I’ve Been Suffering From DPDR For Over 3 Years Now, And I Want People To Know What It’s Like (10 Comics)
Hi fellas… My name is Lulu, I am from Switzerland, and I am turning 26 this year. I’ve been suffering from DPDR (depersonalization/derealisation disorder) for a little over three years. I was diagnosed with this mental illness around two years ago. DPDR is not very well known because it’s weird and hard to describe mental disorders, and people often suffer in silence.
DPDR can be a diagnosis on its own, but in often cases, it‘s also a symptom of other mental problems such as anxiety, dissociative disorders, etc… It‘s often caused by smoking weed, trauma, and other things.
For me, DPDR is a 24/7 thing. For the first year, I suffered in silence and was unable to do anything for my mental health. I could not describe what I was going through… People who don’t have this disorder often just don’t understand.
So I made these relatable comics for all of you who suffer from this rare disorder, or maybe feel strange and can’t explain why, and for friends and family members who don’t have it to get a better understanding.
All of these illustrations may look cute, and everything does not really sound terrible, but let me tell you – DPDR and all the everyday problems that come with it is hell, and I would never wish this on my worst enemy!
I hope my comics help someone out there!
More info: Instagram
Strange me in a strange world
Spacing out
Vision problems
Disconnected
Is this really me?
Who are you?
Thoughts
Fear
Past
Locked…
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Share on Facebookthis is so off topic lol but i noticed your name is neferpitou and you're on an article with a cartoon girl that looks exactly like komugi. the irony is real
Load More Replies...Hi Lulu! I have DPDR moments occasionally, with that disengaged, dream-like quality you describe. It's actually a relief to know it has a name. Your comics are very informative, and I love your art style! So glad you posted here, and I hope that you'll be able to "re-personalize." (Also, everyone should have a Totoro blanket!)
thank u so much i am glad u like it and its a lil relief for you
Load More Replies...Thank you for sharing! Been experiencing derealisation for over 2 years & I haven't been able have someone understand it, other than people on the internet. Some days it absorbs me and I find myself obsessing over what it is, why it is, and how to fix it (is it congestion in the ears, nose, and throat? or the start of MS/dimensia? is it something in my diet?). It's hard to accept that one day I popped into this and I'll never pop back out... I try to stay busy enough so I don't have a free moment to have it surface... those are the good days. I try to make the most of it - came across a few articles on how it's kind of like a dark version of enlightenment, and a bit of a gift in that sense.
Thank you for this clear and precise description. It is not easy to share our personal struggles with the world. By sharing, you helped others to know that they are not the only ones surviving with mental illness. By sharing your struggles, and naming your illness, you are helping to destigmatize mental illness.
While I've only experienced it very minimally a handful of times, my girlfriend (soon to be fiancé....don't tell her, please) had spent a number of years, prior to when we had met, suffering with this exact thing, and with it being coupled with PTSD, it led to a nearly complete dissociation disorder. It has taken many years of careful therapy, prayer, and love, but she's very nearly completely normal, and while she still has her moments, I'll hold her and tell her "Breathe slow deep breaths, blank your thoughts, and focus on me....I promise that this moment is real, you're real, I'm real, and I've got you and God's got us." It seems (according to her therapist) that this method works better than 6 months of sessions, and doesn't want me to ever leave her (like that would ever happen).
That is so nice to read. I'm glad things have improved for her - and you. I wish you both all the best for your future.
Load More Replies...I used to experience that for years when I was in my teens. My therapist didn't even know about it. I could only afford a counselor though, so that may be why. People would tell me they felt that way too, but I was always doubtful. What helped me was dealing with the root of it, which I think had a lot to do with my OCD and anxiety. I still deal with those two, but manage it better, and DP/DR seems to have gone almost all away for more than a decade. I have had a few hiccups, but instead of going down the rabbithole, they pass, and they are not as intense. Sometimes, when I get wrapped up into my current issues, I forget that it can be a whole lot worse. This doesn't have to be a permanent state. I'm no mental health professional, and I really am not totally sure if I am right in my assessment of how I overcame it, but the fact is, I did, aside from the rare minor hiccups of it in the last like 15 years. Wow, I counted, and it's been that long.
As someone who actually has this. Thank you. I'll just show this to everyone whenever I tell them I have DPDR. Thank you. Thank you. Thank you.
This is the first time I've ever seen information about depersonalization/derealization shared publicly. The world needs to know this.
Wow. Ok, this is me. I've always felt like I'm watching myself talk instead of of actually doing anything myself.
I know, right? Sometimes, especially when I am stressed, I say something and then keep on listening for what comes next! I am waiting to hear what I say... It is terribly weird and takes effort to "jump back".
Load More Replies...DP/DR is, in the vast majority of cases, nothing more than a symptom of anxiety. The problem is the sensation of DP/DR is so scary that sufferers (including myself once) start to worry about the sensations and get stuck thinking about how to cure themselves 100% of the time. All this does is feed the anxiety and therefore the DP/DR stays around. Anti anxiety medication can help, but ultimately the sufferer needs to start accepting the sensations for what they are and slowly the fear will fade and the sensations will fade. Personally I found CBT therapy very useful in helping me come of this horror as it showed me where it comes from and why I felt like I did. It also helps to find the root cause of the anxiety (if not already known) and start to act to address that.
Thank you!! All I’ve ever been diagnosed with is anxiety and depression and when the “depression” flares I feel a lot like you described. But since I only knew the flare as being “depression” those around me couldn’t understand that this is different than feeling sad and it may have no discernible event to originate from.
I think it's important to point out that it is completely "normal" for someone to experience moments in their life with the following symptoms (this goes for most mental/mood disorders) A true diagnosis is determined when the symptoms are persistent over a long period or when there is no relief at all.
right... i shared this because i am actually suffering 24/7 since over 3 years
Load More Replies...JSmith, I sincerely hope that those in your family who have mental illness are able to find love and support from someone else, because it's clearly not coming from you. Cavities and gingivitis are not made up illnesses . Nearsightedness and glaucoma are not made up illnesses. Breast cancer and appendicitis are not made up illnesses. Mental health diagnoses are not made up illnesses.
