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I’ve Been Living With Alopecia Universalis For 19 Years And I Show The Good And Bad Parts Of It (23 Pics)

This happened 19 years ago. One morning, I woke up and found a pile of hair in my bed. The next morning, I saw more hair on the pillow and the nightmare began. Alopecia universalis runs very quickly – I lost all hair on the scalp, face, and body for only a few weeks. I was shocked! I was depressed.

My friends were asking me: What’s wrong with you? My answer was: I do not know, I have no idea! I was not prepared for this. The feeling is terrible – I was afraid that something terrible is happening inside me. Something that can kill me. I tried to get treatment, but my own life turned to hell for several years. I was looking for salvation in modern medicine – I swallowed countless colorful pills, I had a lot of corticosteroid injections, I used different lotions, foams, creams, or ointments. I was looking for salvation in traditional medicine – garlic, herbs, acupuncture. I felt guilty that the disease affects my family. My parents were helpless and they were suffering. My girlfriend was with me all the time, she supported me, she loved me … and she was suffering because the only thing I was doing was to seek treatment. Nothing else.

One day, I thought: I must stop this and continue to live normally. I should humbly accept Alopecia Universals as part of my life. I have to allow others to accept me, to be myself again. “Hey,” I said, “you have to keep doing what you love!” I love to be creative, this is one of the things that makes me feel good. I started the project Eyebombing Bulgaria – to humanize things that are broken, ruptured, punctured, tangled, or crumbling with googly eyes. I believe that this project will give a little smile wherever people see the eyes that will take them away from their boring everyday life.

Now I have a loving family and two wonderful children – for them, I am just special, not different. Sometimes I ask myself: “Why do I have Alopecia?” I still do not know. Maybe to win the game with a sense of humor. That’s how I feel right now!

More info: nagrevatel.blog

I've Been Living With Alopecia Universalis For 19 Years And I Show The Good And Bad Parts Of It (23 Pics)

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What do you think ?

POST

Jo Choto 5 years ago

I love this post. This gentleman has taken something traumatic and visible and made it a lovable part of himself!

80points

Hans 5 years ago

This is very nicely done!

21points

ju Hel 5 years ago

My older (11 years) has this since before my birth. He didn't let anyone outside family see him without a wig until he met his girlfriend at 35. But for me, this is so normal, and when I meet (or just see) someone without hair it feels so familiar that I instantly like this person :)

11points

ju Hel 5 years ago

*older brother

4points

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TheKnightOwl 5 years ago

I have a friend with alopecia, and the amount of people who treat her delicately because they think she has cancer is crazy. She had a couple of beers at a party we had, and others looked at her with dismay. They assumed she shouldn't be drinking because she must be on some heavy medications because of her "cancer". She doesn't even try to explain anymore, she shouldn't have to.

9points

Tammy Kirks 5 years ago

Love your sense of humor! Thank you for sharing your journey and struggle with us!

9points

K D 5 years ago (edited)

I dated a man with alopecia universalis. He had the smoothest, softest skin I've ever felt and my freshly waxed legs were nowhere near to matching that. It was both amazing and embarrassing in comparison.

8points

RitaGG 5 years ago

This was funny, lovely and touching. Thank you for sharing.

7points

Mimi M 5 years ago

Cute and sweet. Nice person is winner!

7points

Gwinevere von Ludwig Premium 5 years ago

You go, Vanyu! Coolest guy ever!

7points

Ms Phit 5 years ago

Yes! I have undiagnosed pain syndromes and hives... and spent so much time every week going to Drs, getting all sorts of treatments. For years I would have at least one to five appointments a week! Then, about two years ago I decided to give myself one week off from Drs per month...it was wonderful and I felt exactly the same, sometimes better... that has snowballed into having to go to only 2-4 appointments a month now, and I'm still undiagnosed but I'm living my life again, so happy to be away from the depressing cycle of hope and disappointment !

6points

LadyMarsh 5 years ago

You sir, have one hell of a sense of humour. Brilliant post 😀

6points

Sara Nicole 5 years ago

I believe how hard was for you , but it's great the way you turned this problem in to a solution , by accepting yourself the way you are and spreading your positive message . I'm very happy , things get better with time . You are a great person .

5points

Liana Seath 5 years ago

Love it. What a way to be positive.

5points

Allyn Ziebarth 5 years ago

I have a young friend who has Alopecia. She is beautiful and started a modeling career after she got it to promote awareness and to particularly help young women who have this condition.

4points

Billy Beecham 5 years ago

Great post! Great attitude! Love it!

4points

Myrto Niforou 5 years ago

What a lovely personality!

3points

OnlyMyOpinion 5 years ago

The shaving one made me laugh.

3points

Lilli 5 years ago

hi, I'm not sure if you will notice this, but you are a huge inspiration with so much positive energy!! Today has been one of the absolute worst days of my life(don't want to get into any specifics) but you made me smile for at least a few minutes, so thank you. :)

2points

Magic567 5 years ago

I hope that it gets better you beautiful human

1point

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CaliforniaUberAlles 5 years ago

Funny post and a very good looking man.

