind in one eye to get the diagnosis of MS. I may have looked at my boyfriend and said, I told you so.
Bex 6 days ago
I have 2, one for me and one for my Dad. 2 years ago, my Dad got really sick - lightheaded, fever, nauseous, fatigue, and hallucinations... Mom had been sick w a cold the week before, so he assumed he just had her cold. I get a call around midnight, and it's my Mom. She asks me to come over (I'm about 40 minutes away) to help her convince Dad to go to the ER, and help get him down the stairs and into the car if he agrees (Dad is 6'6", Mom is 5'2" lol). I go over and as soon as I saw Dad, I knew it wasn't a cold. All I could think was that it was Lyme disease. We don't live in an area that has a lot of fields or woods, and it has a very low tick-disease rate. But something told me it was that, and it was way more serious than just Lyme disease. I ended up having to scream and force my Dad to the ER (it became a battle of who's more stubborn. I won, lol). After hours in the ER and tons of tests, we find out Dad has Babeostasis (spelling?). It's a blood parasite from a tick bite. Dr's said Dad was a few hours away from passing away when we brought him in. If we waited until morning like he wanted to do, he would have died before the sun rose.
Babs McGurk 1 week ago
I went to my GP because I had a small spot on my calf that itched like crazy. He said he didn't think it was anything, but he'd do a punch biopsy just for kicks. Turns out it was melanoma. The spot was the size of a pencil eraser, and the surgeon removed a quarter sized piece from my leg. He said I had probably saved my own life by having it checked out. Fourteen year melanoma survivor here, telling everyone that itching is a sign of skin cancer I was not aware of.
AR 6 days ago
I’m almost 100% sure I have fibromyalgia though I haven’t been able to go get tested for it yet. But I had the whole body aches that are near my joints but not in my joints plus fatigue and brain fog, but I already take a SNRI (a typical d**g type to help fibro) and my PCP added a muscle relaxer (another typical d**g to help fibro), and those symptoms are mostly controlled. The aches come back if I don’t take the muscle relaxer daily, and I still have the brain fog occasionally but it’s better. Plus both my mom and her mom had it. I’ll get to a rheumatologist eventually but right now my husband is in the hospital so it’s on the back burner.
Huddo's sister 4 days ago
Similar happened to my sister. My mum and I had already been diagnosed with fibro and she had the same symptoms, but her paediatrician (she was 16/17 I think) said no, he wouldn't do the test until she was 18! So she suffered for more than 12 months longer and lo and behold, was correct about having fibromyalgia. She didn't even get any d***s to help in the meantime. I know it sounds a bit silly and is sometimes impossible, but while you are waiting for your appointment, try and get some gentle exercise. 20 minutes a day is generally advised, walking or hydrotherapy are good. Maybe you can do some laps of the hospital ward while visiting your husband. Hang in there, I wish you all the best. (Also, what muscle relaxer are you on? I have never been given any, maybe they just don't advise it where I live, but maybe I just need to ask.)
Load More Replies...
MellonCollie 6 days ago
These make me so angry because doctors and nurses so often DO NOT listen to their patients. Happened to my husband as well, twice. The first time, he was a teen and had to be sedated for an emergency appendix removal. His parents warned the surgeon of difficult esophageal intubation (caused by some sort of congenital malformation) and sure enough the doctors ff up and he's not intubated but sedated already. Not a great combination. Second time was a few years ago. He has a little bit of a swelling in the neck but painful enough to see the doctor. Het gets dismissed with some cream for a skin infection, the doc had hardly examined him. I was unhappy with this because it felt wrong. Two days later, swelling has grown quite a bit and he develops a fever. My husband never has a fever. I send him off to the emergency room with an overnight bag (I stayed home with baby & toddler). He gets dismissed again, with antibiotics. He felt so bad, I knew this was wrong. First thing in the morning..
MellonCollie 6 days ago
...he goes back to the emergency room, is seen by different doctors (nightshift had ended) and after blood tests is immediately put on an IV antibiotics drip, he was mere hours away from severe sepsis from an abscess. From his blood results, the doctors found it astounding he was still standing on his feet. He spend 10 days in hospital, had surgery to remove it and was on antibiotics for 60 days. Thanks, dismissive emergency room person.
Load More Replies... Beth Wheeler 6 days ago
For both me and my son, our Gallbladders had to come out a year after Bariatric Surgery. Mine had sludge in it. For him it was a late night ER trip when he woke up and I knew something wasn't right. He laid down on the couch and sat back up saying his chest hurt, I asked him where & it was under his ribs on the rt side and his breathing wasn't right. The ER did a chest x-ray, EKG & cardiac enzymes which were all normal. The Dr said he could order a Gallbladder Ultrasound while we were there, yrs please you will save a step and time. He had lots of stones, I called the Bariatric/GI Surgeon to get him scheduled.
BarkingSquirell 5 days ago
"Doctors share..." is the intro to the article but it's almost all "patients share." I mean, I have sympathy for everyone who goes through health scares so, please BP, be less sloppy with your content.
Bex 6 days ago
Mine is this: for years I was numb in my legs. It would come and go. 1st Dr says it's a pinched nerve, try a muscle relaxant. Nope. Then, try a chiropractor. Nope, didn't work either. Dr sent me to a nerve specialist who spent 30 second with me and said the problem was bc I was fat - go get weight loss surgery and you'll be fine. Had WLS. Lost 110lbs. Nope, didn't help. I started working at the National MS Society (Multiple Sclerosis). Even though I had no other problems associated w MS, I knew I had it. Took another year, plus temporarily losing the ability to hold a pen and write my name, AND temporarily going blind in one eye to get the diagnosis of MS. I may have looked at my boyfriend and said, I told you so.
