“Sausage Fingers”: 40 Symptoms People Realized Weren’t Just Weird Quirks
Interview With ExpertAccording to the CDC, over 20% of adults in the United States live with chronic pain. And while many try their best to ignore pain to avoid trips to the doctor or to simply accept that it’s never going away, it’s probably wise for us to listen when our bodies are trying to tell us something.
Redditors have recently been sharing about the interesting quirks they had that actually turned out to be mental or physical health issues. From being burdened with annoying headaches to believing that they could see the future, enjoy scrolling through these responses, and keep reading to find conversations with the person who started this thread and Dr. Shahina Braganza!
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Nearly every period, I would get a terrible pain in my backside, like a stabbing pain which would make me stop wherever I was. I also had a twisting back pain on the left side of my back. The doctors dismissed it as "periods are painful" and "there's a wide range of normal". Finally had an MRI in my 30s and I have Stage IV endometriosis with deep infiltrating lesions. Adhesions had stuck my bowel to my uterus and also strangled my left ureter so that my kidney couldn't drain properly and was swollen. On the mental health side, I got so used to feeling like I was a hypochondriac with a low pain threshold that, to this day, I automatically assumed I'm being melodramatic when I'm ill.
This fobbing off of women by medical professionals makes me so mad! Women have died because their complaints were not taken seriously. Misogyny still runs through the medical professions.
I tell people the ER of my local hospital actively tried to murder me when they sinply would not accept that my necrotizing bowel was not period pain (I wasn't even on my period). But I was a woman of childbearing age with pain in my lower abdomen, so BOOM it must be my period. Only my kicking up a scene that they wanted to call security for made them do a scan. Surprise, I was suddenly not suffering from period pains! Who knew ...... *eye roll* Anyway, they scolded me for waiting so long as it was acutely life-threatening. I chose not to remind them that they had wanted to kick me out only 30 minutes before.
Load More Replies...The professional gaslighting of women by doctors (female as well as male) is a disgrace.
I'm glad you said this (about female as well as male). Most responses quickly assumed the "all the doctors" meant male.
Load More Replies...This could have been written by me, except for having my MRI next week and my kidneys are ok bc everything seems to be around the bowel. Same kinds of pain, same Drs responses, same thoughts of being a weak drama queen. I was nearly crying as my partner was reading this entry to me. Been waiting 10 years for a diagnosis. Misogyny in medicine sucks.
I was in the same boat. Before being diagnosed with stage IV endo it was always “just your period” and now it’s always “just your endo”. >.< However, getting surgery has helped a lot and my quality of life has soared, I hope the same for you, hang in there!
Load More Replies...I know a woman who was FINALLY diagnosed after ten years and 4 ob/gyn. Same stage. The last doctor thought of polykystic ovarian syndrome and understood it was a hugely extended endometriosis only while doing the surgery. He wasn't qualified, though, and he addressed her to a famous surgeon that treated the worst abdominal cancers in a university hospital. The surgery lasted 7 hours. A part of her gut was removed. The Professor managed to recreate one Fallope trump and she had 2 children, which is really a miracle. Now she's 40ish and needs to take drugs to pause her hormones. This disease sucks an so do many doctors.
Took me 10 years and 10 specialists (ob/gyn, hematologist, etc.). I literally went to the Mayo Clinic because at that point, I had my period for 10 months and they had the audacity to tell me that I am "just unlucky" and refused to do anything but try an IUD. Turns out I have endometriosis (left ovary glued to my back) and adenomyosis. Shocking.
Load More Replies...My BFF made me very aware of the male privilege regarding health. As long as it is a typically feminine problem, it will be disregarded by many health professional.
My mom had endometrial cancer, for at least several years, and she was constantly misdiagnosed. She ended up having a hysterectomy, and did chemo and a couple of rounds of radiation to make sure they got it all, and she's ok now, but the hell that she had to go through to get a diagnosis was insane.
In case anyone's curious, she would go to the ER in tremendous abdominal pain, they did x-rays, would never find anything, tell her she's constipated, and send her home with some laxative. She was in horrific pain for years because her uterus has sealed shut from the tumor, and fluids were not being able to escape her body.
Load More Replies...Similar situation happened to me. I still have endo stuck to my bowels and I've lost one of my tubes. For years I was told I was just being dramatic and that some women "just have painful periods". It took going through several doctors to get taken seriously, and by that time the damage was done. I've had surgery a few times and am doing OK now, but I suffered needlessly for a long time.
And now imagine that 1 in 10 women suffer from endometriosis. I am one of them. I found out I had it after I suddenly started to bleed from my belly button. Over the course of 3 months, it became worse and I had a stabbing pain in my navel. I went to the hospital. 5 doctors looked at me, 3 of them surgeons, and they didn't have a clue what was going on. After a sonography and MRI, they still didn't know. They just wanted to remove my belly button cause "no matter what it is, it should fix the problem". I am SO glad, that I decided not to get that surgery. After 2 more months, I noticed a pattern because my symptomps got worse a certain time of the month. So I went to my gynecologist who sent me to an endometriosis specialist. I got my diagnosis 4 months later because it tooks that long to get the appointment. I am fine since I have proper medication. But 2 of my best friends suffer from stage 4 and it's not pretty....
My heart breaks for you, because I went through the same thing. Had a complete hysterectomy at 28.
“There’s a wide range of normal”, yes but this isn’t normal for me!
I could hear my eyeballs move in my head, it sounded like light sand paper. I could also hear other body noises, such as digestion and my heart bea. I was medicated for decades due to my " hallucinations." Turns out I had a little hole in my skull between my inner ear and my brain. It caused a "third window" that amplified my internal body noises. After surgery, I no longer hear my eyes move, and I'm no longer on medication.
I hate how when some doctors don't know where to look further they just turn to mental health issues. It's horrible for people actually suffering from mental health problems just as much as for those who get told "it's all in their head"- (irrespective of the fact that it actually WAS in OP's head - just physical not mental :D)
I agree, but the problem is that 99% of the time the easy answer is the right answer. Locating a tiny whole in the skull can be a costly and invasive thing to find and treat. You have to realize that those 99% of other patients would be irate to be dragged through those other steps "for nothing"... I feel like the best doctors are the ones that know about the obscure conditions and let the patient decide whether to chase those possibilities.
Load More Replies...Well that’s disturbing. I never considered the noises being muffled by my skull.
Unless the doctor has a PhD in psychology or psychiatry they are NOT qualified to make a mental health diagnosis. If they try to tell you it's 'stress' or 'all in your head' remind them of how spectacularly unqualified they are to diagnosis such issues. I was told similar things for almost three years. Turns out I had a severe Vitamin D deficiency as well as Rheumatoid Arthritis. I was going into fugue states while I was driving. Eventually, I would have been in a very serious accident that could have harmed not only myself but my children, if not killed us. It's just sheer dumb luck that those idiots don't have blood on their hands.
I (45F) have psoriatic arthritis. One of my earlier doctors didn't realize that some patients don't have obviously abnormal lab results. So her solution was to tell me that it was all in my head and a result of my depression/PTSD/emotional isolation. I looked at her and said, "How the f**k did I mentally cause my knees and ankles to break down and my hands to swell like sausages?" We had scans of my knees, ankles, and hips all showing significant arthritis, and this daffy broad thought I was just hurting because of my mood disorders. Yes, mood disorders can make pain worse, but they don't typically break down tissue...
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Constantly got yelled at by teachers for not listening and got spanked at home for it. Everyone thought I just didn't care or that I was stupid. One day, a doctor decides I need a hearing test, and it turns out there is a bunch of fluid built up in my ears, and without tubes, I'd be completely deaf.
The only person who apologized to me was my mom, and that took 15 years.
I was home schooled til I was 9, then the teacher complained to my mum that I wasn't writing things down off the blackboard like the other kids. My mother was stunned because I was a very compliant child. Eventually the teacher snapped back "well she must be blind then". And guess what, mum took me to the optician and I could read three lines with one eye, and one line with the other. Of course it didn't show up until I got in a classroom situation
My friend's daughter's vision was so bad that after she got glasses she was amazed to learn trees had leaves. Her mom felt so bad.
Load More Replies...1. Hurting your child is never, EVER the way to teach them and anyone that thinks it is can go f**k themselves. 2. Of course she didn't apologize until 15 years later. Too prideful to admit when they're wrong.
Spanking kids is illegal in many parts of the world.
Load More Replies...almost the same here without the spanking and with 20% hearing left. I was judged by my teachers,that always thought, I would making purposely fun of them. Got an A in each written vocabulary test but left a blank space on every test behind the chalkboard or dictated. My hearing was tested bad as a child before throat surgery but they missed to test it again afterwards. As soon as I became 18 I put myself to hearingtest and conditioned to a silenced world all these years I'm still struggle with the way to hear with hearingaids..
Didn't your school give hearing tests? I know I had to get one at school (along with eye test) in like 1st or second grade
Not all schools do. Some do and some don't, but they all really should do it to prevent things like these from happening
Load More Replies...My poor brother struggled terribly in school. When he was in second grade, he came home with swollen knuckles, given to him by a nun, for not being able to grasp his reading lessons. By then, my mum had started to suspect a learning disability, but our biological father refused to let him be tested. The swollen knuckles sent her over the edge, so she snuck him to a learning specialist who diagnosed dyslexia. He was given special lessons and before long, he was able to read. Today, he's an avid reader and a high school history and social studies teacher. Mum carried the guilt of letting our father bully her out of seeking help, for the rest of her life.
When my daughter was almost three, we were having her evaluated because she was having fine-motor control issues, skin sensitivity issues, and problems with her balance. The ADD was diagnosed at age 5, the Aspergers was diagnosed at age 10-11 (would have been sooner but our insurance approvals took a while). The balance issues? The home evaluator asked if we'd had her eyes checked and I hit my forehead. It hadn't occured to us to have her eyes checked yet. Turned out she definitely needed glasses. At least one of her problems was easily fixed. 23 years later, we're still working on the others (she's a work in progress).
To find out how this thread started in the first place, we reached out to Reddit user u/minbye, who was kind enough to have a chat with Bored Panda about what inspired them to start this conversation. "I myself have a few health issues that influence my day to day life, so I think about them a lot," the OP shared.
"For one, I was diagnosed with depression and anxiety three years ago. Now I’m on medication and going to therapy to work through my problems," minbye continued. "Even though I’ve been in therapy for so long, I still learn a lot of new things. And the topic of my thoughts, feelings and reactions being just symptoms, and not actually me or my 'quirks,' is a big one in my life."
As a kid I wanted to be carried everywhere (like piggyback rides, etc) for way too long. Like I was an almost 5’ tall 8 year old asking to be carried on vacation. My feet hurt after walking more than like, two blocks. My mom took me to a podiatrist to prove there was nothing wrong with me and it turns out I had severe fallen arches and plantar fasciitis and needed corrective insoles to fix my gait. She took me for ice cream after that appointment.
I agree. Most people wouldn't expect young children to have fallen arches and neediing insoles. And she did take him/her to see a specialist and then treat the problem and the child.
Load More Replies...ice cream with mom after being told something bad instantly makes stuff feel better, I a few years ago I got cancer, and as we got in the car, my mom turned to me and said "lets get icecream" I just nodded, and she tells me of this "alien ice cream please" it was alien themed and out of our way but she drove us to it let me get a huge bowl and we just sat and watched the trolley go down the street, I was just 34 (good ending kinda, Im cured of my cancer now, but my mom passed away may 22 2023}
Your mom sounds lovely. Sending lots of love. ❤️❤️❤️
Load More Replies...I had terrible pain in my hip when I was a kid. Like someone was taking a rusty knife and trying to pry the bone out like opening a clam. I limped badly because of the pain. Gym teacher didn't believe me and still forced me to do class. My parents said it was just growing pains. Finally my classroom teacher told my mum I should get xrayed. My femur was literally slipping out of place. It required two surgeries to pin it back into place. My mum let me get my ears pierced as an apology.
At least your mom took you to the doctor... some parents would have refused, not wanting to be proven wrong.
Somewhat the same, except doctor said there was nothing wrong with me when my mother asked about my feet. Never stopped having trouble to walk, got increasingly less and less mobility, can no longer stand to shower. Now as an almost 24yo I was diagnosed with muscular autoimmune disease, still under investigation to exactly which one, spending money my parents don't have in examinations.
Fill your pain flat feet and my tendons and ligaments are kinked even though I don't have an arch so I get a tear two or three times a year. Was told I wouldn't be able to walk faster than a slow walk or even run by the time I was 18. Went through three deployments with the military and currently I walk about 15 miles a day in my current job, sucks, but that's life
I was also born with severe fallen arches on both feet. I ended up having to get surgery recently in my early 30s to fix my right arch that completely collapsed and caused a tear in my tibial tendon. The surgery was so worth it for anyone considering it.
My small daughter always had breath that smelled of sweets. So yeah, I always thought- ah she's sweet inside and out! Nope, she had type 1 diabetes. I'll kick myself forever over that one.
Diabetes is really scary, someone I’m very close with had it. One day they got really pale and just passed out.
Dogs can be trained to “smell” approaching ketosis before the diabetic human can feel its effects. If the person you know does not have good control of their condition or does not know how to recognize the signs of ketosis, a medical alert dog could be an option.
Load More Replies...Please everyone be aware of the signs. - kid drinks A LOT - kid start peeing in bed again. Not little accident: flipping buckets of pee. (Think several diapers a night and they leak) - kid loses weight suddenly and FAST - kid looks tired and warm Your kid is in ketoacidosis. His pancreas has stopped working and glucose (the food of the cells) is stuck in the blood, unable to get inside cells. Kid is starving AND poisoned by this hight level of blood sugar. Get to the ER immediately. You might have hours before your kids get in a coma. Diabetes type 1 has nothing to do with eating too much sweets: it's an auto-immune disease and it will kill your child 100% of the time if untreated.
Yep, and those symptoms can start slowly and build over a few weeks or months. My kid went from a little more thirsty than normal to addicted to water over a 2-3 month period. The nighttime accidents also started, but we thought that was because he was drinking so much water right before bed. Eventually he got sick and went into DKA, that's when we took him in because we could tell something was wrong but we still had no clue it could be diabetes. Luckily the ER doc we went to knew it right away. My kid is much better now with his treatment plan. T1D never goes away though.
Load More Replies...Aww, that's sweet though. Edit: Oh... I hope past tense means that she's better. I was referring to the mother thinking her daughter was sweet inside and out.
since type 1 diabetes isnt something you can get rid of, i fear a dark ending when i see past tense.