Don't try to explain. He just won't listen. Some people are sooo inferior that they need to degrade others to feel a little better instead if a piece of sh*t. Don't waste your time or your energy explaining or downvoting. Just ignore him, and in due time he'll get bored and go away. He is a friendless person, bitter and mean, who has no other way to attract a little attention.
Load More Replies...I need to show this to my friend. From her descriptions it sounds like what she goes through this as well. I’m sure I don’t have to tell you to ignore the jerks who think everyone is perfectly healthy, we are all just making up illnesses in order to get attention, get out of work, stay in bed etc.. “lets just pull ourselves up by the bootstraps and stop whining...” as you do a good job shutting them down. But we see it. We witness their attempts to harm others. I refer to them as “The Temporarily Healthy”. Because something, at some time in their life WILL take them down a notch or thousand. Thanks for explaining a complex and frustrating illness for those who have never heard of it and for being supportive for those who suffer in silence and confusion. Good job.
thx a lot 😊 if she needs someone to talk dm me on instagram
Load More Replies...got a suggestion: get off your butt and take a walk. Look at some birds. Get out of your head; it's not a healthy place to be. but for the goddess' sake, don't go scurrying off to some doctor for more meds. Radical self-reliance will get your further. i've had a career-ending stroke, cancer and other diagnoses but wouldn't see a doctor if you paid m,e.
well i guess going out for a walk is the first thing to do and it helps as much as it helps. i walk since 3 years and its not getting any better! this has nothing to do or cant be fixed with just get off your but otherwise i wont have it😂 but yeah medication is not an option for me.
Load More Replies...I've had symptoms of this when I was younger, I never knew other people experienced it! I'm glad you've made comics about it to help people understand. :)
So THAT'S what that is. I used to have brief episodes of that when I was a kid, particularly if I stared at my hands for too long. Interesting.
I've had episodes during my teens, especially after an intense migraine. These usually lasted up to three days and were horrible! I often pinched myself or bit my lips to "bring myself back" from that spaced out feeling. Funnily enough those were my most creative moments. Episodes have stopped since I hit my 20s. Keep drawing and I hope you get through!
I used to have this, and it turned out to be caused by Temporal Lobe Epilepsy (TLE). The partial seizures associated with it have no outward physical manifestation, and are really really hard to describe, but symptoms like these can be typical. Once I started on anti-seizure meds they went away. I hadn't realised how many other things it was affecting too - I was suddenly less anxious and overwhelmed, it was like an actual physical weight I didn't know was there was lifted off me. I was very lucky that the therapist I was seeing was familiar with it and eventually managed to identify it might be the issue. It's not something a lot of people know about or would consider. If anyone is experiencing this and are having trouble tying it down to a particular mental illness it might be worth looking up TLE and speaking to a neurologist.
thanks for sharing your story! thats absolutly right, dpdr isnt only a symtome of a mental disorder there are also things like you have that can cause that.
Load More Replies...When I looked at the picture with a person inside a creepy eye, I thought it was about seeing faces/eyes everywhere and in everything. This is what happens to me, especially when it's dark. I used to have panic attacks when I was younger, for example when I was alone in a room with a convex glass sideboard and I was sure all those faces I saw there were going to kill me. Paintings also wanted to destroy me. It was awful. It's better now as long as I don't watch or read anything creepy. I'm sorry for your condition, it seems so exhausting... I just wanted to say I know anxiety and panic attacks are awful. I hope it gets better with time! <3
I had this for years, decades. At first it was a feeling like I was behind a glass wall and I couldn't touch other people (I couldn't connect) and that was the start of it. I was in my early 20s. It then progressed to becoming severely depersonalised in response to stress. At one point, becoming so bad my body became numb and I could not feel myself peeing whilst in the bathroom. Because I couldn't feel myself, I worried I was talking and not knowing it. I had a lot of therapy through out the years, and tried a lot of medication. Eventually, I discovered things about myself that helped me, that kept me connected to myself instead of fleeing or breaking that connection to avoid being present because I felt it was too dangerous to be present. I also found a medication that helped, a career that helped, a very good counselor, I came out to myself in various ways, dealt with a lot of trauma, learned new coping mechanisms with did take decades.
The last time I had to deal with dissociation was five years ago, after re-immersion back into my own culture after living away 5000 miles for 12 years and never visiting. It wasn't distressing this time as I was fully prepared for it and I found it more interesting than dismaying - I knew it wasn't going to last. That helped. It took about 3 months to fully disappear again. When I experienced the first half of this there was no name for it. Thanks to all the help I got, and the professionals who understood me, and my friends not minding, and doing very, very hard work, I am connected. So, there is hope. Depersonalisation and dissociation was the only way I could cope with the severe abuse (leave, internally) when I was a kid. So I learned to undo it. Some people weren't patient. I had to learn boundaries to keep those folks at an emotional & physical distance in a different way. Once I got that down, it got easier. Much care to those struggling with it
Load More Replies...All these years I've just called it my "here but not here" feeling. I can behave as if nothing unusual is going on, but that I'm really "out there" somewhere. Thank you for revealing the name for that. It's as much a relief as when I first got a name for my compulsions - OCD.
I have felt this way once when I stayed on for more then twenty four hours. I have never felt that way before, but it was like things were fuzzy and I couldn't completely keep up with conversations and got suprised when I found out I was talking. Probably completely different thing, but that's what this comic reminded me of.