2points

Jen Nerrick 5 years ago

I’ve had alopecia universalis since I was a toddler. Going through adolescence was very hard, as were the teenage years, but now I am a woman in my early 40s and not only have I come to accept it, but I love it! It has enhanced my life in ways I could never imagine had my hair never fallen out. Great post, OP!

1point

Pavlina G 5 years ago

I love this. So funny yet so educational.

1point

Max L. 5 years ago

Id wonder why he wouln't have had a normal family

1point

Gina Bina 4 years ago

This was great! Thanks for helping spread awareness and information about alopecia universalis. I have alopecia areata. Senidng lots of love!

0points

henrywiggins26 4 years ago

Gina Bina what

0points

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Russian Otaku 5 years ago

Jealous as f**k I'd take no hair over hair any day. We for the most part as humans have stopped needing hair ages ago

0points

M Dream 5 years ago

just normal

0points

Alexandru Bucur 5 years ago

Completely off topic, but are you polish, perchance? Because on the last picture, besides the ubiquitous Gp-5 gas masks, there is also a Polish Mc-1 gas mask. Yeah, I know, way to focus on the wrong thing... but hey, I might not know much about alopecia, but I do know about gas masks...

0points

Naomi Scrutton 5 years ago

When I was a teen I had a mate with Alopecia Universalis, because he had no hair on his head he'd grown a thin layer of fat over his scalp. I used to love giving him head massages

0points

Bubble tea 🤗 5 years ago

The shaving one was my fav so funny! （＾∇＾）

0points

Matt 5 years ago

This is a comment

-1point

Leo H 5 years ago

But honestly it's not like your 7 foot tall and green..there are alot of dudes that are bald..alot of us are going bald...so you should just blend right in

-2points

Magic567 5 years ago

why can't you just f**k off you pathetic child?

2points

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Leo H 5 years ago

This comment is hidden. Click here to view.

WaffleFryLife 5 years ago

he's not just complaining about it. he made it clear that he considers himself very lucky to have a loving family and he stated the good things along with the bad. this post is something beautiful from a beautiful person looking to raise awareness for others like him, not a post about how much he hates having no hair and how unlucky he is.

4points

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POST

Jo Choto 5 years ago

I love this post. This gentleman has taken something traumatic and visible and made it a lovable part of himself!

80points

Hans 5 years ago

This is very nicely done!

21points

ju Hel 5 years ago

11points

ju Hel 5 years ago

*older brother

4points

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TheKnightOwl 5 years ago

9points

Tammy Kirks 5 years ago

Love your sense of humor! Thank you for sharing your journey and struggle with us!

9points

K D 5 years ago (edited)

8points

RitaGG 5 years ago

This was funny, lovely and touching. Thank you for sharing.

7points

Mimi M 5 years ago

Cute and sweet. Nice person is winner!

7points

Gwinevere von Ludwig Premium 5 years ago

You go, Vanyu! Coolest guy ever!

7points

Ms Phit 5 years ago

6points

LadyMarsh 5 years ago

You sir, have one hell of a sense of humour. Brilliant post 😀

6points

Sara Nicole 5 years ago

5points

Liana Seath 5 years ago

Love it. What a way to be positive.

5points

Allyn Ziebarth 5 years ago

I have a young friend who has Alopecia. She is beautiful and started a modeling career after she got it to promote awareness and to particularly help young women who have this condition.

4points

Billy Beecham 5 years ago

Great post! Great attitude! Love it!

4points

Myrto Niforou 5 years ago

What a lovely personality!

3points

OnlyMyOpinion 5 years ago

The shaving one made me laugh.

3points

Lilli 5 years ago

2points

Magic567 5 years ago

I hope that it gets better you beautiful human

1point

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CaliforniaUberAlles 5 years ago

Funny post and a very good looking man.

2points

Jen Nerrick 5 years ago

1point

Pavlina G 5 years ago

I love this. So funny yet so educational.

1point

Max L. 5 years ago

Id wonder why he wouln't have had a normal family

1point

Gina Bina 4 years ago

This was great! Thanks for helping spread awareness and information about alopecia universalis. I have alopecia areata. Senidng lots of love!

0points

henrywiggins26 4 years ago

Gina Bina what

0points

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Russian Otaku 5 years ago

Jealous as f**k I'd take no hair over hair any day. We for the most part as humans have stopped needing hair ages ago

0points

M Dream 5 years ago

just normal

0points

Alexandru Bucur 5 years ago

0points

Naomi Scrutton 5 years ago

When I was a teen I had a mate with Alopecia Universalis, because he had no hair on his head he'd grown a thin layer of fat over his scalp. I used to love giving him head massages

0points

Bubble tea 🤗 5 years ago

The shaving one was my fav so funny! （＾∇＾）

0points

Matt 5 years ago

This is a comment

-1point

Leo H 5 years ago

But honestly it's not like your 7 foot tall and green..there are alot of dudes that are bald..alot of us are going bald...so you should just blend right in

-2points

Magic567 5 years ago

why can't you just f**k off you pathetic child?

2points

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Leo H 5 years ago

This comment is hidden. Click here to view.

WaffleFryLife 5 years ago

4points

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I’ve Been Living With Alopecia Universalis For 19 Years And I Show The Good And Bad Parts Of It (23 Pics)

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Vanyu Krastev

Vanyu Krastev