Load More Replies...Your breath will smell like Juicy Fruit Gum when you are in diabetic ketosis.
Not everyone can smell it though. You have to have the gene to smell ketones.
Load More Replies...Me too!!! My mom thought it was my new shampoo and body wash, despite the fact that I lost 7 pounds as an already very skinny child.
This is a big warning sign for diabetes!!! Do not ignore it! You sound like a loving parent; I'm sorry the education and support wasn't available.
Was there any reason you would have thought of diabetes? Family history or some such? Did you know of ketosis? Don’t beat yourself up. I hope she’s doing okay (I’m T2, well controlled). But I recently had to deal with misplaced guilt that my roommate was feeling. He’s more of a son to me, same age as my blood son. We left the apartment and he trotted down the stairs as usual, to go smoke without my breathing it. Just like normal. I, however (60f), felll on the landing due to a rotten step, shattering and dislocating my ankle. He was all about how he shouldn’t have just gone downstairs, he should’ve stayed right in front of me so he could catch me, etc. I had to work to get him to understand that this was our normal. He’s younger and faster. There was nothing realistically that he could have done. If he’d tried, we could both have gone through the landing as he is much larger. Don’t guilt yourself. You got her helped, he called 911. No guilt.
My uncle had type 1 before he passed away. I am very adamant about getting my toddler checked, and checked for other auto immune diseases (runs in the family)
"I found out that it’s very important to understand the difference [between quirks and symptoms] in order to be successful in battling the problem," the OP continued. "So as I was trying to fall asleep, I was just reflecting on my day and thinking about this when I thought that it might be interesting to hear what others have to say about this. I honestly didn’t think I would get so many answers."
Growing up, when I got my first period at 15/16 they were extremely painful to the point I would pass out and couldn't walk properly. My dad refused to talk about periods and my mum and sister said I was exaggerating and that I was making it up so I figured it must just be me. Fast forward to today and five GPs later who didn't take it seriously, turns out I have endometriosis.
What strikes me is that both mum and sister didn't take OP seriously either. You would expect a female to sympathise with another female when it comes to these complaints. Instead, women have made men's distaste for the working of a woman's body their own. Very sad.
I don't know, could be they had easy periods. I did, but my mother was incapacitated by hers. They used to say that a male doctor is better than a female doctor who has easy periods
Load More Replies...Because endo doesn't show up on any kind of imaging it's SO hard to prove you have it. Even when all the symptoms are there!
I had cancer because of and undiagnosed endometriosi and Lost the possibility to have children.
My daughter would get pain bad enough it made her throw up. To the gyno she went and is now on patches. The improvement is amazing. I can't believe (I *wish* I couldn't believe) parents and doctors would not take their girls' pain seriously.
Girls and women complains of pain, they are exaggerating, melodramatic, seeking attention. Don’t bother looking for possible causes, they just think they are special and all women and girls experience this type of pain, just everyone but you isn’t a hypochondriac. Men and boys complain of pain, they must be in far worse shape than anyone else since they know how to take pain and their mild discomfort is women and girls extreme to the point of falling out pain Later, woman is diagnosed with life debilitating or even threatening disorders that went undiagnosed for years and sometimes decades. Meanwhile man, stubbed his toe.
That happens all the time, we all suffer for way too long before someone believes us, it's completely unfair. So sorry this happened to you
My inability to focus in school on subjects I didn’t care for, chronic lateness, poor impulse control… ADD, of course. Unfortunately, no one considered that possibility when I was young, because supposedly “only boys had that.” 😐
Mental illnesses are gender exclusive now? Wtf? Edit: Yes, I know it's not a mental illness. I just didn't know how to put it.
It's estimated that a lot of girls are missed with Autism diagnosis because girls tend to be better at masking. Hence a lot of women getting diagnosed later in life.
Load More Replies...Same, girl, same!! People are shocked that I have 2 masters degrees. When we study things that fascinate us, there’s no limit. Just wish teachers understood me better in grade school.
yeah, ADD is recognized much better these days, and just needs different strategies for success. In my field (IT) it seems most people I meet have ADD/ADHD. It's like a super power for locating new issues. The trick is completing the work on the original issue haha
Load More Replies...I struggled lifelong with ADHD symptoms that went undiagnosed because I’m a woman and always did well in school. The lack of diagnosis so totally derailed much of my life. I was treated for mental disorders I didn’t have and put on medications I didn’t need and likely made things worse from childhood through adulthood. I went off all medications at 21 (not the responsible way and I don’t recommend it) but I was sick of it. And slowly started learning how to actually care for myself. 8 years later I was finally diagnosed with ADHD and so much made sense and clicked into place. I hope as more awareness grows, less people have to follow a path like mine.
Same Diagnosed at 43 when it got so bad I was suicidal. But you know girls don't get ADHD
Load More Replies...Same here and I was finally diagnosed with ADHD at 17 after a whole childhood of being considered as a hyperfocused weird kid. Later in much older age I was confirmed as high functional Aspergers hence the ADHD was part of the bigger picture . Now I know why I was in panic if my train is delayed by 1 minute, why I have friends but I never want to meet them in social activities and a lot more things that I couldn't understsnd about me
I always had trouble at school, you know bad handwriting, bad spelling, bad at maths. Was always told that I wasn't trying or wasn't paying attention, was just lazy. I have been made to feel stupid all my life even by my parents. I now have depression and anxiety. My father had trouble reading and writing all his life. I believe that we both have dyslexia, him full dyslexia and me a milder case (undiagnosed). I know it's not the same has most on here but it made me feel the odd one out all the time
Same, growing up in the 70s/80s; kids were just “Hyper,” and our parents were told to give us less sugar and to be stricter. I probably would have gotten into a better college had my ADHD been diagnosed in HS instead of in my late 30s…
For real I hate when people call it a mental illness when it is actually a neurodivergent disorder.
Load More Replies...Rewind a little in time when the terms ADD etc didn't even exist. I have ADHD and Asperger's and got punished and corrected by everyone, trying to raise a "normal" child. Today you can add PTSD from childhood traumas to that.
My daughter's grandpa said Autism is just a boy thing, too. Weird. ADD isn't even acknowledged anymore. Not even as an older diagnosis. Not since the 90s. I tried telling my daughter's social worker and speech therapist her dad has ADD. They said "You mean ADHD". I said "No. ADD. He was diagnosed as a kid." Then they said "There is no ADD. That is defunct as a diagnosis. It's ADHD." Just like that, they unofficially rediagnosed her dad when he wasn't there, with no further assessments on him. So frustrating.
As in all things science and knowledge progress. What once was is now newly named. I grew up as a bad student. Need to study harder. Why don't you get this. Why can't you spell properly. Do math better. Study study study harder. That was my entire primary education. In college found out I had this thing called dyslexia. Its wasn't a known condition early in my life. Didn't become widely known later high school years. I wasn't diagnosed until college. Science progressing and learning.
We also asked minbye why they believe so many of us assume our health problems are actually just quirks. "We often normalize the things we live with — being scared to talk on the phone, not having the energy to get out of bed, regular migraines or even lack of appetite," they noted.
"I often see posts where people share their stories saying, 'don’t we all?' about the things that they do or feel, and learning that they are not actually a universal experience," the OP continued. "As Dostoyevsky said, 'Man grows used to everything, the scoundrel.' For that reason, I find it almost impossible to understand that something’s wrong even if it’s obvious, as long as it’s not a sudden change."
Growing up my mom's side of the family always claimed the women were special and like witches. We could see ghosts, hear their voices, etc. I have so many stories of seeing ghosts, or watching things move that shouldn't have. I hear a lot of random voices, once someone whispered in my ear "can you hear me?" When I was alone. Turns out we're all either bipolar (me, with added depression for fun!) Or schizophrenic. The ghosts are more fun though.
Currently considering the possibility that I'm bipolar now. My uncle had it and I've seen my fair share of ghosts so that's fun.
If you seriously think you have bipolar, get it checked out. The manic episodes can be very damaging to your brain and can cause it to get progressively worse :/ if it’s not really too severe, maybe just consult a doctor. I’m not a medical professional, just a psychology nerd
Load More Replies...My father, a very rational man, suddenly one day started seeing people in the house that weren't there, and having disordered borderline paranoid delusions. He for some reason did not see this sudden change as weird, but blamed others for letting these strangers in his house. Turns out that a urinary tract infection (UTI) in elderly or immunocompromised people can cause hallucinations and delusions. It was like having a waking dream, but the logic center of his brain was turned off, so he didn't recognize that all this was not normal.
I've heard and have tried to research this with no luck yet, but people who are considered schizophrenic in other countries the voices they heard are *good/fun* vs *bad/scary* here. I've also read that many countries that have people who we would consider schizophrenic, would be considered shamans and other medium types. It makes me wonder how *mental illness* is veiwed and dealt with differently around the world and the impact of the quality of life.
If you think you may have a mental illness please go to a psychiatrist so they can assess you. I was diagnosed several years ago with Bipolar Disorder but I'm pretty sure I've had it for longer. I finally got help when I basically ended up in a manic episode and had a mental breakdown. The medications don't take it all away but they have definitely helped, that's for sure.
Like my aunt. It started in the 1990s. She just started talking about aliens. About how she could see and hear them, but no one else could. She was diagnosed with schizofrenia. She's doing better now, but she had episodes where she completely lost touch with reality and had to stay at psychiatric hospital.
Added depression??? Bipolar is manic depression, depression is not added, it is half of the diagnosis.
Makes you wonder about all those women who were tortured and killed for witchcraft. Could they have been bipolar or schizophrenic?
Nope worse, just an innocent woman either young and beautiful that some idiot was jealous of because maybe her husband made a comment about her. And old ladies and spinsters that just didn’t ’fit In’ to society. I think some history books have mentioned possible ergot poising (on the ‘hunters’ side) in various witch hunts around the world also.
Load More Replies...When on meds, I started hearing hallucinations. Could hear whole sentences, clear as day
Ghosts ARE more fun, so long as you feel safe with them. If they start to feel threatening, it's time to talk to a professional <3
I thought I had just a bunch of bad habits—I could never stop rolling my eyes or making weird throat noises no matter how much I tried. Tourette’s, ladies and gentlemen. It got a lot worse once I got to college and was under more stress.
I knew a kid in the 80’s with Tourette’s. It was so overlooked and understudied that his mom went on talk shows and volunteered at events to educate people. Even with his mom’s full support and a diagnosis, he had such a hard life as a kid due to lack of understanding and kids being jerks. I hope he’s doing better now.
Years ago, I met a man with Tourette’s who was very lonely because his self-esteem was so low on account of his disorder. I thought he was wonderful. Great sense of humor, very intelligent, and fairly adventurous. He eventually moved out of the area a stronger person due to our relationship. I'm so glad I knew him.
I've seen this! I had a friend with Tourette's.. I've also had people think I was "rolling my eyes/ blinking", to be rude; I was just trying to slow my ADHD down, in order to give an appropriate response under stress... Otherwise, it all comes out! This actually helps slow your brain from emotional, and transfer to logical in some people.
Used to have a regular customer at the record store. Super cool guy, but he'd blow raspberries at us. We eventually decided he was making fun of us (really seriously great taste in music). Only found out it was tourettes when he asked my coworker out. We felt like absolute tools. I cannot imagine the frustration.
Congrats on getting a diagnosis. Now stop apologizing. You are okay just ss you are.
It wasn't until I was almost 40 that I discovered I have Tourette's. I read about it in a book. It was a true epiphany ... everything made SO much more sense! My life was changed dramatically for the better by just knowing what the hell all these weird things about me were.
"Reading the answers to the question was actually a great experience — seeing the stories of people changing their lives after finding out what’s wrong, sharing their experiences with each other and realizing they’re not the only ones," the OP shared.
"I still think about many of the answers, but the one that really stands out for me is the comment by u/lemonlemoncherry. They told about how they would always have irregular periods and didn’t think much of it. Turned out they had a brain tumor," minbye noted. "Thankfully, it was benign and shrunk with medication, so they’re fine now."
I would let all my friends feel “the ball in my boob” in high school. One day I told my mom - she immediately called the doctor. Fast forward the next month and I had surgery to remove a tumor. It ended up being benign.
Did anyone else check theirs after reading this post just in case? No? Just me? Okay...
I'm surprised none of your classmates said "hey you should get that checked out, that's not ok"
Most of the HS students that know about breast cancer probably figure nobody who's still in HS could have it.
Load More Replies...I’m glad your mom got you to the doctor and you got the surgery you needed. My mom sent me to the doctor but when she found out that they wanted to do surgery, she and my dad decided that it was too expensive because they didn’t have insurance. Many years later I got it removed. Thankfully it was benign. I spent years afraid that I had cancer and was afraid to get close to anyone because I didn’t want anyone to know.
Thank you for letting them feel it, now they know what it feels like. Glad it was benign
When I was developing I got scared because I felt hard plate-like things in my breasts. My mom took me to the doctor. He said it was normal. I know it's not the same, but it goes to show you don't always know what to look for if you've never felt it. It's probably a good, in a weird way, thing that she allowed others to feel it. So, now others have an idea what to feel.
Now you know what a breast tumor feels like. Good for a you on your outcome.
Rehearsing conversations and their potential branches before speaking to someone, being obsessed with textures and touch, *needing* to shave every hair from the neck down. Otherwise, I could feel them being moved and compressed by my clothes.. oh, and using quotes and references in 90% of my conversations. Turns out they're not 'quirks', and coupled with my 'issues,' they make me rather autistic. I wish I knew 20 years ago!
In rehearse conversations so often that I can't remember if I actually had the conversation.
That, and I'll dream lucid, vivid dreams, and sometimes can't remember if something actually happened or it was a dream.
Load More Replies...Rehearsing conversations in advance was a way to deal with my social anxiety. With medication, and anxiety tuned down from 10+ to a situationally-appropriate level, I could have "spontaneous" conversations!
I have problems with bright lights, textures, sounds, and certain voices. Apparently I have anxiety, add, and insomnia.
Rehearsing convos in the head is considered a part of being autistic??? Or is it just a possibility? I have convos in my head all the time.
Me too, I think it's just a symptom. If your nose is stuffy, you don't automatically have a cold
Load More Replies...Ah yes, as soon as the OP mentioned texture obsession, I wondered if they were autistic. I am autistic and I have grown into and out of many "quirks" in my life, but the texture obsession remains.
Same here. Teachers and docs said it was ADD for years. A LOT of unnecessary Ritalin!