Only 24 hours?? I have tinitus - therefore insomnia. I once went over 80 hours without sleep. Thought I was going insane. Still cannot sleep without pharmaceutical assistance
Load More Replies...Lulu, When it first came on 7 years ago, I too had both DP/DR and it was so scary! Currently I only have the Derealization and it is constant. I suffered in silence for years because I had seen three medical doctors and they did all kinds of expensive brain tests/scans/labs and it was a "normal". I finally saw a psychologist and was diagnosed with derealization associated with PTSD. You mean I'm not crazy and there are others going through this exact thing?! I was so relieved! Thank you for sharing your comics and for bringing light on a not well known disorder! Also, recently I had the realization that if the DP/DR is my body's reaction to stress, why am I wanting it to go away so badly? So I have now learned to cope by ignoring it under normal conditions and then relishing in it in stressful times. I am so much happier now! I have sang and spoken in front of crowds of people that way- I would never had done that before! I hope this helps ♥️ ((hugs))
This is really useful for myself, actually. I find it so difficult to explain what it feels like to have DPDR and it's really nice to see it put into simpler terms. I chuckled when I read "I can't look at you your face is too strange", cos that literally happens to me all the time! Thanks for this comic, it's lovely. xx
I was diagnosed with Bipolar II just over a year and a half ago, but I think the diagnoses was a bit off.. This seems more like what I experience... I mostly feel like I am watching myself or listening to things I say to people. Especially when I need to say smart things(I work in the medical field). It's like I am talking, but I don't know where the words are coming from. And then people be like 'oh, you are so smart!' and I know I'm really not. That was not me speaking.... Now I feel weird for saying that... But that staring through glass thing, that s**t's real. Especially when I'm surrounded by lots of people. I feel like I'm in a glass box. I can't hear them.. Well, I can, but I can't. I respond, but it's not me. Oh God, there I go again......
A motivating discussion is definitely worth comment. I think that you need to write more on this subject, it may not be a taboo matter but usually people don't talk about these subjects. To the next! Many thanks!!
These comics are exactly how I feel...difference is I thought it was normal!
I didnt know such conditions existing until I read your post. I would take it as you have higher consciousness compared to other people. In fact, we dont even know the purpose of this body, etc. Please take it positively and make use of the conditions. There are plenty of uncommon things around us but those do not mean negative conditions.
I suffered from this for a few months about 30 years ago. In retrospect, I believe that it was a symptom of generalized anxiety. Since I did not understand it, it brought on more anxiety and the cycle seemed endless. I thought I was going insane. Then, it stopped, probably when I made some changes in my life that helped alleviate my anxiety, and never came back. I remember vividly the struggle, though, and I can only wish all the sufferers out there to be able to get rid of those nasty episodes. Hang in there!
I am an art therapy student and I find your work amazing, Lulu. Most of the people know nothing about this disorder, and that's why it is so important to talk about it. Knowledge is the first step towards understanding. A better knowledge can bring us to a better understanding of ourselves and can help the people around us to understand us more and more. So, for all of you, that are suffering from this every day: please don't hide, and don't be afraid of sharing your feelings with the people you love. I am sure that this disorder can be treated too. If you have been in therapy for years and you didn't get better, just change therapist or approach, but don't give up! You just have to find what it works for you! I suggest to all the people that are looking for help, to watch this video: https://www.youtube.com/watch?v=H564Dmsksz0
I've told people about feeling as if I'm mentally a foot in front of my body. I'm so grateful for your post. Speaking up means others like myself feel less alone.
This is so strange, I have this feelings many times.Especially being suddenly afraid of my hands or legs if they "appear" next to me because I don't recognize them or not really recognizing people/myself. When I look directly into the mirror (eyecontact) I feel as if someone is wearing my face in disguise from the other side, so I try to focus on the small things (hair, mouth) with a fast glance. Or I lie beneath my husband and he somehow seems "not right" so I have to get up and leave the room. This is really ringing a bell. But I am very used to it (when I was younger I feared something was wrong with me but was too ashamed to talk about it). I don't know if I fall into this category but it is sure nice to read about someone experiencing the same feelings/thoughts!
I wonder if my daughter who has suffered multiple concussions has this going on. She also smokes too much weed to help her cope - she doesn't feel like she's living in reality unless she's smoking because that helps her feel real. I should mention this to her and see if she feels other ways you've described. I know I get a lot of these feels on the regular too. But I'm an over tired mom of 4 teens who hasn't had a decent sleep in 20 years. I know why I feel like this, spaced out, dreamworld around me.... Thank you for sharing! Your art is so cute!
Oh man... I didn't know this was a thing. I thought I was alone in this, as I've never met anyone who feels the same way. I experience this about 24/7, and it's nice to know that I'm not alone.
This happened dramatically for me when I was 13 years old. I remember the fear and confusion, that everyone and everything lost its reality. This state has constantly persisted and sent me on a deep spiritual search for who (or what) I truly am.
Just a question out of curiosity, do those of you who have DPDR feel trapped in your current lifestyles as well? I understand the notion of feeling like a passenger in your own body, but I'm referring more to your geography, job, friendgroups, etc. Do you feel as if these things are more just "going through the motions" or can you still feel passion in work, hobby, et al?
me personally i dont feel like very trapped when it becomes to ny lifestyle tbh... and i have a lot of passion when it becomes to art. art and drawin helps me alot because kind of distraction me and dissociate me but in a different way that dpdr does
Load More Replies...I've been experiencing this for months. I want to sign-up and there's the "i'm not a robot" verification thing, like, how dare you😃😃
It’s crazy how we do not know each other, and you have been able to explain and express the very experiences I go threw. Thankyou for this❣️
First of all, LOTS AND LOTS AND LOTSSSS of Love and Care to you, and all other friends who are also suffering from this. Going through this myself, I know how scary and weird experience this is, probably scariest of my life till now. I hope we all take care of ourselves and gain strength to cope up with this. It confuses me so much!! Sometimes I also feel helpless. Much love❤️❤️
I just discovered the term Derealization today. I've been living with this nonstop for the past 4 years and did not know what to call it. I tried describing it as seeing the world through the perspective of playing a VR game. Everything is only as real as it is within the game, but even so, the existence of the things themselves feel strange. It's a very Meta way to perceive reality.
