Hey Pandas! What Medical Condition Do You Have And How Does It Impact Your Life? (Closed)

What medical condition do you have? How does it impact your life (positivity or negatively?) how do you live with it? How do you cope with it?

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I have a couple. Most prominent is Ichthyosis Vulgaris. It's gotten a bit better in my adult years.

Some commercials and shows/movies show people just coming out of the shower, dry off, get dressed and go. Anyone with this skin disorder is in disbelief at this routine. We have to blot dry off, or not even dry off yet, and then slather on creams or lotions.

Baths are not tranquil, relaxing soaks. Baths are taken when I feel like it's time for a soak to loosen the layers of dead, built up skin with a pumice stone, foot file, loofa, anything that works.

To get my feet soft-ish, I need a foot razor, that cheese grater type of file and a foot file. It takes an hour to do each foot.

My face flakes around my nose and eyebrows. Some kids at school created a rumor I did drugs or something. I didn't get why until I saw a movie with a coke sniffing reference. My facials can be intense. I do sometimes use a sugar scrub. Those apricot scrubs do nothing but make my face flakier and bumpy.

I itch and scratch more than I realize, I'm sure. I never feel comfortable in my skin, literally.

When it's been humid out and hot, I get really itchy and my skin bunches up in little rolls as I scratch. I can't help it.

The sun on a dry hot day feels like little pin pricks all over, like I can feel all those ions emitted from the sun shooting into me.

I burn easily, even with a high spf. Tanning looks weird. You can make out all the scales on my legs. It looks blotchy and dirty.

Going to the hair salon is a real treat. Apparently I should try tea tree products.
I'm currently trying to find a hair stylist who's aware and experienced with clients with skin disorders, because none, so far, has really understood that hair care is different than those with normal skin. Skin disorders affect how the hair grows and the condition. The skin on the scalp tends to be the worse and hardest to treat. You can't just slather lotion on your scalp with hair in the way. If I cut it all off, trust me, I would look like Danny DeVito. I think I do okay. I do have to shampoo my hair a bit more frequently. I used to have weekly hair washes but that didn't do anything but make my hair greasy and scalp flaky and oily. Washing with just conditioner.... where do I start with that. Conditioner doesn't rid your head of oils. It adds to it. Dry shampoo.... on very scaly, flaky scalp... not going there. I've tried anti-dandruff shampoos. Once you stop using it the problem is way worse and I was still picking pieces of skin off my scalp.

Moving onto work. There are jobs I'll never be able to do due to skin irritants and soap. Hand sanitizers are hell and for some reason, some places I went to during the pandemic made me take off my non-latex gloves to put their hand sanitizers on my skin and wouldn't allow me to just sanitize my gloves. I told them I cannot do that and if there was place I can just wash my hands with soap and water. Some places had terrible quality hand sanitizers that made me break out in painful, itchy hives right away, and smelled to high heaven. (ok, ok rant over)
Anyways, my province doesn't recognize skin disorders as part of the disabilities rights, so I can basically be fired if anyone has an issue with what my skin looks like or if I can't do a task. The province next over does. No fair.

I have a latex allergy that causes inflammation in my hands.
Ver dry, cold environments make my hands crack and bleed.
I have hyperlinear lines that make my hands look much older than I am, and it's been that way since birth.

Hey Pandas! What Medical Condition Do You Have And How Does It Impact Your Life? (Closed)

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