I have reason to believe I'm on the spectrum based on a series of tests. I too am obsessed with textures, which means I am constantly touching things (wasn't cool during the pandemic). I've purchased items based purely on their tactile sensations. I have no body hair, but my head hair annoys the living daylights out of me. Can't stand it touching my face or neck.
The OP also says that they'll be more willing to book doctor's appointments after reading through all of the experiences on this list. "I was always quite anxious about my health, but now I can’t stop thinking about tumors and stomach problems," they told Bored Panda.
"I’m genuinely glad I posted that question," minbye added. "I learned a lot myself, and I watched people share important information with each other in the comments, so I really hope it helped someone."
Repeating words in my head since I was a child. Then one day I went to the ER and I was extremely anxious and the doctor gave me an anti-anxiety pill and I noticed that ended the repetitive thought and words.
I grew up doing this all the time. Repeating things, counting in my head. Counting everything; how many steps I took, lines on the floor, etc. I have chronic anxiety disorder but I didn't know that as a child. I also had to make sure sensations felt the same on both sides of my body. If I scratched my left arm, I had to scratch my right one to make it even. I thought for a while I had OCD, but I don't. It's anxiety.
And yet now in the US, it's IMPOSSIBLE to get either Ativan, Xanax or pain medications, so now you know you have anxiety but you can't do anything about it. SMFH
People who abuse legal life saving medication are losers. Do coke or something, leave my adhd meds alone.
Load More Replies...Wait, I do this... I have to repeat in my head "I love my family, my family will never die, my family is safe, etc" like a mantra because I feel like, otherwise, something bad will happen. When I was little, I used to do this plus counting the letters in every word I saw and dividing the letters into groups. Should I see someone?
...I actually thought this was just normal...even though it legit riles me up. It won't stop.
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I thought I could see the future. In fact have bipolar 1 with psychosis.
That’s how a genuine prophet would get diagnosed — a trope of SF (say, Bruce Willis in 12 Monkeys or Linda Hamilton in Terminator).
For years, I was treated for bipolar with a slew of anti-depressants, anti-psychotics, and mood stabilizers. I became manic, which led to psychosis. Guess what? I don't have bipolar, but those d*cks wouldn't listen to me. I have PTSD and anxiety, which, as we all know, only afflicts male soldiers.
We also were lucky enough to get in touch with Senior Emergency Physician Dr. Shahina Braganza to hear her thoughts on this topic. She shared a few odd quirks that can sometimes mean medical issues are present.
"For example, extreme flexibility or hyper mobile joints [can be] part of a connective tissue disorder (e.g. Ehlers-Danlos syndrome) or episodes of odd behavior (e.g. Temporal Lobe Epilepsy that manifests not as jerky limb movements but affects a part of the brain related to memory and emotion)," Dr. Shahina explained. "Or beige cafe au lait skin spots, which can be related to a condition called neurofibromatosis."
I didn’t like eating as a very young kid. I was underweight and anemic.
Turns out my tonsils were huuuuuge and once they got removed, I could eat!
I had the same problem. I was 9 when I got my tonsils and adenoids out. Not only could I now eat, I stayed in school instead of being sick in bed every two weeks.
I used to have strep throat frequently as a kid until my tonsils were removed. Turns out frequent bouts of strep have been linked with the OCD, which I suffer from.
Load More Replies...I had the same problem as a child all ways sick, earaches. Wouldn't eat, had my tonsils out when I was 6. My mother was just glad that I was eating that she over fed me and now I am overweight, diabetic and disabled. I am now losing weight (lost 4and a bit stones so far)
Saw a similar situation with my friend’s daughter: miserable baby that never slept, food aversions and eating issues , all sorts of anxieties and sleeping issues growing up - at 12 she finally let a doctor look at her and her tonsils were HUGE! The poor kid had been fighting her whole life to breathe and swallow. The tonsils were fixed but, by that age, a lot of the mental health stuff has stuck. She and her family keep working away at it, still. She’s a great kid, actually.
as a feeding specialist, I always tell the parents to rule out the medical, tonsils, adenoids, reflux, tongue ties, can be the root cause.
We've just done this battle with our 4yo... drinking could be a problem when she was sick (which was often) since having them out she's put on 3kg in about 6 months and barely sick where before she could loose weight between checks. She's still scared of certain foods that hurt her before they came out which were working on now too.
So, has anyone, other than me, had their tonsils grow back? My ENT said that's pretty common.
They took out my tonsils because they were too big and giving me sleep apnea. Unfortunately, it was a different time and they decided to take my adenoids too, for fun. I choke on everything and often then cough it into the back of my nose. Everything. Rice. Two inch shards of twizzler. Any body fluids that go up or down... it gets old.
I was always annoyed at the other kids my age because they were so childish. And I always got praise from my teachers for my problem solving skills and they all used to say the same thing: that I was "thinking outside the box". It was such a weird concept for me to receive praise for something that just seems like an obvious solution to a problem, and people reacted as if I was some kind of genius, I just couldn't fathom that other people would miss the details that were obvious to me. This, coupled with not picking up on social cues, hardly ever showing body language or facial expressions, monotone voice, staring a lot, more advanced vocabulary than my peers, not understanding sarcasm, analyzing jokes to death because sometimes jokes aren't logical and people found me annoying for doing this, treating plushies as if they had actual feelings, preferring to play with pets rather than other kids, reading non-fiction during the morning readings when all the other kids read like mystery books, severely disliking certain fabrics and textures, being hypersensitive to noises and light.... I'm surprised that people don't usually notice that I'm autistic.
Wait, this actually sounds like me but I’m neurotypical. I experienced most of these except for the sensitivity to cloth
Made it through an entire childhood of severe bullying being jumped on the way home from school stabbed 14 shot at and that was all before 3 deployments of the military, it wasn't until I was 33 in a developmental meeting for one of my autistic children, 4 out of five have it, that the doctor turned to me and asked when I was diagnosed. 😬
Truth be known, a lot more people are "on the spectrum" than is generally realized, IMHO. I have a touch of Asperger's, along with mild Tourette's, OCD, and ADHD. Nothing I can't handle, especially ever since I learned that I had all these things. When I told my sister, she said, "Oh, I always thought you were just weird." :)
i assign human emotions and feelings to inanimate objects, always have since i was a kid. for instance, i never leave one of something (like french fries, for example) because i don't want it to be lonely. i either eat them all or i leave at least two so it'll have a friend.
Is it still Autism if the second paragraph is missing (apart of the plushies thing)?
"These quirks can be interesting on their own, but if they are connected to a diagnosis, they can be related to other concerns," the doctor continued. "For example, people with connective tissue disorders can be prone to organ or blood vessel abnormalities. Because each human body is so wonderfully unique, there are no real trademark signs."
When I was about 13/14 I used to complain about stomach aches and sore throats A LOT. My parents thought I was faking it to stay home from school and the doctors blamed everything on anxiety/periods.
Turns out I have a hiatal hernia. My stomach acid was leaking into my throat when I was lying down at night and was starting to damage my oesophagus.
No, if you're a woman in her fifties then everything can be blamed on the menopause.
Load More Replies...*Bone sticking out from arm,* *is female* “Doc, I’m in pain.” “It’s just your period, the pain is normal.”
Ah, yes. Have 1 now from having 2 kids. People think I'm being rude bc I can't speak for almost a full minute after taking a bite of food, and then cannot finish my food. " no, Sharon. Part of my stomach is literally pushed thru my diaphragm".
Until you have the tests - either barium swallow or endoscopy - they cannot diagnose this easily so it is really difficult to be taken seriously. It also runs in families. Unless it develops into Barret's esophagus, there isn't much that can be done except medication to reduce acidity in the stomach and positioning when eating and sleeping. I had to sleep on an incline all the time to prevent the reflux from entering my esophagus and trachea (which can lead to scarring or pneumonia)
What a stupid doctor though, like when you’re in sex Ed or talking to any women have you ever heard of ‘sore throat’ even being directly related to periods 😂
Sometimes if I was really tired or jetlagged I'd wake up and for a few seconds the room would look larger than it actually was or I wouldn't recognise things that were totally familiar even know I knew they were things I'd seen before (jamais-vu, reverse Deja vu). Turns out I had epilepsy without realising for years. I later developed other types of seizures.
Um.... oh no.... I am 47 and I have had this happen to me many times in my life. The feeling like the room is bigger and expanding.... and my mother had/has epilepsy..... I guess I need to get that checked out.
Also look up "Alice in Wonderland" syndrome. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4302569/
That used to happen to me a lot before I got treatment. I would be laying in bed and suddenly feel like I was growing or shrinking. Since it didn't effect my daily life I never thought to ask a doctor about it.
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I've had that once: I was at the grocery store where I go at least three times a week, I looked down at someting and when I looked up I couldn't for the life of me remember where I was, I did not recognise anything. This lasted for about 30 seconds, when my brain shot into gear again and I recognised where I was. But those 30 seconds were scary.
Tiredness is a trigger for seizures, so is heat. Epilepsy is simply a word to describe a group of symptoms, not a specific disease. The causes of the seizures could vary or, like mine, be 'idiopathic' (doctor speak for I have no clue - sounds better tho, doesn't it?)
No lol. Epilepsy is a condition defined by chronic seizures. Multiple things can cause an illness, it's still the same thing. That's like saying depression isn't a disease because multiple things can cause it.
Load More Replies...I must check this out too. Sometimes I have this weird feeling, that my body is expanding. Also weird deja vu sensations acompanied with shortness of breath and fake memories
While it may not always be necessary to take a trip to your doctor, Dr. Shahina does believe it's important to get curious about your body. "The 'something different' may just be part of your make-up and you may otherwise feel great, or you may also notice other features or changes e.g. energy levels, tendency to bruise or bleed more easily, or change in your mood. Definitely seek professional advice if you are concerned," she explained.
I had headaches for several years. I was basically told it was nothing. Nope, baseball sized brain tumor.
keep in mind that frequent headaches doesn't automatically mean you have a brain tumor. Just make sure they aren't getting progressively worse and talk to your doctor if you feel something is wrong.
There are many things that can cause headaches. In my case it was hight intracranial pressure (literal translation, I don't recall the proper English term) it was very slow and also affecting my eyesight. I'm very grateful that my optician sent me to the hospital or I could have lost an eye or worse.
Load More Replies...I read 'basketball' sized. I was trying to figure out how that would fit ...
Dizzyness, nausea and vision changes are more common than headaches in brain tumors.
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I had really bad headaches for months, went to dr almost weekly trying to find out why and how to help. Kept getting - "Just take your acetaminophen and get more rest." Finally, spouse went with me and dr was still saying just a headache, migraine, take pills. Finally dr. looked at spouse and said maybe get scan, probably nothing but spouse will feel like have looked at everything. Scan showed huge hemorrhage, probably only a few days left to live cause brain was being squished. Had immediate surgery. Was left disabled. Only was found cause spouse went to appointment too. Very sad about that because if had been found several months earlier when I kept asking, it wouldn't have been so damaging.
Surgeon came in to do surgery on day off because it was urgent. I was in coma for days after. Surgeon told spouse that what they removed was usually only discovered / diagnosed at postmortem (if postmortem was performed).
Load More Replies...Had, literally, a headache most of my adult life. My cough-variant asthma would cause coughing fit, and I’d cry, into my late 50s. Required eye check revealed I was this close to glaucoma, which my father had. Took me most of a year to get into this Dr, but I was back in less than a month for surgery. I woke up the next day and MY HEAD DIDN’T HURT! Rarely have headaches any more. Even the Dr doesn’t know why or how that worked. I’m glad they figured it out for you, mine was some weird fluke. But I’ve had headaches; bless them that someone figured it out for you.
Needing constant naps. I was already on a stimulant for my ADHD but my body demanded that I nap for two hours just four hours after I woke up in the morning (after receiving a full ten hours). Turns out I’m narcoleptic!
A year ago the fatigue from my Rheumatoid Arthritis was so bad I was sleeping 16+ hours a day. My lovely psychiatrist read my email pleading for help and prescribed me Trazodone and my energy levels improved I'd say, by at least 70%. I still need to sleep maybe up to 12 hours on some days, but there are now many days when 6 to 8 hours is fine and I can actually think. Just wanted to share with you because I know how hellish always being tired is.
Load More Replies...Is there an opposite? Like when someone sleeps only a couple of hours but is still ok?
I have insomnia. It's absolute hell. The biggest issue I have with my mental illness symptoms. (Considering I'm a recovering addict and can't take meds that can actually address it due to relapsing. Which is probably the reason I used to begin with considering it was downers.)
O s**t! I can't sleep at all without medication. You have my deepest sympathies and I wish you the very best for your sleep to come back!!!
Load More Replies...I want to very sincerely thank you for posting this. It got me talking to my partner about my weird sleep habits. He just said "You didn't know you were narcoleptic? I figured that out two years ago." I talked to a doctor friend, and we ran down the symptoms I've experienced my whole life. I'd always thought it was just falling asleep at random times. Nope.My blackouts, daytime naps, extended periods of liminal sleep (complete with hallucinations), bouts of 14 hour sleep, sleep fighting/talking, insomnia, and EDS are right in line. The pressure off my shoulders that this is real is amazing. Turns out there's also a correlation to PCOS, which I have. Seriously. Thank you.
Before the daughter's POTS diagnosis she was sleeping 22 hours a day, because she wasn't dropping into deep sleep she was suffering from sleep deprivation
Dr. Shahina also noted that it may be useful to look for patterns or trends once you notice a quirk. "Are you more tired than you used to be? Is it getting worse? And as for the quirk itself, e.g. if it’s a lump or a skin lesion, is it changing in appearance, is it getting bigger in size, is it getting painful?" she asks. "How your quirk is behaving over a period of time is vitally useful information to share with your doctor to help them work out how concerned we need to be, what tests to conduct, and how closely to monitor the person."