Okay this is weird but I found your thing on Exploding head syndrome when I was looking up more online to see what even causes it. It's so hard to explain to people and they just think your nuts or paranoid. Then I saw this one and figured I'd read it too because I liked the drawings, had no clue what it was til I read it and thought woah. Okay. Yes. I know all of these feelings too. I dident know there was a name for it besides just kinda.. dissociation. Now I'm just stumped wondering if they go hand in hand or something.
this is so validating... it so accurately describes what i’ve felt 24/7 for years. thank you so, so much.
Hi Lulu! I suffered both DP/DR when it first came on me 7 yrs ago, but currently only have the Derealization. I have it constantly too and I also thought I was going crazy for years because I had went to three different medical doctors and they ran all kinds of expensive tests that came up normal. I finally saw a psychologist two years ago and she diagnosed me. It was a huge relief- I'm not crazy and there are others like me?! Thank you for sharing your comics and for bringing light to a disorder so unknown! Also, recently I had the realization of the fact that DP/DR is my body's reaction to stress (I have PTSD) so why am I wishing so hard for it to go away? Now I have learned to instead cope with it and ignore it in normal situations and to relish in it for stressful situations. I am much happier now. I hope this helps ❤️ ((hugs))
I think I'm gonna kill myself. I've been experiencing it for more than 2 years and I just don't wanna feel this anymore. I feel like I'm crazy, like I'm in a dream and can't wake up. Why should I continue live, when I suffer from this every day. I think there is no way for me to recover from it. I'm pretty sure about that. Im going to a therapist for over a year now, but nobody can help me...
feel free to write me a dm on instagram i was at the same point as you if you need someone to talk i am here
Load More Replies...I read this article with interest, the symptoms look awful for those who suffer from it. Is there much help out in the 'real world's for this illness? I can honestly say I have never heard of this particular type of dis-association before but it's a brave thing your doing! Thank you for enlightening me
Hi Lulu (and anyone else on here with this issue), I have been experiencing DPDR full time for almost 30 years. I know the first few years are really hard, but please know that it gets much, much better to deal with, as you start to understand that this is more like a "shield" your mind has created to protect you from life's stresses. It will not get worse. You will not lose your mind. You will start to feel comforted by it, I promise. I have led a full life. I have a happy marriage and wonderful children and am involved in many activities. DPDR will not hold you back, unless you let it...so do not! And it is far more common than you realize. As you have said, it is just difficult to describe, without others jumping to overly-dramatic conclusions. Good for you for talking about it!! (And thank you!) Lastly, watch the movie "Numb", which stars Matthew Perry. It is a true story about the movie's director, who has DPDR 24/7 as well. It is very uplifting!
Hi Lulu, I am super grateful that I can message you. I also used to have terrible depersonalization and disassociation symptoms and panic attacks where the feelings of unreality and impending insanity would accelerate until I became terrified. It's interesting because you wrote how marijuana would increase the symptoms, and I found that when I smoked it, it would make the depersonalization extremely strong to the point where I felt like I was floating feet above my head and looking down a tunnel to my body walking around on autopilot down below me, and it was horrible. But by forcing myself to smoke medical marijuana legally, with a trusted friend: I actually was able to heal my fear and panic by getting myself acclimated to those sensations. I learned reassure myself that I wasn't about to die, and wasn't about to go crazy, and just observe the sensations of floating above myself and how it felt, and eventual learn to enjoy them. Without fear I felt grounded and 'real' again
I have spent years with these symptoms. They never abate, and require no trigger. While I have never really had difficulty articulating my experience, I wonder if people believe me. I know how lucid and quick-witted I sound when I speak. I know that I am in a perpetual state of hyper-vigilance, perhaps to compensate for what I perceive to be weakness. I am open and forthcoming with most everything, and have had absolutely no luck with therapy, save for some weapons-grade medication. I've no history of trauma to speak of, a supportive family and partner, and a job I don't hate. So why do I feel this way? Will it ever go away? I'm done with this.
Lulu, I sincerely feel bad for you and others in this or other, I wonder if there is enough research for all mental issues, it must be extremely difficult for you, have you been on medication ? I pray a doctor will find medication to help. !!!
wow,i am living like this for 5 years now, i deal with depression too and the dpdr came after.its realy strange the all time felling that you dont belong anywere and everything is unreal.Thanks for sharing,say hi to Brazillll
I've had tiny episodes but only when I really zone out. Just be so annoying all the time.
I LOVE YOUR NO FACE HAIR CLIPS! ARE THEY REAL? IF SO WHERE CAN I GET THEM?
I had this after giving birth to my first child. I felt exactly this way for one day. I laid in my bed and this feeling got so strong that I instantly had the wish to go through the flat and into the kitchen to do something normal and to remember this way who I am. At least I didn't eat enough and my sugar wasn't high enough. As my husband brought me something to eat, and I've eaten it so fastly in a way i also got the feeling I stood beside myself, it stopped five minutes later.
Sorry, not english mothertongue, is this like the patology like I don't recognize myself in the mirror so I go down heavy on estetic surgery trying to match the two visions (normally that never happens because what I see is different from what I get) ?
no problem... no that mirror thing has nothing to do with gender or trying to change that. you just canz recognize yourself. if you look in the mirror you dont really think thats you .
Load More Replies...I'm grateful to the author for raising the awareness (mine at least!) about the condition. I never heard about this kind of disorder. Though, come to think of it, I do experience some kind of depersonalization when drinking alcohol, but I always thought it's just my sober inner auto pilot doing all the navigation of my drunk body =) I cannot imagine how strange it must feel to be 'inside' like that all the time...
glad it helped you for a better understanding😊💕
Load More Replies......."It's often caused by smoking weed." WTF?! Then STOP smoking it! (Not that I'm against smoking pot), but if it's causing you to feel DPDR, then STOP smoking it! And by god, whatever you do, don't take any LSD either, or you really will feel you are depersonalized. If you can't handle the fun, stay away from it. I've read up on DPDR and it is a mental problem. In fact, a lot of medical journals have numerous articles by doctors who believe it is just an attention-seeking type of personality disorder. It is NOT triggered by trauma, like a PTSD, but more of an individualistic personality disorder brought on by the desire to acquire attention from others. A sort of "look at me, woe is me, feel bad for me, lavish attention on me" type of disorder.