Bex 6 days ago
I have 2, one for me and one for my Dad. 2 years ago, my Dad got really sick - lightheaded, fever, nauseous, fatigue, and hallucinations... Mom had been sick w a cold the week before, so he assumed he just had her cold. I get a call around midnight, and it's my Mom. She asks me to come over (I'm about 40 minutes away) to help her convince Dad to go to the ER, and help get him down the stairs and into the car if he agrees (Dad is 6'6", Mom is 5'2" lol). I go over and as soon as I saw Dad, I knew it wasn't a cold. All I could think was that it was Lyme disease. We don't live in an area that has a lot of fields or woods, and it has a very low tick-disease rate. But something told me it was that, and it was way more serious than just Lyme disease. I ended up having to scream and force my Dad to the ER (it became a battle of who's more stubborn. I won, lol). After hours in the ER and tons of tests, we find out Dad has Babeostasis (spelling?). It's a blood parasite from a tick bite. Dr's said Dad was a few hours away from passing away when we brought him in. If we waited until morning like he wanted to do, he would have died before the sun rose.
Babs McGurk 1 week ago
I went to my GP because I had a small spot on my calf that itched like crazy. He said he didn't think it was anything, but he'd do a punch biopsy just for kicks. Turns out it was melanoma. The spot was the size of a pencil eraser, and the surgeon removed a quarter sized piece from my leg. He said I had probably saved my own life by having it checked out. Fourteen year melanoma survivor here, telling everyone that itching is a sign of skin cancer I was not aware of.
AR 6 days ago
I’m almost 100% sure I have fibromyalgia though I haven’t been able to go get tested for it yet. But I had the whole body aches that are near my joints but not in my joints plus fatigue and brain fog, but I already take a SNRI (a typical d**g type to help fibro) and my PCP added a muscle relaxer (another typical d**g to help fibro), and those symptoms are mostly controlled. The aches come back if I don’t take the muscle relaxer daily, and I still have the brain fog occasionally but it’s better. Plus both my mom and her mom had it. I’ll get to a rheumatologist eventually but right now my husband is in the hospital so it’s on the back burner.
Huddo's sister 4 days ago
Similar happened to my sister. My mum and I had already been diagnosed with fibro and she had the same symptoms, but her paediatrician (she was 16/17 I think) said no, he wouldn't do the test until she was 18! So she suffered for more than 12 months longer and lo and behold, was correct about having fibromyalgia. She didn't even get any d***s to help in the meantime. I know it sounds a bit silly and is sometimes impossible, but while you are waiting for your appointment, try and get some gentle exercise. 20 minutes a day is generally advised, walking or hydrotherapy are good. Maybe you can do some laps of the hospital ward while visiting your husband. Hang in there, I wish you all the best. (Also, what muscle relaxer are you on? I have never been given any, maybe they just don't advise it where I live, but maybe I just need to ask.)
Load More Replies... MellonCollie 6 days ago
These make me so angry because doctors and nurses so often DO NOT listen to their patients. Happened to my husband as well, twice. The first time, he was a teen and had to be sedated for an emergency appendix removal. His parents warned the surgeon of difficult esophageal intubation (caused by some sort of congenital malformation) and sure enough the doctors ff up and he's not intubated but sedated already. Not a great combination. Second time was a few years ago. He has a little bit of a swelling in the neck but painful enough to see the doctor. Het gets dismissed with some cream for a skin infection, the doc had hardly examined him. I was unhappy with this because it felt wrong. Two days later, swelling has grown quite a bit and he develops a fever. My husband never has a fever. I send him off to the emergency room with an overnight bag (I stayed home with baby & toddler). He gets dismissed again, with antibiotics. He felt so bad, I knew this was wrong. First thing in the morning..
MellonCollie 6 days ago
...he goes back to the emergency room, is seen by different doctors (nightshift had ended) and after blood tests is immediately put on an IV antibiotics drip, he was mere hours away from severe sepsis from an abscess. From his blood results, the doctors found it astounding he was still standing on his feet. He spend 10 days in hospital, had surgery to remove it and was on antibiotics for 60 days. Thanks, dismissive emergency room person.
Load More Replies... Beth Wheeler 6 days ago
For both me and my son, our Gallbladders had to come out a year after Bariatric Surgery. Mine had sludge in it. For him it was a late night ER trip when he woke up and I knew something wasn't right. He laid down on the couch and sat back up saying his chest hurt, I asked him where & it was under his ribs on the rt side and his breathing wasn't right. The ER did a chest x-ray, EKG & cardiac enzymes which were all normal. The Dr said he could order a Gallbladder Ultrasound while we were there, yrs please you will save a step and time. He had lots of stones, I called the Bariatric/GI Surgeon to get him scheduled.
BarkingSquirell 5 days ago
"Doctors share..." is the intro to the article but it's almost all "patients share." I mean, I have sympathy for everyone who goes through health scares so, please BP, be less sloppy with your content.
You May Like 61 Most Famous Serial Killers To Send Chills Down Your Spine “Mowing Your Lawn On A Sunday”: 30 Taboo Things Other Countries Don’t Think Twice About 30 Terrifying Signs That Had No Business Being This Scary (New Pics)
Linas Simonaitis
Gabija Palšytė
Mantas Kačerauskas
Related on Bored Panda