My ability to exercise was suffering. Even a couple of warm up sets would make me so queasy I'd feel like I could puke. I thought it was poor sleep and diet. My urine was a little dark. I thought I wasn't drinking enough water. I'd wake up covered in sweat. Like, soaked to the point that it looked like I took a shower in my pyjamas and crawled back into bed. I thought I was just hot. Eventually I briefly passed out while walking around at a Dave and Busters with my girlfriend. An ambulance was called. They didn't see anything wrong but offered to take my to the hospital which I declined. My girlfriend *demanded* I make a Dr appointment the next day. If not she threatened to call my mom and get her to berate me too. So to make her happy I made an appointment. Dr didn't see anything out of the ordinary but ran some blood tests to be sure. The next morning, I was at work and the Dr called to tell me my RBC count was reading "3", which he assumed must have been a mistake because I shouldn't even be capable or walking with it testing that low but I should go the the ER to be sure. I told my boss what was up and he gave me the go ahead to leave and I drove myself to the ER. Told triage the result of the test, and they too said it sounded like the test was faulty and they ran their own. The test was right, and everyone was shocked that a person could be so anemic while still able to stand upright. My spleen was "cleaning" my blood of my red blood cells as it apparently thought they were faulty. It was also over 3 lbs in size (a normal spleen is roughly a quarter lb). The sweating and dark urine was caused by my kidneys failing due to the extreme anemia. My inability to exercise was due to there not being enough red blood cells to carry oxygen through my body under the increased load. The doctors I saw in the hospital told me that had I continued to ignore the symptoms I'd have likely died of a heart attack within a week or so.
As a man I will say it. This person is a most typical man ever. "oh my pee is almost black. Meh. It's fine. I don't need a doctor."
YES! My husband at the weekend "I've hurt my back from coughing" (he'd had covid in December and the cough lingered). Was in agony. Took him to GP on Monday. He had sepsis, pneumonia, pleurisy and flu. He's in intensive care and I keep kicking myself for believing that the awful pain was 'just his back'. I'm frankly terrified for him as he's so ill. I'm here to distract myself as I have too much time on my hands as I've not been allowed to visit him (until midday today)!!
Load More Replies...Oooh in hug school I dyed my finger hair black and my Dr mum realized I wasn't just pale, I was yellow. Turned out I was so anemic, had I been an adult I'd have been rushed to hospital for an emergency blood transfusion. I was something like 0.5 over the threshold for children lol
Reduced levels of red cells or hemoglobin can also indicate cancer. I was tired and attributed it all to "getting old". When checked, I had a hemoglobin half the normal so I was rushed in for tests until they found colon cancer, whereupon I was rushed into surgery. If you are "dead tired", there is usually a reason and it is not all psychological!
Holy s**t I was just talking to my mom about this. I thought I was just bad at sports and very specifically any sort of sustained activity.Think track, soccer, basketball, etc. Just thought I got more tired faster than other people cause I was lazy or whatever.
Went running with my mom one time in my early twenties in the cold and she heard me wheezing afterwards Asked if it was always like that to which I said yes. Took me to a doc and turns out I have exercise induced asthma.
I do indeed get winded faster than other people but it's not a laziness thing. No idea what would've happened if I found out during like middle school or something.
My boss found out he had exercise induced asthma when he was told that wheezing and pains on your chest after running were in fact not normal. He went in to have his heart checked and came out with asthma medication (his heart was fine).
My PE teacher says that chest paints just mean that I'm breathing wrong...?
Load More Replies...It's completely exacerbated by cold weather and makes exercise agonizing. But everyone just thinks I'm lazy even with the diagnosis
Yep. I live in Ohio, USA. The cold makes it so much worse.
Load More Replies...This always happened to me as a child, I was very sporty but would often struggle to breathe and had to constantly stop to catch my breath. Whenever I told my parents, teachers etc. They shrugged it off or basically just gaslit me. When I got to my teens it got a lot worse, yet still noone believed me, gym teachers would see me wheezing and struggling to breathe and yell at me to keep going, threating me with all sorts of punishments when I ignored them. I finally decided to start advocating for myself when i was 17 and made my own doctors appointments. I was dismissed and ignored for months, but just kept going back, i went in literally every week for nearly a year before I finally got someone to listen. I was sent for tests and given an inhaler to try and after about 6 months finally got a diagnosis for exercise inducted asthma. I basically just pestered them until they got sick of me and decided to finally do some tests.
Growing up, I would randomally get dizzy and go paper white. Went to the doctor and nothings abnormal. Mid 20's, I learn I have hypotension. My mom was with me when I was diagnosed and she said that explains everything.
My daughter had this... PE was heck for her in school , even with meds and a dr's note for " light " activity .
Ooooo. I had this too which sucked because I loved sports and was a really good athlete but too often I found myself unable to breathe.
I used to have that in gym class. They told me it was I was a little heavy. May have been asthma that was induced by exercise and allergies to pollen.
I wish I could upvote this more. I love football, but only played one year in high school (made all-county as a Junior), because I couldn't breathe at practice. It wasn't until I got to college that I was diagnosed with exercise-induced asthma. If I had known that earlier, I could have gotten treatment and perhaps played at the next level. I was really very good, but I just couldn't take the wheezing and coughing.
The expert also wants to assure readers that not every quirk is medically concerning. "It is tempting to think that if you have a quirk, it needs to be checked out immediately. And sometimes it does - please see above!" Dr. Shahina says.
"But if your health care professional had a knee-jerk response to extensively investigate every quirk, first, our healthcare systems would run out resources to treat the seriously ill among us," she continued. "Second, some investigations require exposure to radiation, dyes or surgical procedures and these can cause harm themselves. And finally, the scans we do may show up a whole heap of things that were never going to cause us any problems, but now we need to work out what to do with them, potentially exposing us to procedures we didn’t need."
My whole life, I have dealt with becoming “obsessive” over new things - like when I hear a new song I like, I will listen to it hundreds of times on repeat and not get tired of it. New hobby? It consumes my being. I have also had a running “daydream story” since about middle school. It’s an ongoing story with characters I made up (and a self insert of course), and I used to listen to music and imagine fight scenes and things like that. It turns out, both of those things are symptoms of ADHD, especially in women. I never got tested as a kid because my mom believed that “none of her kids have a mental illness.” 🤷🏻♀️
I'm like that except I have a thousand different stories that I can never keep track of. 😄
Load More Replies...I have adhd and its like having spotify on random for hours. like i can hear the music without any headphones its fun when im bored because i can press play but i don't know what song will play
I'm definitely not ADD and I have had the dream story for most of my life. Multiple ones actually. :) I think most people probably do at some point.
I've got 3. And I used to pull all nighters just to read the book I was currently hooked on because I just couldn't.put.it.down. Just one more page, just one more chapter... And this is just the tip of the iceberg
Load More Replies...ADHD is not a mental illness. It's a developmental issue, a differently wired brain. With proper support, people with ADHD often thrive in life, especially in creative and scientific fields, wherever they find a passion, because they think in different ways. HUGE breakthroughs in science, etc. have been made by people with Autism or ADHD (the two are quite similar and often present concurrently).
ADHD is really a talent. You're able to think on your feet and do a bunch of things at once. It just comes with side effects that don't fit social expectations, so you have to figure out strategies to navigate everyday life.
Load More Replies...Huh. I have a mom/dad, two sons and four grandchildren made up in my head. The brothers are either two years apart or twins and I have several scenarios I've thought up that I just replay in my head daily (and nightly).
Heh, this is me. I was 30 when a counsellor I was seeing for anxiety suggested add.
Ooooooo, yes! I tell myself stories at night time to help me sleep, but there's a handful of standards that I cycle through, and it's been going on decades, and yes, I listen to music to sync up to those stories, lol
Omg, I'm a woman with ADHD and I've done the exact same thing. Ongoing story since I was 17, especially when I'm bored
These aren't ADHD unless you also have core symptoms, like difficulty concentrating or poor memory or impulsivity.
My parents thought I ignored them a lot because I often didn’t listen as a young child. Turns out I had severe chronic ear infections that caused a surge of ear wax to clog up my ears and put pressure on my eardrums so bad that I was practically deaf. I had to have surgery to fix it.
Another thing I have experienced. You have to really be careful with chronic ear infections because it can cause a whole lot of issues later on. I've lost 75% of my hearing due to chronic ear infections and the required surgeries (tubes).
In my case I spent my childhood with chronic ear infections and as an adult I have serious vertigo problems. It sucks.
Load More Replies...That happened with my nephew. He was 4 - they just assumed he was ignoring them. Turns out his chronic ear infections were causing hearing loss. Tubes fixed the problem. And when his little sister started having the same issues at age 2 they didn't waste time getting her tubes as well, before she sustained any hearing loss. Lesson learned!
Protect your hearing as much as possible. There is a huge connection between hearing loss and developing dementia! Regular hearing tests are key.
My ear wax build up is so bad, I have to have it removed by a tech at my doctor's office once a year. Don't use cotton swabs, so it must be some weird thing my body overproduces.
"Having said that, if your health care professional doesn't seem to be getting how worried you are about your quirk, then listen to your gut and keep escalating your concerns," Dr. Shahina shared.
"Perhaps seek another opinion, until you feel that your health is safe. The patient-doctor relationship is always a partnership," the expert added with a smile.
My handwriting was terrible, balance sucked and I would have tremors especially in my hands after vigorous exercise. I thought I had Parkinson's. It was just mild cerebral palsy, which is non progressive, and I'll have it for life. Definitely beats having Parkinson's, especially as a teen.
Sometimes it's not a "good' diagnosis, but it still beats a "you'll die young" diagnosis.
I used to make sure that any sentences I said were a multiple of 3 . It then evolved to 6, 12, 24, 48 and 96. I would say words to myself to round them to those numbers.
lookoutitspam:
OCD gang, lol. Just diagnosed and put on meds last week. My special number is 10. Steps have to be in multiples of 10, can’t cross from carpet to tile, etc. without having taken a number of steps that’s a multiple of 10. Gotta tap my fingers on stuff 10 times.
Glad these folks are getting treatment, but as someone who can't mentally multiply for the life of me, I'll admit part of me is impressed with the "multiple by 3" person.
Right?! I skip numbers when I count, or lose my place. I was doing a group gym thing where you had to hold different stretches for 30 seconds each, and the only way I could keep track was to count to 10 three times for each stretch. Have never been able to keep basic equation structures in my head, and have struggled on multiple occasions to count cash. I'm also impressed by people who can do mental math lol
Load More Replies...omfg- I had to tap things four times. I mean I had to tap everything in the room four times- the plants, the window sill, the door frame...everything. I had this ominous feeling that if I didn't perform this ritual something terrible would happen. I had to "teach myself" not to do it. The weirdest part of this is that I thought I only did it as a teen, but my Mum said I did it as a young child & I have no memory of it.
My brother did that as a kid and was diagnosed with OCD. I did things like that too, but it turned out I was subconsciously copying him.
Load More Replies...Idk if this counts. It causes me anxiety if anything is an odd number. I can't buy three potatoes. It's either 2 or 4. I lived in a house with an open floor plan and the ceiling fan in the living room did not line up with the windows or the light in the dining room. Constant anxiety because I couldn't do anything about it but I did get estimates to find out what it would cost to line the lights up. The crazy thing is my favorite number is 5.
For me it is 3 or 13. When I was really young everything that I did had to be one of those numbers; if I accidentally did 4, I would have to go to 13. I never got diagnosed OCD but I probably was a little bit. I can definitely control it now and no longer feel the need to do it.
Congrats on your diagnosis. Once I knew I had OCD, so many things about me made SO much more sense.
I've had OCD since childhood.(70 now). None of the 60 meds I tried ever worked on it. After two years of suggestions to my new doctor he was progressive enough to try Tramadol. Sounds crazy, a pain killer for OCD, but it worked. The OCD was almost completely gone in one hour. It's a very extreme therapy, but if nothing else works for you, this might. I have a life again. Thank you Dr. S
The universality of numbers calms me. Numbers are language and music. They are all around us for as far as the eye can see. I'm in the minority of preferring odd numbers over even, but it's prime numbers, those odd and crucial little buggers, that I truly love. I was proficient in maths before a severe brain injury, but my affinity continues.
Sheldon has nock three times. But this is because he wawlked on his dad with another woman.
Bipolar here. I used to be able to stay awake without being tired and people always were amazed by that at work, turns out I was just manic.
When you think about it, an episode of depression is almost an inevitable consequence of that. Used to live with a boyfriend who lived that pattern but couldn't see it. He only had a diagnosis of depression because to him the ups were just him being on form and having a great time.
As a therapist, I can tell you from professional experience that people with Bipolar Disorder never seek treatment when they’re manic because they feel GREAT. They come in when they’re depressed, which makes it hard to diagnose their disorder as bipolar rather than as unipolar depression.
Load More Replies...I average around 2 to 3 hours of sleep a night and function completely fine, mania has it's perks. Other hand, during a depressive cycle I can sleep for 12 to 18 hours and still feel tired. I never have a normal sleeping pattern. One extreme or another.
As I've mentioned before, my misdiagnosis of bipolar had me on some pretty strong cocktails that induced mania. Got so much done because sleep was in fits and starts. I admit, I liked that part. Right up to the psychosis part.
I have had two psychiatrists diagnose me with bipolar 2. They were mistaken my anxiety and OCD for hypomania, and not taking me seriously when I said that I had never been manic/hypomanic.
Bipolar1 wish I was properly diagnosed before age 40. I’m 73 years old now and in remission.
My grades would drop every winter/late spring. I live way north and get severe vitamin D withdrawal.
Seasonal depression stinks. You literally don't want to do anything. I wish humans could hibernate. I have a sun lamp set up by the treadmill, so I get exercise and light therapy. It really helps
Not sure what this means? Does the OP mean they get deficient in vitamin D? I'm not sure you can suffer 'withdrawal' from something that is essential for life.
Yes, quite obviously means deficient. Lack of sunlight means that for some people their body doesn't produce enough VitD, thought to be at least a partial cause of Seasonal Affected Disorder (SAD) and easily rectified with supplements.
Load More Replies...That is so real. My regular checkout guy was just 'off' a couple winters ago. As a Black man, he got pale. He couldn't lift things, and said his grades were dropping. This was a studious kid. Told him to get his d levels checked, because he essentially worked and went to school. Buddy bounced back after a week of vitamins. Take walks and vitamins, kids!
I have chronic Vitamin D deficiency. Being put on prescription Vitamin D3 was a game changer, not just for my overall mood, but also for my super dry skin, which would become lizard-like about an hour after applying moisturizing cream.
My vitamin D deficiency is genetic and, lucky me, I've developed a sun allergy. I have to take 10,00 iu a day as a supplement.
In the north. Most People are vit d deficient in the winter. It is very hard to over dose on D so best to take a bit d supplement Nov to april
Food cravings that went beyond just silly little hankerings and became extreme to the point of damaging my teeth, causing rapid weight gain or giving me kidney stones.
Turns out food hyperfixation is a symptom of ADHD. Once a food hit just right at the right time, it was all I could think about and wanted eat for weeks or months.