Dissociative disorders and personality disorders are both caused by extended trauma, in childhood, when the personality is still developing. There is no proven causative link between cannabis and mental illness, it's much more likely that the link is there due to cannabis alleviating the symptoms of mental illness. Works for me and my personality disorder. Which by the way is s serious, often fatal illness that you should never joke about.
Load More Replies...I have felt exactly that for a few hours then the LSD wore off. She described tripping . Sorry she feels like this all the time
i never had lsd but it actually really feel kind of a trip!
Load More Replies...this is so off topic lol but i noticed your name is neferpitou and you're on an article with a cartoon girl that looks exactly like komugi. the irony is real
Load More Replies...Hi Lulu! I have DPDR moments occasionally, with that disengaged, dream-like quality you describe. It's actually a relief to know it has a name. Your comics are very informative, and I love your art style! So glad you posted here, and I hope that you'll be able to "re-personalize." (Also, everyone should have a Totoro blanket!)
thank u so much i am glad u like it and its a lil relief for you
Load More Replies...Thank you for sharing! Been experiencing derealisation for over 2 years & I haven't been able have someone understand it, other than people on the internet. Some days it absorbs me and I find myself obsessing over what it is, why it is, and how to fix it (is it congestion in the ears, nose, and throat? or the start of MS/dimensia? is it something in my diet?). It's hard to accept that one day I popped into this and I'll never pop back out... I try to stay busy enough so I don't have a free moment to have it surface... those are the good days. I try to make the most of it - came across a few articles on how it's kind of like a dark version of enlightenment, and a bit of a gift in that sense.
Thank you for this clear and precise description. It is not easy to share our personal struggles with the world. By sharing, you helped others to know that they are not the only ones surviving with mental illness. By sharing your struggles, and naming your illness, you are helping to destigmatize mental illness.
While I've only experienced it very minimally a handful of times, my girlfriend (soon to be fiancé....don't tell her, please) had spent a number of years, prior to when we had met, suffering with this exact thing, and with it being coupled with PTSD, it led to a nearly complete dissociation disorder. It has taken many years of careful therapy, prayer, and love, but she's very nearly completely normal, and while she still has her moments, I'll hold her and tell her "Breathe slow deep breaths, blank your thoughts, and focus on me....I promise that this moment is real, you're real, I'm real, and I've got you and God's got us." It seems (according to her therapist) that this method works better than 6 months of sessions, and doesn't want me to ever leave her (like that would ever happen).
That is so nice to read. I'm glad things have improved for her - and you. I wish you both all the best for your future.
Load More Replies...I used to experience that for years when I was in my teens. My therapist didn't even know about it. I could only afford a counselor though, so that may be why. People would tell me they felt that way too, but I was always doubtful. What helped me was dealing with the root of it, which I think had a lot to do with my OCD and anxiety. I still deal with those two, but manage it better, and DP/DR seems to have gone almost all away for more than a decade. I have had a few hiccups, but instead of going down the rabbithole, they pass, and they are not as intense. Sometimes, when I get wrapped up into my current issues, I forget that it can be a whole lot worse. This doesn't have to be a permanent state. I'm no mental health professional, and I really am not totally sure if I am right in my assessment of how I overcame it, but the fact is, I did, aside from the rare minor hiccups of it in the last like 15 years. Wow, I counted, and it's been that long.
As someone who actually has this. Thank you. I'll just show this to everyone whenever I tell them I have DPDR. Thank you. Thank you. Thank you.
This is the first time I've ever seen information about depersonalization/derealization shared publicly. The world needs to know this.
Wow. Ok, this is me. I've always felt like I'm watching myself talk instead of of actually doing anything myself.
I know, right? Sometimes, especially when I am stressed, I say something and then keep on listening for what comes next! I am waiting to hear what I say... It is terribly weird and takes effort to "jump back".
Load More Replies...DP/DR is, in the vast majority of cases, nothing more than a symptom of anxiety. The problem is the sensation of DP/DR is so scary that sufferers (including myself once) start to worry about the sensations and get stuck thinking about how to cure themselves 100% of the time. All this does is feed the anxiety and therefore the DP/DR stays around. Anti anxiety medication can help, but ultimately the sufferer needs to start accepting the sensations for what they are and slowly the fear will fade and the sensations will fade. Personally I found CBT therapy very useful in helping me come of this horror as it showed me where it comes from and why I felt like I did. It also helps to find the root cause of the anxiety (if not already known) and start to act to address that.
Thank you!! All I’ve ever been diagnosed with is anxiety and depression and when the “depression” flares I feel a lot like you described. But since I only knew the flare as being “depression” those around me couldn’t understand that this is different than feeling sad and it may have no discernible event to originate from.
I think it's important to point out that it is completely "normal" for someone to experience moments in their life with the following symptoms (this goes for most mental/mood disorders) A true diagnosis is determined when the symptoms are persistent over a long period or when there is no relief at all.
right... i shared this because i am actually suffering 24/7 since over 3 years
Load More Replies...JSmith, I sincerely hope that those in your family who have mental illness are able to find love and support from someone else, because it's clearly not coming from you. Cavities and gingivitis are not made up illnesses . Nearsightedness and glaucoma are not made up illnesses. Breast cancer and appendicitis are not made up illnesses. Mental health diagnoses are not made up illnesses.
Don't try to explain. He just won't listen. Some people are sooo inferior that they need to degrade others to feel a little better instead if a piece of sh*t. Don't waste your time or your energy explaining or downvoting. Just ignore him, and in due time he'll get bored and go away. He is a friendless person, bitter and mean, who has no other way to attract a little attention.
