30 Times People Didn’t Think Their Symptoms Were A Big Deal, But They Were

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30 Times People Didn’t Think Their Symptoms Were A Big Deal, But They Were A few weeks before my nineteenth birthday, I was sitting to the right of my mom. When I went to look at her, she pointed out that my left eye did not track with my right eye, which made it look like I had a lazy eye. The next day, after we had all laughed it off (because it did look quite goofy), my mom made an appointment with a neuro-opthalmologist. We went in on a busy Saturday and after he examined my eye, he requested that we make another appointment on a day when he would have more time to dedicate to me and the testing that would have to be done.

About two weeks later, my mother and I went to his other office and he examined my eye. He asked me if I had experienced any double-vision recently, and I realized I had. So, he explained the possible reasons for the eye (which he diagnosed as sixth cranial nerve palsy): it was an infection, or, in very rare cases, a brain tumor. He ordered a chest x-ray, blood work, and a head MRI.

The blood work and chest x-ray went well and nothing was found. Going into my MRI, my mother was optimistic, but I just had a feeling that the diagnosis was going to be bigger than a little infection. After the MRI, my mother and I got lunch and were high in spirits. When we returned home, I got to work on my classes (they were online- thanks, 2020). A few hours later, my mother ran into my room, very upset, and told me to come to the phone.

My doctor was on the other end. He told me that I had a mass in my brain that was pressing against my sixth cranial nerve. He suggested that it was a very rare form of bone cancer in my brain called chordoma that had grown on my skull base, in the middle of my head. I was diagnosed two days after my nineteenth birthday.

Since then, my diagnosis was confirmed and I had surgery to remove the tumor. I had many complications, like infections and brain fluid leaks, but I made it out. There was about 5–10% of the tumor left, so I underwent proton radiation therapy to kill the rest of the cancer. In a few weeks, I will have been in partial remission for a year :) I also had eye surgery about ten months ago to correct my eye, which was stuck looking inward since my first surgery. Since then, I’ve been dealing with a lot of other issues because of my tumor and treatment, like chronic nerve damage/pain, Hashimoto’s disease and hypothyroidism, but I have a wonderful team of doctors who have provided me with great treatments.

I was a freshman in college when I was diagnosed, and now I’m going to be a junior. I’m studying psychology and music, and I participate in my college’s choirs, theatre productions, and student life team. In the future, I’m hoping to get my Master’s degree in mental health counseling and work as a therapist for adolescents and young adults with disabilities, rare disease, and cancer. I would also love to perform professionally in my city’s symphony orchestra/choir and maybe even audition for America’s Got Talent.

I thank the Lord for all that he has done for me