Go go dopamine seeking! Our bodies know when we're missing something we need, so if you have a lower dopamine production (a super important brain chemical that is required to function) and don't have access to a doctor, diagnosis, or medication, your body will grab on to anything in order to "self medicate". This could be food, could be substances, could be objects (lots of shopping and impulse buying); I knew someone who stopped taking her ADHD medication, and became literally addicted to her partner because she mentally latched onto them being her only happiness... It got really scary and really unhealthy whenever this partner tried to break it off :( This partner did finally get out thankfully, and I hear their new SO is an absolute delight. And her? She's slowly improving after getting back on medication, but it's going to be a long road.
I have this as well. Right now I'm hyperfixated on sea salt crackers and seriously strong cheddar spread, light. A few months back it was Brussels pâté with caramelised onions then Lidl changed to a different supplier and I went straight off it!
I hate food hyperfixations (though I don’t get anything this severe) Its like I’m always craving a food and eat it multiple times a week until suddenly a switch flips and the very thought of the food makes me gag.
Oh god - you have just pointed out yet another possible symptom of ADHD that I have. I haven’t been diagnosed but ever since 2 of my kids were I have had strong suspicions about myself….
Suddenly my Mom started eating oat meal right out of the container, without cooking it. About once or twice an hour she'd grab a couple of handfuls of it and just chow down. No water or milk either. This went on for several years, doctors had no explanation for it. One day she just stopped, she now eats it the normal way...
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I have uncontrollable cravings, but they only started when I went on a new antidepressant. I kept taking the drug though, as it was the only thing that had ever helped me sleep. Now the effectiveness of the drug is wearing off, I may have to try a new one and hopefully it won't have the same side affect.
Also I always felt like there was a TV on in my head. You know those old TV’s where you know it’s on because of the low-volume high pitched ring? I constantly had that. Turns out I have tinnitus.
I remember one time talking with a friend of mine when I was about 13 years old. Something in the conversation made me take notice, so I asked her, "When you're lying in bed at night, and it's quiet, what do you hear?" She said nothing. I said, "So you don't hear a constant 'EEEEEEE?'" That's when I found out that tinnitus is abnormal.
I miss not hearing anything in silence. I’ve been so careful with my hearing all my life, always carried earplugs, kept the volume low, etc., and then about three years ago I got Covid and bam tinnitus.
Load More Replies...I have tinnitus and often there's more than one type of sound. Right now it's a quiet whining ring, but later on it could be an 'engine in the distance' sound. I also get pulsatile tinnitus where I can hear my pulse (restricted to one ear). Unfortunately I have hypersensitive hearing so I pick up on noises that others might not. I've learned that if I can still hear a noise at the same volume after i put earplugs in, it's a 'head sound' and I can use white noise to tune it out. I also have exploding head syndrome and when very stressed and tired, transient psychosis.
I have severe tinnitus (from the military) with slight hearing loss. Getting hearing aids really helps with the tinnitus and it greatly cuts down on the noise.
Tinnitus is awful! I can't even describe the sounds that I hear when mine flares up (it doesn't happen all the time).
Here are two generators that might help describe the sounds! https://www.checkhearing.org/pulsatiletinnitus.php -----and---- https://www.checkhearing.org/tinnitusmatching.php?rangeHz=0.08¬e=8&toneQuality=buttonFiltered
Load More Replies...Tinnitus and combination visual snow. I firmly believe if I could stop the tinnitus all the sparkly speckly colours in my vision would cease too.
Same. I was talking to a friend about how I could see all the tiny dots that made up my vision like pixels and he said I must be a Terminator. I didn't realise people didn't see like I did. I also have tinnitus.
Load More Replies...I have a rare form of tinnutus called sudden brief unilateral tapering tinittus. The name speaks for itself. It'll feel like a flashbomb went off right next to my head and I'll have mild deafness and almost painful rining that tapers off over 30-60 seconds. It's such a weird sensation, but I still think better than normal chronic tinnitus. I also have a fun tip for those of you that have it. Cover your ears with your palms and rest your pointer fingers just above the hairline at the base of your neck then start rapidly tapping alternating fingers for a couple minutes. It should sound like loud drums in you head if you did it right. For the majority of people with tinnitus, doing this relieves the ringing temporarily and lets you hear complete silence. And even if it doesn't work for you, it still makes a funny noise and does no harm.
Woah guys! It's loud as hell and even rings in my ears. Aaaand it WORKS!!!! Thanks alot!!!
Load More Replies...I had tinnitus since I was little. They did those hearing tests in school and I would always fail. They thought I had bad hearing...it's just that the constant ringing drowns out the test tones
Always needed white noise to sleep. Decided to be "normal" and just enjoy the silence....Nope there is no silence just a high pitched squeal.
My arms bent backwards and would freak other kids in my classes out sometimes. It was a silly party trick until I got diagnosed with Ehlers Danlos Syndrome and couldn’t walk after I became an adult.
Oh no, that sucks.It's a connective tissue anomaly and it affects the joints, the skin, and other organs.
This illness needs more awareness- it isn't just that you are very flexible. I have been diagnosed by two geneticists with it and mostly keep it to myself because people don't understand it and even some doctors are not educated about it. I have partially dislocating joints and had pointless surgeries before we learned about it. No one suspected that my shoulder pain was because it was dislocating, so instead they went in to do a decompression surgery that did nothing. Now my hips dislocate and my knee. I am scared of my future and just assume it will be in a wheelchair at some point.
I feel for you, I can't pass someone a bottle of pop past a 45 degree angle while my right arm is extended without it rotating out of the socket and my back won't stay aligned. What nobody warned me about was the muscle spams that lock down for days at a time and the burn where the ligaments attach to the bone. I had no clue it was all related... currently on a wait list for formal diagnosis. I wish you all the best.
Load More Replies...I have hypermobility, but not EDS. Even so, it makes arthritis, bursitis, and tendonitis SO much worse. Pretty sure my tendons and ligaments look like old hair ties at this point.
Another disease that is very real, that is often dismissed by doctors as people just being hypochondriacs. I know a few people who were diagnosed, and they rarely had any sympathy from doctors or friends. It is a devastating genetic disease.
I have hEDS. It’s all fun little tricks until you’re in pain nearly constantly from your loose joints and weak muscles.
I was a fidgety kid and would do odd things like whisper words under my breath every time I spoke, say certain words a lot, tap things, make sounds. I mostly grew out of it but when I woke up in my 20s with sudden onset motor and vocal tics (by which point I'd almost forgotten what an odd kid I was) I went to a neurologist and it turns out I have Tourette's syndrome. It was only when he asked if I had any unusual habits as a child it clicked that I'd had it all along.
It wasn't until I was almost 40 that I discovered I have Tourette's. I read about it in a book. It such an epiphany ... everything made SO much more sense! My life was changed dramatically for the better by just knowing what the hell all these weird things about me were.
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My friends and I thought my basement was haunted but I was the only one who really believed it, because I had seen figures there. Yeahhhhhh... house wasn't haunted, lol. Somehow it took me years of mental illness before I made that connection.
I apologize for disappearing; honestly I never expected anyone to see this silly little story and the interest freaked me (and my anxiety) out for a sec. I mentioned this further downthread but wanted to answer your question directly as well.
I have been "diagnosed" with schizophrenia, depression, GAD, etc. etc. I have had a long history of evolving signs and symptoms of mental illness and don't feel connected tied to a particular diagnosis. At a certain point, when you're sick enough to have basically a treatment team of therapist/psychiatrist/GP, etc., they tend to address things symptom-by-symptom instead of giving one med for one diagnosis (which is not sufficient for some people), so it's not something that's specifically on my mind much. I do have a diagnosis for insurance and record-keeping purposes that is kind of their best-guess categorization and as someone downthread guessed, it's Bipolar 2.
I mean, that's how proper treatment of mental illness looks like! There's no "one med for one diagnosis" type of care, because mental illness manifests different in different people, various meds have various effects on individuals and doctors have to balance things out aiming for the best results for that particular person. Add to that the fact that most imbalances in the brain that we know or suspect to be causing mental health problems can't be precisely measured (like neurotransmitters - we know they're not working properly but there's no test to see how much they're actually transmitting, and we can't pinpoint a certain number that would be proper for that particular person). And having multiple diagnosis is not only common, but in most cases good for you! It better informs your doctors and helps them better balance your treatment.
Bipolar II doesn't caused hallucinations or delusions. Bipolar I could.
Despite the decades-long drumbeat for a holistic approach to medicine, combining the physical and the mental, US medicine still views the body as totally separate parts. Unlike my parents' generation, I don't revere doctors for this and many other reasons.
All my life when I was growing up I was always uncoordinated. I had no balance (I was never able to skate), my coordination was terrible, I had scoliosis, and hearing loss and a hand tremor. My whole body was just “not right”. I fought against all that very hard - I became a bike racer, I’ve done Ironman triathlons, I’ve hiked the AT. (Yeah, I am sure I was compensating). But finally in my 50’s, after a bout of severe foot neuropathy, I was diagnosed with a congenital neuromuscular disease called Charcot-Marie-Tooth or CMT which demylenates the peripheral nerves and really screws with the body’s biomechanics. I was fighting a huge uphill battle the whole time.
My late husband had this. As he walked his ankles started to turn inward and he was walking on the sides of his feet. To open a a door with a set of keys… he stuck his finger in the key ring and turned his entire hand to open the door. He couldn’t use his fingers to grasp the end of the key. CMT is no joke.
Wow, I briefly knew someone with CMT. She was a wheelchair user and had careworkers come in to support her every day. She was all there mentally and frustrated sometimes by not being able to do things like cook for herself. I never knew someone could have CMT and take part in triathlons!
My husband's late uncle had CMT. He died playing golf. It's not always severely debilitating.
Just thought I was a tired, sleepy person. Always amazed by how much energy people had every day, but I have always enjoyed couch potato activities so I assumed it was a “me problem” and I was just built that way. Thought I must be lazy. Well. It was a me problem. A stomach problem. My body was using all my energy trying to digest food and draining me of vitality. I went on a simplistic diet and just BOUNCED BACK. Oops. Turns out stomach dysfunction runs in the family. Now I’m trying to get fit, I got a new job with all that energy, and I’m making a cross country move!! Hey you reading this, the person with no energy for anything. Maybe you’re depressed - but maybe there’s a physical problem!! Get checked out!!
In the Reddit thread the OP expands on this a bit more. Here's the first and last paragraph that sums it up: "Okay, so YMMV. Every digestive system is wildly different. My issue was specifically FODMAP digestion. Basically my gut microbiome is poorly calibrated, and does not digest complex carbohydrates/sugars correctly." "I gotta go right now but there’s your hint. If youre exhausted with a broken b******e, look into it"
b***************e? what does that stand for? b******e?
Load More Replies...Well, in my case the low energy turned out to be anemia connected to a non-Hodgkin large-cell lymphoma... But I'm getting treated for it, so all good.
I completely understand this. I underwent the same thing and it was a gut issue. I did a gut reset program, dietary changes mainly, a FODMAP diet, etc. and I ended up losing weight and gaining energy.
FODMAP is tough! There are just some things very hard to cut out
Load More Replies...In my case, I recently got the diagnosis of fibromyalgie (after searching 12 years myself for someone to take me serious) and everything makes sense now
Depression is a physical problem. The brain is a bodily organ that can become dysfunctional in numerous ways. Mental illness doesn't just magically appear, you know.
Yes but it isn't instantly cured with a change of diet medical procedure.
Load More Replies...When offspring was young we were constantly taking them to ER with extreme stomach pain. The dr would say, "make child drink more and eat fiber, child is constipated." When offspring was a young adult, we finally found out this offspring has gastroparesis, the inability to move food through the gastric system (gut). The struggle is real. Drs did not diagnose offspring with endometriosis and ED until after the gastroparesis was diagnosed. And! this offspring also has ADHD. At least now, we can actually provide real, directed help and this person is doing better.
I have fibromyalgia and it causes me big problems with energy levels. When I'm in a flare up, I am too exhausted to exercise, but if I don't get enough exercise I become more tired. When I am not in a flare up (right now I am the best I have been for years) I can actually exercise, which gives me more energy (unless I overdo it).
As a kid my hands would hurt like needles stabbing me when I wrote and in gym class my feet would feel like I was walking directly on bone. Nobody believed me. I did in school suspension for refusing to participate, even Saturday school for all the missing class work cause my hands would hurt so bad. Everyone thought it was just an excuse. Took a neurologist, rheumatologist and my primary care doctor to finally diagnose me with a rare autoimmune disease called Mitchell’s disease. It’s extremely painful. I never got the apologies from the school faculty but my mom finally understood why when she woke me up for school I would cry that my hands and feet hurt.
Neither of my parents could. Naturally, I overcompensate. Me: That's not what I said! My parents: Well, that's what we heard. VERSUS You: That's not what I said! Me: Oh, I'm sorry. I must have misheard or misinterpreted. Would you mind repeating what you said? (I don't know who needs to hear this, but it doesn't in any way degrade you if you're wrong. What degrades you is compounding your mistake by childishly refusing to admit you could possibly be wrong.)
Load More Replies...Why can’t parent just listen to their children! My son had a massive growth spurt between 12-13, he developed such sever pain in his legs and feet that he was struggling to go to school. I spent thousands taking him to podiatrists and the Pediatrician and all they said was he had flat feet or that it was just growing pains. I wasn’t satisfied with this so I saw a physiotherapist, it turns out he’s got elders-danlos syndrome and is hyper-mobile. He grew so much that his stretchy body couldn’t easily support his weight and his muscles were reacting like he’d just done a massive session in the gym every time he walked. He’s on the mend now but I’ll never understand how a parent can just ignore their child’s pain like that.
I hope you have found meds that help. Not everyone is prone to addiction!
I don’t know if this counts as physical health but some days I’d just be really clumsy, drop things, spill things, get my words all mixed up and say the opposite of what I mean - mum tells me I was diagnosed with dyspraxia when I was 12, told me when I was 30.
Apparently, I was diagnosed throughout my life with scoliosis. My mom never acknowledged it. I'm a full grown adult finally understanding why one shoe wears faster than the other and I always look crooked and why my shoulders bend forward.
My nephew has dispraxia, some of my family knew there was an issue when he was a toddler (he was very clumsy and struggled with a lot with anything involving coordination.) His mum had him at the doctors constantly, yet he wasn't officially diagnosed until he was 10. He's now 14 and only recently learned how to ride a bike after nearly 10yrs of trying. He now rides it everywhere and loves it, he's became very passionate about cycling, bikes and bike maintenance.