Load More Replies...I need to show this to my friend. From her descriptions it sounds like what she goes through this as well. I’m sure I don’t have to tell you to ignore the jerks who think everyone is perfectly healthy, we are all just making up illnesses in order to get attention, get out of work, stay in bed etc.. “lets just pull ourselves up by the bootstraps and stop whining...” as you do a good job shutting them down. But we see it. We witness their attempts to harm others. I refer to them as “The Temporarily Healthy”. Because something, at some time in their life WILL take them down a notch or thousand. Thanks for explaining a complex and frustrating illness for those who have never heard of it and for being supportive for those who suffer in silence and confusion. Good job.
thx a lot 😊 if she needs someone to talk dm me on instagram
Load More Replies...got a suggestion: get off your butt and take a walk. Look at some birds. Get out of your head; it's not a healthy place to be. but for the goddess' sake, don't go scurrying off to some doctor for more meds. Radical self-reliance will get your further. i've had a career-ending stroke, cancer and other diagnoses but wouldn't see a doctor if you paid m,e.
well i guess going out for a walk is the first thing to do and it helps as much as it helps. i walk since 3 years and its not getting any better! this has nothing to do or cant be fixed with just get off your but otherwise i wont have it😂 but yeah medication is not an option for me.
Load More Replies...I've had symptoms of this when I was younger, I never knew other people experienced it! I'm glad you've made comics about it to help people understand. :)
So THAT'S what that is. I used to have brief episodes of that when I was a kid, particularly if I stared at my hands for too long. Interesting.
I've had episodes during my teens, especially after an intense migraine. These usually lasted up to three days and were horrible! I often pinched myself or bit my lips to "bring myself back" from that spaced out feeling. Funnily enough those were my most creative moments. Episodes have stopped since I hit my 20s. Keep drawing and I hope you get through!
I used to have this, and it turned out to be caused by Temporal Lobe Epilepsy (TLE). The partial seizures associated with it have no outward physical manifestation, and are really really hard to describe, but symptoms like these can be typical. Once I started on anti-seizure meds they went away. I hadn't realised how many other things it was affecting too - I was suddenly less anxious and overwhelmed, it was like an actual physical weight I didn't know was there was lifted off me. I was very lucky that the therapist I was seeing was familiar with it and eventually managed to identify it might be the issue. It's not something a lot of people know about or would consider. If anyone is experiencing this and are having trouble tying it down to a particular mental illness it might be worth looking up TLE and speaking to a neurologist.
thanks for sharing your story! thats absolutly right, dpdr isnt only a symtome of a mental disorder there are also things like you have that can cause that.
Load More Replies...When I looked at the picture with a person inside a creepy eye, I thought it was about seeing faces/eyes everywhere and in everything. This is what happens to me, especially when it's dark. I used to have panic attacks when I was younger, for example when I was alone in a room with a convex glass sideboard and I was sure all those faces I saw there were going to kill me. Paintings also wanted to destroy me. It was awful. It's better now as long as I don't watch or read anything creepy. I'm sorry for your condition, it seems so exhausting... I just wanted to say I know anxiety and panic attacks are awful. I hope it gets better with time! <3
I had this for years, decades. At first it was a feeling like I was behind a glass wall and I couldn't touch other people (I couldn't connect) and that was the start of it. I was in my early 20s. It then progressed to becoming severely depersonalised in response to stress. At one point, becoming so bad my body became numb and I could not feel myself peeing whilst in the bathroom. Because I couldn't feel myself, I worried I was talking and not knowing it. I had a lot of therapy through out the years, and tried a lot of medication. Eventually, I discovered things about myself that helped me, that kept me connected to myself instead of fleeing or breaking that connection to avoid being present because I felt it was too dangerous to be present. I also found a medication that helped, a career that helped, a very good counselor, I came out to myself in various ways, dealt with a lot of trauma, learned new coping mechanisms with did take decades.
The last time I had to deal with dissociation was five years ago, after re-immersion back into my own culture after living away 5000 miles for 12 years and never visiting. It wasn't distressing this time as I was fully prepared for it and I found it more interesting than dismaying - I knew it wasn't going to last. That helped. It took about 3 months to fully disappear again. When I experienced the first half of this there was no name for it. Thanks to all the help I got, and the professionals who understood me, and my friends not minding, and doing very, very hard work, I am connected. So, there is hope. Depersonalisation and dissociation was the only way I could cope with the severe abuse (leave, internally) when I was a kid. So I learned to undo it. Some people weren't patient. I had to learn boundaries to keep those folks at an emotional & physical distance in a different way. Once I got that down, it got easier. Much care to those struggling with it
Load More Replies...All these years I've just called it my "here but not here" feeling. I can behave as if nothing unusual is going on, but that I'm really "out there" somewhere. Thank you for revealing the name for that. It's as much a relief as when I first got a name for my compulsions - OCD.
I have felt this way once when I stayed on for more then twenty four hours. I have never felt that way before, but it was like things were fuzzy and I couldn't completely keep up with conversations and got suprised when I found out I was talking. Probably completely different thing, but that's what this comic reminded me of.
Only 24 hours?? I have tinitus - therefore insomnia. I once went over 80 hours without sleep. Thought I was going insane. Still cannot sleep without pharmaceutical assistance
Load More Replies...Lulu, When it first came on 7 years ago, I too had both DP/DR and it was so scary! Currently I only have the Derealization and it is constant. I suffered in silence for years because I had seen three medical doctors and they did all kinds of expensive brain tests/scans/labs and it was a "normal". I finally saw a psychologist and was diagnosed with derealization associated with PTSD. You mean I'm not crazy and there are others going through this exact thing?! I was so relieved! Thank you for sharing your comics and for bringing light on a not well known disorder! Also, recently I had the realization that if the DP/DR is my body's reaction to stress, why am I wanting it to go away so badly? So I have now learned to cope by ignoring it under normal conditions and then relishing in it in stressful times. I am so much happier now! I have sang and spoken in front of crowds of people that way- I would never had done that before! I hope this helps ♥️ ((hugs))
This is really useful for myself, actually. I find it so difficult to explain what it feels like to have DPDR and it's really nice to see it put into simpler terms. I chuckled when I read "I can't look at you your face is too strange", cos that literally happens to me all the time! Thanks for this comic, it's lovely. xx
I was diagnosed with Bipolar II just over a year and a half ago, but I think the diagnoses was a bit off.. This seems more like what I experience... I mostly feel like I am watching myself or listening to things I say to people. Especially when I need to say smart things(I work in the medical field). It's like I am talking, but I don't know where the words are coming from. And then people be like 'oh, you are so smart!' and I know I'm really not. That was not me speaking.... Now I feel weird for saying that... But that staring through glass thing, that s**t's real. Especially when I'm surrounded by lots of people. I feel like I'm in a glass box. I can't hear them.. Well, I can, but I can't. I respond, but it's not me. Oh God, there I go again......
