Yes! Toxic positivity only makes us feel worst.

That's all true!

I relate to this so much. Invisible diseases and getting used to hide the symptoms make that most people dont believe in our suffering. Including relatives and doctors.

I know it's true. And it shouldn't be. You're not failure nor guilty. And I know it's not much, but there are people on this world who are trying to make things better also that you don't have to feel like this.

relatable

Ok, feeling like I'm looking at a mirror now... these all ring true. Chronic pain/illness for 10+ years now... still no diagnosis. Ridiculous frustration

Having a plethora of chronic illnesses it almost hurts my brain how relatable this is.

Let go of the guilt and the idea that you're a failure. After many years, I've realized I don't have to apologize for being disabled.

Oh no. Please, it is all not reality. You're important

And some doctors treat you like you’re a drug addict.

I hear ya brother

Sympathize 100%

Story of my sad useless life

I feel guilty for not being "as sick" as other people with Ehlers Danlos, I guess it's a no win.

Thank you sir and right back at ya.

This is so very true. And the longer you have to hide that grimace the harder it gets.

Eds and pots exercise or it gets worse for you exercise and dislocate boneand have heart issue. I feel this one

This!

I wish I could like this more than once.

Being chronically ilI I can relate to this and confirm this statement is something very important, as we tend to feel we're being seen as lazy and/or selfish couch potatos

That's so right

This is so very true. I remember not really getting what my dad was meaning when he said he felt like he was walking on cords (I thought maybe he felt like his sock was bunched up, he had renal failure and diabetic neuropathy). I finally understand :(

Your almost dying with your illness

Thank you. I think that's a big thing that my friends don't get. The few friends that I still have.

😅😂😅

Darn straight.

True

It is surprising how much pain and discomfort you can get 'used to' and how easy it is to hide. I don't want it to be the first thing people know about me. I don't mind sharing but only if I think the person is going to actually listen, and not lecture me on what worked for their old mum who had a completely different problem. I'm not old, I'm ill and I'm also living with injuries from an accident. It isn't the same.

Yes, I am

Yes! YES!! SOMEONE WHO GETS IT!!!

Totally yes!

So very true!!!

I have to constantly remind someone in my life of this. Because I don't work she thinks it's ok to constantly pester me to do stuff for her. I just can't do it all.

Thank you so much

Okay, now you've made me tear up.

Getting stuff done also includes recovering. It needs to go on the to do list.

YES

So true! Didn't expect to be on disability and deciding day to day what I can do at my age. Trying not to do too much on days I feel better. Some days all I can do is rest all day.

That's so true.

Oooh, that's right up there with "everything happens for a reason". Yes , it could be worse, it could also be better. And what good does it do anybody saying that either? This is the bronze medal of the Misery Olympics.

My best friend has spina bifida and she expressed this to me. She then added that since I'm not a licensed medical professional and am unable to provide relief, she would accept a brew, and for me to watch her kids for a couple of hours while she slept. We can't give relief, sometimes the only thing we can offer is support if you want it (and not push it if you don't ask).

So true

Bless you.

So very true

Yep, feels the way the end of an 8 hour shift used to.

I may not be able to understand. But I can understand that it is real and legitimate.

The worst was when I had to miss my best friends funeral because I was too sick to get out of bed it was simply heartbreaking and everyone said it was OK put me it wasn't I miss her so much

Very

This needs to be a billboard.

My seizures and anxiety/panic attacks make my sleep schedule rotate. No matter what any doctor has tried, it's impossible for me to stay on a regular schedule. If I try, my fatigue triggers more seizures and anxiety/panic attacks. It's one big loop.

This should be a song theme