I'm 60 years old and I've been dispraxic all my life until 3 months ago. I had a stange week where I would do things like pick up my floss and wonder how to open it and I had to think about how to cut up an onion. I was freaked out thinking I was getting dementia. After about a week it went away but since then when I throw something at a bin it usually lands in it which is unheard of for me and I can plait my own hair and other things I could never do before then
Wow, that's bizarre but must have been scary during that week. Is it safe to presume that it feels amazing to be able to do things you couldn't before? I am pleased for you!
Load More Replies...I did the same thing, but was having bursts of very short absence seizures.
a while ago i first saw this word. I was curious and looked it up and holy s**t theres the story of my life. Edit. its so much more than OP says, though.Its like not being able to catch/hit a ball with sports, or being stuck on something less than half a meter high and need a hand to come down, messy eater (food flying all around) horrible handwriting and everything in between.
My toenails used to frequently split. One time my wife witnessed this and said "that's not normal". Yadda yadda yadda, I had been iron deficient for like 12 years. Within two weeks of supplementing iron, I became much less disabled.
While I was pregnant with my twins I started eating ice. After I had them I continued.....I was bringing a huge cup of ice to work then I'd get more during my lunch break. When home I'd chew ice all day. I wasn't feeling well so I went to the doctor and I got blood work done and my iron levels were very low. Doctor told me to take an iron supplement and within a week not only did I stop chewing ice but just the thought of chewing it made me cringe. I chewed ice for about 5 years straight and I ended up ruining my teeth because of it. The ice chewing is Pica and my body was trying to tell me I needed more iron.
I had Pica too, with ice chewing - fortunatly for me it was only a little over a year, but the sad thing is DENTISTS don't seem to know to ask partients who have ground down teeth if they chew ice and advise them to get their iron levels checked.
Load More Replies...I had been having heart palpitations on and off for years…doctors never caught it, Holter monitor didn’t catch it, I ignored it cos, y’know, life. Happened to do a blood test and my iron was undetectable. Iron infusion…no more palpitations!
I got heat palpitations when I first went vegetarian. Once I started getting more protein from other sources they stopped.
Load More Replies...I have always been anaemic. When I was pregnant and tried to take iron supplements, I got violently ill every time .When my daughter was born, her iron levels were very low, but she had a paediatrician that had heard of a very rare blood disorder that might be the cause and didn't want to give my daughter iron until she was tested. It took a specialty blood test at a cancer centre to find it, but I do indeed have a very rare blood disorder, and both of my children inherited it. If they had given my daughter iron, it would've killed her.
Crying over not being able to understand most math no matter how simply it was explained to me -> dyscalculia Growing pains, twisting my ankles and spraining my wrists often, legs giving out etc -> EDs Bullied but unaware that I was being bullied half the time basically just struggling a lot socially, being labeled and “old soul” and “mature for my age” because I only knew how to talk to adults -> autism
Ohhhh I didn't know there was a term for being unable to understand math. That makes so much sense (and I feel bad for the little me that couldn't figure it out and couldn't get help in school) :(
Same here. Even now as an adult I have issues with numbers not making sense to me. It sucks to have to review budgets and P/L statements for work. I always make some sort of mistake so I'm sure to have someone double check what I've done.
Load More Replies...Dumb question, but what is EDs. I doubt that it means eating disorder or erectile dysfunction.
THIS. Tutors, failing or marginally passing tests. Barely graduated HS needing a math credit and failing algebra. Business Math teacher held my hand through class and got a C-. She said she could tell something wasn't right but as a Senior (in the 80's) they didn't know and likely wouldn't do anything about it. 20 years later, I had a name for my agony. Thank you for sharing.
I have dyscalculia and dyslexia - diagnosed early -I managed learned tricks - struggle at times but ask for help - made it through grad school where my professor couldn't understand when I cried over letters like p and k now in the math!
S**t, I may have to talk to my doctor about EDs, That's exactly what my body does
I didn't write this but I could have :( but mine isn't EDS (that I know of), it's fibromyalgia + rheumatoid arthritis
I remember when a Dr first said to me, after describing my struggles with any math higher than division (I could do the basics, but I was really slow), “Oh, sounds like you have discalculia.” Giant light bulb. I then remembered a college professor tell me I might have “dismathia.” My mother, a CPA just blew it off, study more! Even though she had numerous times found me asleep on my math book, having cried myself to sleep. Liberating. Immensely liberating.
Not me, but I helped someone on reddit get diagnosed with EDS. They posted a picture of their fingers bent in a strange way and said they didn’t know why they could do it when others can't, so I asked if they had it. They responded saying they took a survey and had 80% of the symptoms and had made an appointment to get formally screened.
I'd encourage anyone who is highly flexible together with other things like stomach issues, IBS, unexplained pain and injuries, to look up Ehlers-Danlos and if it sounds like you, get screened by a geneticist. While there isn't a drug or anything to fix it, one of the most important things you learn by having it is to only get surgeries if every other option has been tried as surgeries have poor outcomes. Find a great physical therapist and have ongoing appointments. Tell your dentist because lidocaine injections may not work as well when you get dental work done. And keep your muscles toned, they are the only things holding your loose joints together.
And find out which type you have, because it might also increase the risk of certain vascular problems.
Load More Replies...I played volleyball as a kid and was a great server. When I was 13 I served the ball and immediately felt horrible lower back pain. I went to complain to my mom and she totally blew it off since my dad and grandpa both suffer from low back pain. Fast forward through the volleyball season and I was still suffering with pain everyday. My mom finally took me to the doctor since I was complaining so much and one x-ray proved I have spondololisthesis which is common in gymnasts, football players, and other people where they extend a lot. Turns out I needed a spinal fusion and months of physical therapy.
Athletes in general need to care for their bodies, but especially young athletes who are still developing. Take care of yourselves! And parents/guardians, believe them if they say something doesn't feel right.
This sounds very similar to me in 6th grade. Badly injured on the lacrosse field, but everyone just kept telling me I was too young for back pain. A year later, a CT showed I had fractured my spine in two places. By that point it had "healed", but I had a full time fitted hard brace I wore 24hrs for 6 months
Was a dancer, aerialist, skier, and equestrian well into my 40s. Still skiing now. I’ve had all sorts of joint issues but my back is the worst. Finally diagnosed with L4/L5 spondololisthesis a few weeks ago. Fusion in the spring after ski season. Hoping I can take the pain!
Turns out that, no, it's not normal or quirky to have "visions" about being an angel and thinking that you were an angel in a past life and I do, in fact, have psychosis. It's also not normal to be afraid of mirrors and your own reflection because you think it's going to kill you! That's not anxiety, babes, that's psychosis! It's also not normal to have horribly violent intrusive thoughts whenever someone smacks their lips or eats too loudly around you. That's misophonia. I thought everyone found it that annoying.
My brother has misophonia. He can't even be in the same room as others eating.
All my family have misophonia exept me. Thanks god, we dont have family dinner anymore. It used to be like warzone!
What if you're only afraid of your reflection at night? I hate mirrors at night but during the day it's fine. Should I be concerned??
If it's just being nervous and spooked, it's likely normal. In the dark our eyes can detect movement more easily than shape, so even if you actively know it's your reflection, the mysterious shifting dark shape can make you anxious. It's biologically advantagious to assume the worst when unsure which is why things like coatracks can be so scary in the dark too.
Load More Replies...I was sensitive to light and often the way the glare of the light bending was very odd, this was going on for years and every time I went to my exam the doctor said it was astigmatism and I just need to keep wearing glasses pretty much all the time. Last year I decided to go to a different doctor and turns out it wasn’t that, she said I have a rare eye condition called Keratoconus that causes the cornea of your eye to bend like a cone and over time as it gets worse can cause blindness. There is a procedure called Cross-linking that helps prevent the condition from getting worse and at times can even slightly fix the condition. I’m still recovering as it can take up to a year for it to fully “heal”.
So glad you finally found someone who could help and prevent you becoming blind.
I have a friend who has this condition. She had a cornea transplant in both eyes (happy ending though, she's doing great and met her now husband -an eye doctor- in the process)
I was not being lazy on childhood walking tours and hiking trips; I had flat feet and was in pain, therefore needing more frequent breaks. (Diagnosed age 11 or so.) My daily back aches and the several- week period where I couldn't move my legs properly weren't growing pains; I had a herniated disk in my lumbar spine that was compressing a nerve root. (Diagnosed at age 19, but the nerve damage is permanent.) I was not bursting into tears every time something unexpected happened because I "wanted my own way all the time"; I have generalized anxiety disorder. (Diagnosed at age 20.) I wasn't unable to tolerate a Pap smear because "virgins always find this uncomfortable, it goes away once you've had a man's penis inside you." The aforementioned nerve damage had affected my pudendal nerve, too, causing a condition known as vulvodynia. It may not surprise you to hear that I've needed 2 years of trauma therapy specifically surrounding medical trauma and fears of not being believed.
The ADHD affects my emotional regulation so hard that people think I'm always crying on purpose or throwing a tantrum, not because I physically can't stop myself
I have lived with a lot of mental issues because I never being believed or taken seriously.
Holy hell, I've read about vulvodynia. That condition sounds excruciating. Even the touch of a cotton swab hurts below.
Periods got heavier as I got older. Just assumed it was part of aging, until my doc ordered an ultrasound. Fibroids caused the heavy bleeding.
I was told by no less than three FEMALE medical providers that the heavy bleeding was due to "perimenopause" and yet they never ordered further labs or tests. When I changed providers due to my insurance coverage changing, my new provider said "That's not normal" and sent me to an OB GYN who ordered labs and an ultrasound. The ultrasound showed my uterus was "riddled" with fibroids and the subsequent hysterectomy showed "beyond riddled" with fibroids, probably for many years. I wish I had asserted myself more effectively.
I ended up in the hospital with anemia because fibroids caused me to bleed so much. :( I've had them removed before but they always come back.
Oh, do they sometimes hurt too? Like a pop and then you see black and white fuzz and vomit and poop at the same time? I’ve been to drs for ages on what I think is a cyst but I don’t know, no one finds anything 😂
Do you have an irritable bowel syndrome? It can lead to massive and 'flash' pain. Or an ovarian cyst? My fibroids aren't painful outside period. I take progesteron contraception to avoid period. Works like a charm for me. Good luck
Load More Replies...Remember, if you are completely over your menopause and then "get your periods back", go to your doctor immediately. It's most probably cancer.
This one is recent sooooo.... I thought my head shape was normal until someone just casually mentioned that I struggle finding hats not because my head is big but because it's oddly shaped, kinda flatter than a normal person apparently, at the back. Then brought up that they bet it was related to the severe neglect I had in infancy (was left alone in the crib for days at a time. Parents used to say I was such a 'good baby' because I had just learned to not bother crying). That took a bit to decide how to feel about.
I ate a lot of ice cubes for a year. It was intrusive, and I had a cup full of ice cubes at all times. It felt like an addiction. And then I got a blood transfusion (about 2 pints needed) because I was severely anemic. I'm also Type 0 positive, with a host of autoimmune issues. I waited for hours in the hospital until they found blood they could give me. Turns out I was anemic because of andenomyosis, my uterus was 3x the normal size, and one of the worst cases they've seen. So I also got a hysterectomy. I haven't chewed ice cubes since.
It's called pica, the obsession of eating non-food items. Usually it's ice because body confuses it as something you need when being anemic, but it can also be things like hair.
I just posted this to #40: While I was pregnant with my twins I started eating ice. After I had them I continued.....I was bringing a huge cup of ice to work then I'd get more during my lunch break. When home I'd chew ice all day. I wasn't feeling well so I went to the doctor and I got blood work done and my iron levels were very low. Doctor told me to take an iron supplement and within a week not only did I stop chewing ice but just the thought of chewing it made me cringe. I chewed ice for about 5 years straight and I ended up ruining my teeth because of it. The ice chewing is Pica and my body was trying to tell me I needed more iron.
Used to never have irregular periods. Didn’t think much of it, I was always active and running so I figured it was because of that. Turns out it was a brain tumor messing with my hormones :)
Always had weird looking nails since I was a kid. Like kind of flat, wavy and with vertical lines.
Occasionally, I would get extreme random pain in my knees. I had Purpura (aka Henoch-Schonlein syndrome) when I was 18 months old.
Anyways, I live a normal life and play sports until, fastforward to my mid twenties, I start getting sausage fingers after every volleyball practice. I must have an injury or carpal tunnel, I think.
Many doctors and tests later, turns out I have psoriatic arthritis.
My brother has this. Gets horrible back pain which makes it hard for him to sit, walk or stand
Wait what. I had CTS in the final stage of my pregnancy, and if this whole post is the result of arthritis well then...
My previously straight hair got curly in March, the same time I was hit be depression and anxiety. No prior issues with depression or anxiety. Fast forward many months that included therapy and SSRI's. I get hot flashes and start on Estrogen, my Dr tests my hormones and I'm solidly in the middle of perimenopause. I weaned off the SSRI's and have no more depression/anxiety. Pretty sure the depression was caused by low estrogen. So my curly hair was an indicator of a change in hormones and caused a cascade of other issues.
My hair has changed dramatically after the birth of all of my kids. It's wild what hormones can do.
I'm about to start HRT. I'm curious, did your curly hair straighten after starting estrogen?
My mostly straight hair went quite curly when I was pregnant and stayed that way for a couple of years before reverting to mostly straight again.
I heard on the radio once that some hairdressers are able to tell when someone is pregnant, sometimes before the person themself
Load More Replies...One day I had intense pain in my right wrist, nothing else. Turned out to be a heart attack which destroyed my mitral valve.
Woah, I'd love to know how this person found out. I would never feel a pain in one wrist and realise I probably needed to get my heart checked out.
I don't know about the OP, but most women have arm pain rather than chest pain as an indication of a heart attack.
Load More Replies...
I used to scratch my head without realizing, and then scratching my skin as well. It became an addiction and obsession, without the ability to control it. Turns out I'm suffering from Dermatillomania.
i have this, except it's picking and biting rather than scratching
Often times found myself falling in the middle of the day and needing a nap. Plus, struggling to keep weight in check, cold sensitivity, and dry skin. Cue the diagnoses of hashimoto's thyroiditis, anemia, and low iron/vitamin D Recently, unexplained abdominal pain unrelated to my periods, wasn't found on ultrasound and requires CT scan... likely endometriosis.
I have Hashimoto's. Thyroid disease runs in my family - mom and sister got Graves disease but somehow I wound up with the Hashimoto's instead. Thyroid problems do some really weird things to you.