A motivating discussion is definitely worth comment. I think that you need to write more on this subject, it may not be a taboo matter but usually people don't talk about these subjects. To the next! Many thanks!!
These comics are exactly how I feel...difference is I thought it was normal!
I didnt know such conditions existing until I read your post. I would take it as you have higher consciousness compared to other people. In fact, we dont even know the purpose of this body, etc. Please take it positively and make use of the conditions. There are plenty of uncommon things around us but those do not mean negative conditions.
I suffered from this for a few months about 30 years ago. In retrospect, I believe that it was a symptom of generalized anxiety. Since I did not understand it, it brought on more anxiety and the cycle seemed endless. I thought I was going insane. Then, it stopped, probably when I made some changes in my life that helped alleviate my anxiety, and never came back. I remember vividly the struggle, though, and I can only wish all the sufferers out there to be able to get rid of those nasty episodes. Hang in there!
I am an art therapy student and I find your work amazing, Lulu. Most of the people know nothing about this disorder, and that's why it is so important to talk about it. Knowledge is the first step towards understanding. A better knowledge can bring us to a better understanding of ourselves and can help the people around us to understand us more and more. So, for all of you, that are suffering from this every day: please don't hide, and don't be afraid of sharing your feelings with the people you love. I am sure that this disorder can be treated too. If you have been in therapy for years and you didn't get better, just change therapist or approach, but don't give up! You just have to find what it works for you! I suggest to all the people that are looking for help, to watch this video: https://www.youtube.com/watch?v=H564Dmsksz0
I've told people about feeling as if I'm mentally a foot in front of my body. I'm so grateful for your post. Speaking up means others like myself feel less alone.
This is so strange, I have this feelings many times.Especially being suddenly afraid of my hands or legs if they "appear" next to me because I don't recognize them or not really recognizing people/myself. When I look directly into the mirror (eyecontact) I feel as if someone is wearing my face in disguise from the other side, so I try to focus on the small things (hair, mouth) with a fast glance. Or I lie beneath my husband and he somehow seems "not right" so I have to get up and leave the room. This is really ringing a bell. But I am very used to it (when I was younger I feared something was wrong with me but was too ashamed to talk about it). I don't know if I fall into this category but it is sure nice to read about someone experiencing the same feelings/thoughts!
I wonder if my daughter who has suffered multiple concussions has this going on. She also smokes too much weed to help her cope - she doesn't feel like she's living in reality unless she's smoking because that helps her feel real. I should mention this to her and see if she feels other ways you've described. I know I get a lot of these feels on the regular too. But I'm an over tired mom of 4 teens who hasn't had a decent sleep in 20 years. I know why I feel like this, spaced out, dreamworld around me.... Thank you for sharing! Your art is so cute!
Oh man... I didn't know this was a thing. I thought I was alone in this, as I've never met anyone who feels the same way. I experience this about 24/7, and it's nice to know that I'm not alone.
This happened dramatically for me when I was 13 years old. I remember the fear and confusion, that everyone and everything lost its reality. This state has constantly persisted and sent me on a deep spiritual search for who (or what) I truly am.
Just a question out of curiosity, do those of you who have DPDR feel trapped in your current lifestyles as well? I understand the notion of feeling like a passenger in your own body, but I'm referring more to your geography, job, friendgroups, etc. Do you feel as if these things are more just "going through the motions" or can you still feel passion in work, hobby, et al?
me personally i dont feel like very trapped when it becomes to ny lifestyle tbh... and i have a lot of passion when it becomes to art. art and drawin helps me alot because kind of distraction me and dissociate me but in a different way that dpdr does
Load More Replies...I've been experiencing this for months. I want to sign-up and there's the "i'm not a robot" verification thing, like, how dare you😃😃
It’s crazy how we do not know each other, and you have been able to explain and express the very experiences I go threw. Thankyou for this❣️
First of all, LOTS AND LOTS AND LOTSSSS of Love and Care to you, and all other friends who are also suffering from this. Going through this myself, I know how scary and weird experience this is, probably scariest of my life till now. I hope we all take care of ourselves and gain strength to cope up with this. It confuses me so much!! Sometimes I also feel helpless. Much love❤️❤️
I just discovered the term Derealization today. I've been living with this nonstop for the past 4 years and did not know what to call it. I tried describing it as seeing the world through the perspective of playing a VR game. Everything is only as real as it is within the game, but even so, the existence of the things themselves feel strange. It's a very Meta way to perceive reality.
Okay this is weird but I found your thing on Exploding head syndrome when I was looking up more online to see what even causes it. It's so hard to explain to people and they just think your nuts or paranoid. Then I saw this one and figured I'd read it too because I liked the drawings, had no clue what it was til I read it and thought woah. Okay. Yes. I know all of these feelings too. I dident know there was a name for it besides just kinda.. dissociation. Now I'm just stumped wondering if they go hand in hand or something.
this is so validating... it so accurately describes what i’ve felt 24/7 for years. thank you so, so much.