I am 4th generation with Hashimoto (as far as we know) and yes, so many problems from that little piece of s**t.
Load More Replies...People were often shocked I could drink a liter of coffee and sleep right after. I just thought it was a cool little trait. But I really just have ADHD, people are still surprised a lot but now I got an explanation.
The further I get down this list the more I wonder if I should get checked for add/adhd…
Never hurts! I have ADD/ADHD. So does my brother. He got diagnosed WAY before me(he was like, 8. I was 32). I’m not severe enough to need medication, but it gives me a peace of mind and the self-awareness needed to keep me on track. It also gave my hubby peace of mind for himself and he researches sometimes to help me get back on track or distracted when I need to be.
Load More Replies...Hack for adhd parents when your kids goes to a party and you are worried about them getting all revved up and crazy: LET them have that cup/extra cup of Coke. They’ll actually be better off.
However make sure that they know that caffeine makes adhd people sedated because the placebo effect is one hell of a drug and it could easily backfire if they think they should be *more* energetic after having it.
Load More Replies...One of my nephews basically falla asleep like he took a sleeping pill after drinking mountain dew or eating a chocolate candy bar... he never got diagnosed, just stays away from that unless he wants to sleep
So easy way to check if you have ADHD is sleeping after taking in caffeine also you like caffeine cause it makes you focused (like Ritalin) but doesn't make you hyper
I’m never scared. I have only one memory of ever being scared in my life before I started therapy in my early 40s. Other people have commented on how I don’t have any fear, and I’ve objectively noticed that in some situations I’ve been in that I should be scared but I wasn’t at all. Turns out it’s because I have a dissociative disorder as a result of childhood abuse and my fear is walled off in a handful of alters. The threshold for one of those alters to take over for me is a pretty extreme level of fear so when that happened I either didn’t remember when that alter was out or I just didn’t feel the fear because I had no access to it. Brains are fascinating.
Same, Dude to heavy childhood traumas, I now respond by laughing so hard I can't breathe, turns out that the laughing is a defense mechanism from it and I don't feel fear from it all {al tho i panic from birds and eels and people tell me I'm scared of them, i don't feel "fear" i feel like ill puke if i see them, that doesn't sound like fear tho}
Yeah I have a long running joke and bet at work - if you can jump scare me, free extra after work drinks for a week, I genuinely want to feel that rush and jump and feel startled 😂 I try not to get too risky when trying to get that feeling of fear, cos I love living life etc but f**k I’d kill for that scare rush just one more time as an adult. After therapy I realised how bad it was and have been chasing it since 😂 the heart rate doesn’t even move when it should
When I was in high school I would randomly get obsessively focused on brushing my teeth, especially at the gums of my front bottom teeth. It would randomly just ‘click’ and all I could think of was the almost feel-good pain you feel when you brush your gums with a tooth brush. I couldn’t stop thinking about it till I physically brush my teeth, to the point of bleeding, then rinsed with mouth wash that contains alcohol. The pain from the alcohol is what finally got me to stop hyper-fixating. I always thought it had to do with me not taking care of my teeth that well normally that I would need to over compensate when I remembered. For years the feeling went away till I was younger in my career. One day that ‘click’ happened and for almost a week, it would take everything out of me to not brush my gums all day. At the end of it I had a panic attack. I suffer from high anxiety, which has caused a couple panic attacks since high school, and even adrenal failure. The hyper-fixation is just a warning sign. Now anytime I get the feeling of “pulling my teeth out” I know I have a serious issue I need to address concerning my anxiety.
I just wanted to lay around, turns out I had depression and I was low in iron.
"Feeling tired" IS a symptom enough to visit a doctor. Maybe it's depression, maybe it's iron deficiency, or sleep apnea, or fatty liver disease. Or maybe it's something more serious, or you just sleep too little at nights, but you can't know if you don't go.
Did you know bad spacial awareness and randomly talking in accents are signs of ADHD and not just being a weirdo? I know that now.
Being jumpy with horrible spacial awareness is not a very fun combination. Also, who else is just casually Irish and British accent sometimes? I like the voice feelings :D Edit; Spelling is a biatch :/
Ha, another one checks out for me. I even get lost all the time WHILE using GPS navigation
My whole life I thought I was just bad at exercise despite being a pretty thin person. I threw up almost every time I tried any sort of cardio. Had a free personal training session and they saw my “episode” (feel sick/lightheaded, throw up, sit/lay down, recover) and told me to go get checked out. Turns out I have autonomic dysfunction triggered by exercise and my blood pressure plummets dangerously low during.
Oh, you know, I always thought that my weird habit of obsessively counting things was just my unique charm. It turns out it was actually a symptom of OCD.
I do hope all these people saying that it 'turns out' they have OCD are receiving a medical diagnosis and not going off of what they see on TikTok. OCD is a **horrible** condition that ruins lives and also can make life for those around the person with OCD very difficult as well. It isn't about being overly tidy, insisting on things lining up, or counting a lot.
I was diagnosed with OCD about 30 years ago after suffering from it for 25 year. (Yup I'm old lol.) But I understand when people say "That my OCD". They may not understand but they mean no harm. It's like someone doing something really dumb and saying "I'm a moron". It may not be correct but I don't believe they are being unkind. Sometimes it's better to let harmless things go. Everyone makes mistakes.
Load More Replies...Blame Sesame street and the Count von Count for normalizing that sort of behavior...
It turns out the odd sleeping postures, learning to read a year early, having obsessions with things that led to me isolating myself for hours, being a complete shut-in, being a hypochondriac about bodily sensations and germs, anxiety about being late and following the rules, and getting really angry when my things were moved, not showering or brushing my teeth, getting constantly irritated by sounds in public places... and other such childhood issues were autism. Now I understand why I spent my entire teens and 20s obsessing and stressing over simple things and having to work up the courage to do things like talk to shop staff or use a credit card rather than cash to pay for things. I was chronically unemployed for 7 years because the idea of using a computer and making my home Wi-Fi potentially unsafe prevented me applying for anything. I had screaming panic attacks / tantrums if people ordered things online, and I wouldn't be able sleep for days. I've spent 5 years sleeping on the sofa and getting 3 hours a night because the "vibe" of my bed isn't right and makes me itchy. My parents suspected it for over a decade before they told me to get tested at 29.
Working up the courage to talk to people or make phone calls, that was one of the worst for me in my youth!
I usually don't say much on these because mental health issues vary drastically from person to person but this, outside of the unsafe Wi-Fi/online order concern, sounds a whole lot like me up until a few years ago when I started getting help
Hypnogogic hallucinations. For my entire life, I would hear things while I was trying to fall asleep. Anything from screaming to strange music to people talking in the next room. Over the years I just got used to it the best I could. When I started seeing a sleep doctor for my apnea, they were asking a lot of questions, and I mentioned this. It led to some other questions and tests, which led to a narcolepsy diagnosis. I don't have the classic presentation, but I have very disordered sleep/wake cycles. It was always bothersome. I never knew it actually *meant* anything.
Huh. I can't sleep with the tv on. My husband will watch tv in the basement after I've gone to bed. Sometimes it's too loud so I go downstairs and ask him to turn it down. Periodically, I hear what sounds like a German opera or a combat scene and find that the tv isn't even on. I figured it was a byproduct of tinnitus.
Sometimes this can happen as a result of indistinct sounds in a very specific volume range. In the shower (and pretty much only in the shower) I'll hear sounds which could be indistinct voices. My brain tries VERY hard to find a pattern in the noise of the shower.
Load More Replies...Hmm I have hallucinations like this, especially when really stressed out. Always wondered what caused them. I hear blood curdling screams, beeping noises, radios etc.
I don't like being told to do. I understand that most people don't but mine is extreme. Mine is so extreme that if I try to boss myself around I have to rebel against myself and not do it. Turns out I have Pathological Demand Avoidance. This stems from my ADHD but every task is an insurmountable chore because I feel such pressure to do it. Forcing myself to shower is the worst part of my day.
My brother had oppositional defiant disorder as a kid. Even as an adult he initially rebels against anyone telling him to do something.
Parents with children with pathological demand avoidance are usually at loss about what to do and how to raise their child who is wired to chronically disobey every command. Your kid doesn't want to raise from bed? No demanding for them to get up because then they definitely won't do it. The text book solution for this particular challenge would be 1) time and advance warnings for waking, 2) positive outcome from getting out of bed; e.g. a nice breakfast, and 3) praises and other positive rewards from wanted behaviour.
I think you're doing this wrong. I thought that the real solution was to just punish the adhd out of them?? /s
Load More Replies...I wonder if changing the language of their internal prompts would help this person? Changing from telling yourself "go take a shower." to "Would you like to take a shower?" or even "No showering this morning!" might make it easier to shower. I struggle with executive disfunction, and changing the internal directives to incorporate countdowns and third-person directions is helpful for some things.
I have adhd among other things and this is also something I struggle with, not as extreme as it was when I was younger but its definitely there
Being “double jointed.” Which isn’t a real thing, what I actually was (and still am) is a woman with Ehlers Danlos syndrome.
I’d have to say words over and over again because they “didn’t feel right coming out of my mouth” I would repeat a word out loud or under my breath until it “felt right.” I still rewrite notes many times because my handwriting was “not correct.” I skin pick so bad I’ll be bleeding and in pain but can’t stop because it’s not “smooth” yet, my fingers are always torn to shreds. I physically gag when articles of my clothing especially socks touch my skin and it doesn’t feel right. I’d check to make sure my alarm was on so many times I would go to sleep much later than I planned. I also count damn near everything. My family wasn’t believers in mental health.. at all. I went a long time thinking my actions and thoughts were normal. I was diagnosed with extreme OCD in my teens and I am now heavily medicated for it. I still have obsessions and compulsions but not as bad. I’m able to live somewhat of a normal life now. I still have episodes where it consumes me.
If you are still suffering. I understand because I have Paralyzing OCD. In my case no meds ever worked. Except one, Tramadol. It is a very unconventional therapy. I use it when I need to do something that the OCD would make impossible. It allows me to escape it's grasp for several hours. It works within an hour. My doctor is very progressive and I use it only in emergencies. Gave me a life again. Good luck.
I’d get weird sensations with some odd visuals as well, but nothing super disruptive and my doctor at the time wasn’t worried, and testing would have been really expensive and unpleasant. Turns out I’ve been having seizures for 5-6 years that have now gotten worse, and I need to figure out why ASAP. Don’t ignore neurological symptoms or let someone, including doctors, tell you they don’t matter.
Good for you keep going on at them it took me 4 years to be believed if u have someone in your life that can film it and also keep a diary help speed things up for me lots of meds to try so be picky and get the right ones for you. Hope you get some help soon stay strong epilepsy is no joke and life altering I really hope you get some good help
I noticed a blind spot in my left eye and originally thought it was related to driving toward the sun, kind of like when you look at a light bulb and a black negative image remains when you look away. It turns out I broke a blood vessel in the back of my eye due to job stress.
I had similar symptoms and had a optic nerve pit on my retina, leaking brain fluid. Was only picked up on my eye screening when I started school.
My "imaginary friend" that persisted long past childhood and remains with me to this day. Turns out it's DID.
Still a very controversial diagnosis amongst psychiatrists, but very popular amongst TikTokkers to self-diagnose, which could well be what 'turns out' means.
Load More Replies...Armchair psychologists will extrapolate everything they want out of a single sentence.
Load More Replies...I know two people with DID, and it amazes me how much misinformation there is about it. It's not just a quirky trait, it's a disability. Not saying this person is faking, but the way they worded it might spread misinformation
I have this... and sadly lost a few friends that claimed to have DID cause they would have Muti personality, as one would for when they were angry or happy or "crazy" and they would all talk and have their own lives... Not one of them had DID, so if they said something hateful they would say "Oh such and such just said their sorry" They don't realize that they we don't ... Take turns. they we are always here, some of them us know were like this,Think of it as 2 souls one body 24/7
I have always had flexible joints which has caused me problems since I was a child. I recently got diagnosed with ADHD and my doctor told me that there’s a high correlation between ADHD and hyper mobility syndrome and/or generalised joint hyper mobility. My flexibility was a hint that I didn’t realise was a hint until now.
Nah.... Not this kind... My hubby is a large man....6ft.... 200lbs..... Not in great shape.... But the boy bends like a gymnastics pro..... It's his extreme add ADHD
Load More Replies...i’ve got two my senior quote was “i need a nap.” i was the lazy one who was always tired. kind of a joke between my friends and i. got to college and it got worse despite the fact that i was sleeping more. turns out i have inappropriate sinus tachycardia (a form of dysautonomia) that causes fatigue and a bunch of other fun stuff that i thought was normal. second one, i’ve always had a lot of little quirks that i kept to myself, like the sound of a woman angrily yelling gibberish repeating in my head periodically. i always thought it was kinda funny. turns out my generalized anxiety disorder was actually OCD and it was just a really weird recurring intrusive thought.
I’ve never been able to burp Turns out that’s a medical condition called Retrograde Cricopharyngeus Dysfunction, or RCPD Only treatment is to get Botox injected into the Cricopharyngeus muscle in your throat Never knew why I get nausea all the time randomly thought I was just weird my whole life.
I would say the aches and pains I've had since I was a kid. When you're a woman, you're always told you have to deal with pains since it's a part of life. After an episode of Uveitis last year, that sped to a diagnosis of ankylosing spondylitis.
That is the most fake looking official name for a medical condotion I've ever seen.
Jesus my dad has this, that’s insane you went so long undiagnosed
Cravings to eat chalk, stone and dried mud for years. Turns out I was severely iron deficient. No urges for them now 🤢
There was a kid in my elementary school classes that ate pencils. I wonder?
my brothers friend does the same thing he just eats random things he has been diagnosed but still has weird cravings
Not understanding social cues. I could pick up on some, but it’s hard for me when someone is being sarcastic with a straight face because to me, they’re being serious about it. That and I usually rehearsed what I would like to say before making any calls. Apparently those, coupled with other stuff like my mental train is absolutely chaotic are actually ADD symptoms that was overlooked because I could get by ok in most settings. It’s a relief knowing that it’s not ‘just me’.
I feel like lots of adhd/add symptoms are ignored by others because adhd is "just not being able to focus" and "just a personality trait". Lots of symptoms of it can be disabling.
That grinding a barely passing grade in college, fueled by s**t tons of coffee and cigarettes to stay alert (almost between every damn lecture), wasn't just me being fundamentally lazy and unmotivated, despite loving my degree. It was full blown ADHD. Caffeine and nicotine were the pseudo-stimulants I unknowingly "self-medicated" with, until I was diagnosed with ADHD and given proper stimulant medication. Since getting on medication, I barely drink coffee nor smoke cigarettes anymore. Cravings are rare, and even in the event of a smoke relapse, the sensation of smoking a cig doesn't quite "fulfill a void" like it used to, nor does it make me want to go buy a pack and start again for good.
Once I got diagnosed and medicated I stopped wanting alcohol so much.
I didn’t crawl as a baby. Ever. I never learned how to crawl. At around 8 months old I could speak sentences while most other kids hadn’t said their first real word. I had a “strange stare”, (not my words) whatever that means. I was a very shy and lonesome kid with difficulty making friends. I was constantly dehydrated to some degree because I would often forget to drink. I had a strong resistance to cold temperatures. I just straight up refused to speak to anyone I didn’t like, even if they were talking to me. I was picky with eating. My parents didn’t think anything of it as I was academically talented and pretty smart for my age. Classmates treated me like disease even though I hadn’t done anything. At about 14 I was finally diagnosed with autism.
My son nevwr crawled either. He is autistic, diagnosed at 3. It's a very mild form of autism to the point that his doctor's can't really decide if he's autistic or not. I didn't realise this was an early indicator
My mum used to say at 3 I was doing 50-100 puzzles and knew colours like magenta, purple and silver when kids were still learning blue and lellow (yellow 😂) . No idea what happened I’m not overly smart now, I don’t think, I’m like maybe average or below average, academic wise. I like subjects that are not ‘normal’ to my more social popular friends like archaeology and anthropology. Unsure what the point of being a baby genius was if it didn’t go anywhere or progress as I grew 😂 when mum told me, I was like ‘well that was a pointless time in my life’ 😂
When I was younger I used to make a lot of sounds and stick my tongue out, and just randomly spit. Mum thought I was being a knob, got told I had tourrette's syndrome. Mad to think sometimes that I have it.
Misophonia, I was convinced I was just annoying by feeling bouts of stress and almost pain from certain noises. Turns out : Autism.
Feeling like I don’t have a body. Turns out I have Depersonalization-Derealization Disorder due to maladaptive coping from SEVERE childhood trauma.
I always had "weird knees" which I found out was Osgood-Schlatter disease. It's not too much of a problem, I just have very sensitive knees.
I had to look that up. "Osgood-Schlatter disease is a condition that causes pain and swelling below the knee joint, where the patellar tendon attaches to the top of the tibia. Osgood-Schlatter disease (OSD) is one of the most common causes of knee pain in adolescents. It's really not a disease, but an overuse injury."
I was 4..constantly sucking in my stomach..doctor told Dad it was just a bad habit..this was the 1970s. Numerous tics/ obsessions and compulsions later..years later...turns out I have OCD.
I assume that their psychiatrist knows better than you
Load More Replies...Sensory issues and selective mutism as a child were diagnosed as Generalized Anxiety Disorder when I was an adult. Guess who got diagnosed with autism at 36? Meeeee!!!
I would always sit with my legs in the shape of a W. Turns out that is also a sign of autism.
And terrible for your knees and hips. My niece used to do this and had early knee and hip pain that need physical therapy to correct.
Being unable to bite down on a piece of onion because the crunch bothers me unless it's cooked to the consistancy of mush, taking jokes a bit too literally, not understanding why a former friend never just told me her issues with me, being able to info dump about niche topics for an hour or more, insisting on sticking to my routine way of doing things even if they arent the most logical or efficient, isn't just a combo of ADHD and anxiety and depression. It's also autism. For someone who's suspected my dad is autistic as well, I was in denial of having AuADHD for a long a*s time.
Craving milk. Apparently it's an oddly common thing for folks with bipolar.
There is so much here of children being labelled as liars/disruptive and women as hysterical. Attitudes haven't changed much, have they??
Honestly, it's not just them. Doctors ignore what men complain about too. I complained to the new GP (my old one had retired) that I was feeling incredibly exhausted and every time I tried to exercise I was just wrecked for a few days. He palmed me off saying quite literally "you're fat and you need to exercise more". I told him I was well aware of how I should feel after exercise and this was different. But he wouldn't hear it. By dumb luck I saw a specialist a few weeks later about something unrelated and talked to him about it. He sent me for a blood test and turns out it was Ross River Virus. Which in rare cases causes over 6 months of joint pain and fatigue. YAY!
Load More Replies...I got a beautiful tan one year, and I had been losing weight. When my primary saw the tan and how much weight I lost since my last visit she took some blood and ran some tests. Turns out I have an autoimmune disease called Addison's disease (primary adrenal insufficiency). The tanning and severe weight loss were symptons and I am forever grateful to her for figuring it out! It can be fatal if untreated. JFK also had this disease.
My sister was the same....it was weird on her face it looked like she had a pregnancy mask and her doctor thought it was hormonal due to being perimenopause. They didn't diagnose her correctly for ages though because she also had a thyroid condition that was also undiagnosed and she put on weight so they didn't immediately jump to Addisons.
Load More Replies...I was considered a hypochondriac by my GP because I kept complaining of abdominal pain. I ended up reaching the point where I was unable to keep any food or drink down and lost enough weight to become a walking skeleton. Finally I was diagnosed with Crohn's disease, had surgery, and have now been in remission for a few years.
I had horrible headaches since the age of 12. My parents never cared about it. Last year it got really bad to the point I kept getting dizzy and almost falling over in the middle of the street, felt super weak and tired and even walking up the stairs I suddenly couldn't see the steps and would almost fall face first (and a bunch of other things). Finally went to the doctor but my mom kept talking over me and telling the doctor that I'm just a very anxious person blablabla, so the doctor didn't believe me and only scheduled blood work. A few weeks later I go back and the blood work was fine but I was still feeling horrible so the doctor told me she was scheduling an MRI just to "ease my mind" and she said it with a mocking tone like I was crazy. Turns out I was born with a Chiari Malformation. I'm now being medicated and have brain surgery scheduled a few months from now. Always trust your gut when you think something is wrong.
10 years ago I started to have headaches. First normal headache, later they are more often, stronger and in time it was one endless never ending MASSIVE HEADACHE. Near the end of this story I was actually screaming because of pain and i was exhausted. After a time I stopped taking pills because they didn't helped, but was making me sick. Every fücking doctor was like: "you have migranes. You will get use to it." no one saw anything wrong in MRI results either. Long story short.. Thank to my mother friends i got appointment with a proper MD. He was checking mri for maybe a second (no kidding) and said "tumor in the pituitary gland, no problem. We will cut it". And yea. It was no problem. As doctor said its one of the easiest brain surgery. :D it was a longest 6 months in my life. And I was lucky. Thanks to my mother friend I get the same day appointment. Without it, it will be months of waiting.
It bottle m boggles my mind that a doctor would say you'd "get used to" migraines. He or she obviously never had one. I've gone to the emergency room crying like a baby. You don't get used to that kind of pain.
Load More Replies...I always thought I am autistic to some degree. I am extremely asocial, I can't pick up any ques in social interactions, I tend to look cold and distant and show no feelings because I really don't know how to (except for crying and smiling), I have severe misophonia and people generally think I am weird although I don't know why. And I am hypochondriac and have weird attention to details. I actually asked a doctor once could I be autistic because that would explain a lot, but he refused to even talk about it saying that, and I quote (but don't agree with it at all): "autistic people can not function in society, and can't go to school, let alone finish college like you did". Now I don't know what to think.
Get a second opinion from a specialist psychiatrist. I had a doctor tell me there’s no way I’m autistic because I appeared to make eye contact over a Zoom call. Three years later I was diagnosed with autism and ADHD. The first doctor didn’t see it because of her misconceptions and the fact that she never actually spoke to me for longer than a half hour. She was “dose and ditch”, and missed a lot that way.
Load More Replies...All my weird and quirky traits seem to also be symptoms of adhd and autism. And since my daughter is like my little replica, I should probably figure out how to get her checked out. She was tested through her school and is dyslexic and has some type of attention problem so I could probably just do her Regular family dr. I guess?
Please do get her checked out! I remember walking home from 5th grade, crying because I think differently than other people. Sixty years ago nobody knew about ADD; I got diagnosed about 35 years ago as an adult.
Load More Replies...It turns out eggplant isn't supposed to be spicy and I have a mild intolerance to them and some other nightshades. I discovered this only a couple of years ago in my early 30s when I off-handedly mentioned the "good burn" they provided at a family dinner.
I get terrible migraines and after doing a food journal realized they were caused by nightshades. Bell peppers and eggplant are the worst triggers for me.
Load More Replies...My oldest son is autistic. He is highly functioning and doing great, he's 21 now. The doctor remarked that it was odd that no one had a history of autism in either of our families. Turns out I have ADHD, i wasn't diagnosed until I was 30 years old. Made a lot of things make sense.
For years I never liked doing the dishes, closing doors, hearing someone smack or chew loudly. I thought my hearing was just too sensitive. Later on it turns out I have misophonia. Sad thing is there's no cure or pill. The best treatment is have friends with good manners, ear buds/plugs, and stoneware (dull sound, sharp sounds literately hurt).
There is so much here of children being labelled as liars/disruptive and women as hysterical. Attitudes haven't changed much, have they??
Honestly, it's not just them. Doctors ignore what men complain about too. I complained to the new GP (my old one had retired) that I was feeling incredibly exhausted and every time I tried to exercise I was just wrecked for a few days. He palmed me off saying quite literally "you're fat and you need to exercise more". I told him I was well aware of how I should feel after exercise and this was different. But he wouldn't hear it. By dumb luck I saw a specialist a few weeks later about something unrelated and talked to him about it. He sent me for a blood test and turns out it was Ross River Virus. Which in rare cases causes over 6 months of joint pain and fatigue. YAY!
Load More Replies...I got a beautiful tan one year, and I had been losing weight. When my primary saw the tan and how much weight I lost since my last visit she took some blood and ran some tests. Turns out I have an autoimmune disease called Addison's disease (primary adrenal insufficiency). The tanning and severe weight loss were symptons and I am forever grateful to her for figuring it out! It can be fatal if untreated. JFK also had this disease.
My sister was the same....it was weird on her face it looked like she had a pregnancy mask and her doctor thought it was hormonal due to being perimenopause. They didn't diagnose her correctly for ages though because she also had a thyroid condition that was also undiagnosed and she put on weight so they didn't immediately jump to Addisons.
Load More Replies...I was considered a hypochondriac by my GP because I kept complaining of abdominal pain. I ended up reaching the point where I was unable to keep any food or drink down and lost enough weight to become a walking skeleton. Finally I was diagnosed with Crohn's disease, had surgery, and have now been in remission for a few years.
I had horrible headaches since the age of 12. My parents never cared about it. Last year it got really bad to the point I kept getting dizzy and almost falling over in the middle of the street, felt super weak and tired and even walking up the stairs I suddenly couldn't see the steps and would almost fall face first (and a bunch of other things). Finally went to the doctor but my mom kept talking over me and telling the doctor that I'm just a very anxious person blablabla, so the doctor didn't believe me and only scheduled blood work. A few weeks later I go back and the blood work was fine but I was still feeling horrible so the doctor told me she was scheduling an MRI just to "ease my mind" and she said it with a mocking tone like I was crazy. Turns out I was born with a Chiari Malformation. I'm now being medicated and have brain surgery scheduled a few months from now. Always trust your gut when you think something is wrong.
10 years ago I started to have headaches. First normal headache, later they are more often, stronger and in time it was one endless never ending MASSIVE HEADACHE. Near the end of this story I was actually screaming because of pain and i was exhausted. After a time I stopped taking pills because they didn't helped, but was making me sick. Every fücking doctor was like: "you have migranes. You will get use to it." no one saw anything wrong in MRI results either. Long story short.. Thank to my mother friends i got appointment with a proper MD. He was checking mri for maybe a second (no kidding) and said "tumor in the pituitary gland, no problem. We will cut it". And yea. It was no problem. As doctor said its one of the easiest brain surgery. :D it was a longest 6 months in my life. And I was lucky. Thanks to my mother friend I get the same day appointment. Without it, it will be months of waiting.
It bottle m boggles my mind that a doctor would say you'd "get used to" migraines. He or she obviously never had one. I've gone to the emergency room crying like a baby. You don't get used to that kind of pain.
Load More Replies...I always thought I am autistic to some degree. I am extremely asocial, I can't pick up any ques in social interactions, I tend to look cold and distant and show no feelings because I really don't know how to (except for crying and smiling), I have severe misophonia and people generally think I am weird although I don't know why. And I am hypochondriac and have weird attention to details. I actually asked a doctor once could I be autistic because that would explain a lot, but he refused to even talk about it saying that, and I quote (but don't agree with it at all): "autistic people can not function in society, and can't go to school, let alone finish college like you did". Now I don't know what to think.
Get a second opinion from a specialist psychiatrist. I had a doctor tell me there’s no way I’m autistic because I appeared to make eye contact over a Zoom call. Three years later I was diagnosed with autism and ADHD. The first doctor didn’t see it because of her misconceptions and the fact that she never actually spoke to me for longer than a half hour. She was “dose and ditch”, and missed a lot that way.
Load More Replies...All my weird and quirky traits seem to also be symptoms of adhd and autism. And since my daughter is like my little replica, I should probably figure out how to get her checked out. She was tested through her school and is dyslexic and has some type of attention problem so I could probably just do her Regular family dr. I guess?
Please do get her checked out! I remember walking home from 5th grade, crying because I think differently than other people. Sixty years ago nobody knew about ADD; I got diagnosed about 35 years ago as an adult.
Load More Replies...It turns out eggplant isn't supposed to be spicy and I have a mild intolerance to them and some other nightshades. I discovered this only a couple of years ago in my early 30s when I off-handedly mentioned the "good burn" they provided at a family dinner.
I get terrible migraines and after doing a food journal realized they were caused by nightshades. Bell peppers and eggplant are the worst triggers for me.
Load More Replies...My oldest son is autistic. He is highly functioning and doing great, he's 21 now. The doctor remarked that it was odd that no one had a history of autism in either of our families. Turns out I have ADHD, i wasn't diagnosed until I was 30 years old. Made a lot of things make sense.
For years I never liked doing the dishes, closing doors, hearing someone smack or chew loudly. I thought my hearing was just too sensitive. Later on it turns out I have misophonia. Sad thing is there's no cure or pill. The best treatment is have friends with good manners, ear buds/plugs, and stoneware (dull sound, sharp sounds literately hurt).