Hi Lulu! I suffered both DP/DR when it first came on me 7 yrs ago, but currently only have the Derealization. I have it constantly too and I also thought I was going crazy for years because I had went to three different medical doctors and they ran all kinds of expensive tests that came up normal. I finally saw a psychologist two years ago and she diagnosed me. It was a huge relief- I'm not crazy and there are others like me?! Thank you for sharing your comics and for bringing light to a disorder so unknown! Also, recently I had the realization of the fact that DP/DR is my body's reaction to stress (I have PTSD) so why am I wishing so hard for it to go away? Now I have learned to instead cope with it and ignore it in normal situations and to relish in it for stressful situations. I am much happier now. I hope this helps ❤️ ((hugs))
I think I'm gonna kill myself. I've been experiencing it for more than 2 years and I just don't wanna feel this anymore. I feel like I'm crazy, like I'm in a dream and can't wake up. Why should I continue live, when I suffer from this every day. I think there is no way for me to recover from it. I'm pretty sure about that. Im going to a therapist for over a year now, but nobody can help me...
feel free to write me a dm on instagram i was at the same point as you if you need someone to talk i am here
Load More Replies...I read this article with interest, the symptoms look awful for those who suffer from it. Is there much help out in the 'real world's for this illness? I can honestly say I have never heard of this particular type of dis-association before but it's a brave thing your doing! Thank you for enlightening me
Hi Lulu (and anyone else on here with this issue), I have been experiencing DPDR full time for almost 30 years. I know the first few years are really hard, but please know that it gets much, much better to deal with, as you start to understand that this is more like a "shield" your mind has created to protect you from life's stresses. It will not get worse. You will not lose your mind. You will start to feel comforted by it, I promise. I have led a full life. I have a happy marriage and wonderful children and am involved in many activities. DPDR will not hold you back, unless you let it...so do not! And it is far more common than you realize. As you have said, it is just difficult to describe, without others jumping to overly-dramatic conclusions. Good for you for talking about it!! (And thank you!) Lastly, watch the movie "Numb", which stars Matthew Perry. It is a true story about the movie's director, who has DPDR 24/7 as well. It is very uplifting!
Hi Lulu, I am super grateful that I can message you. I also used to have terrible depersonalization and disassociation symptoms and panic attacks where the feelings of unreality and impending insanity would accelerate until I became terrified. It's interesting because you wrote how marijuana would increase the symptoms, and I found that when I smoked it, it would make the depersonalization extremely strong to the point where I felt like I was floating feet above my head and looking down a tunnel to my body walking around on autopilot down below me, and it was horrible. But by forcing myself to smoke medical marijuana legally, with a trusted friend: I actually was able to heal my fear and panic by getting myself acclimated to those sensations. I learned reassure myself that I wasn't about to die, and wasn't about to go crazy, and just observe the sensations of floating above myself and how it felt, and eventual learn to enjoy them. Without fear I felt grounded and 'real' again
I have spent years with these symptoms. They never abate, and require no trigger. While I have never really had difficulty articulating my experience, I wonder if people believe me. I know how lucid and quick-witted I sound when I speak. I know that I am in a perpetual state of hyper-vigilance, perhaps to compensate for what I perceive to be weakness. I am open and forthcoming with most everything, and have had absolutely no luck with therapy, save for some weapons-grade medication. I've no history of trauma to speak of, a supportive family and partner, and a job I don't hate. So why do I feel this way? Will it ever go away? I'm done with this.
Lulu, I sincerely feel bad for you and others in this or other, I wonder if there is enough research for all mental issues, it must be extremely difficult for you, have you been on medication ? I pray a doctor will find medication to help. !!!
wow,i am living like this for 5 years now, i deal with depression too and the dpdr came after.its realy strange the all time felling that you dont belong anywere and everything is unreal.Thanks for sharing,say hi to Brazillll
I've had tiny episodes but only when I really zone out. Just be so annoying all the time.
I LOVE YOUR NO FACE HAIR CLIPS! ARE THEY REAL? IF SO WHERE CAN I GET THEM?
I had this after giving birth to my first child. I felt exactly this way for one day. I laid in my bed and this feeling got so strong that I instantly had the wish to go through the flat and into the kitchen to do something normal and to remember this way who I am. At least I didn't eat enough and my sugar wasn't high enough. As my husband brought me something to eat, and I've eaten it so fastly in a way i also got the feeling I stood beside myself, it stopped five minutes later.
Sorry, not english mothertongue, is this like the patology like I don't recognize myself in the mirror so I go down heavy on estetic surgery trying to match the two visions (normally that never happens because what I see is different from what I get) ?
no problem... no that mirror thing has nothing to do with gender or trying to change that. you just canz recognize yourself. if you look in the mirror you dont really think thats you .
Load More Replies...I'm grateful to the author for raising the awareness (mine at least!) about the condition. I never heard about this kind of disorder. Though, come to think of it, I do experience some kind of depersonalization when drinking alcohol, but I always thought it's just my sober inner auto pilot doing all the navigation of my drunk body =) I cannot imagine how strange it must feel to be 'inside' like that all the time...
glad it helped you for a better understanding😊💕
Load More Replies......."It's often caused by smoking weed." WTF?! Then STOP smoking it! (Not that I'm against smoking pot), but if it's causing you to feel DPDR, then STOP smoking it! And by god, whatever you do, don't take any LSD either, or you really will feel you are depersonalized. If you can't handle the fun, stay away from it. I've read up on DPDR and it is a mental problem. In fact, a lot of medical journals have numerous articles by doctors who believe it is just an attention-seeking type of personality disorder. It is NOT triggered by trauma, like a PTSD, but more of an individualistic personality disorder brought on by the desire to acquire attention from others. A sort of "look at me, woe is me, feel bad for me, lavish attention on me" type of disorder.
Dissociative disorders and personality disorders are both caused by extended trauma, in childhood, when the personality is still developing. There is no proven causative link between cannabis and mental illness, it's much more likely that the link is there due to cannabis alleviating the symptoms of mental illness. Works for me and my personality disorder. Which by the way is s serious, often fatal illness that you should never joke about.
Load More Replies...I have felt exactly that for a few hours then the LSD wore off. She described tripping . Sorry she feels like this all the time
i never had lsd but it actually really feel kind of a trip!
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